ME/CFS
Very severe → no benefit
Severe rolling PEM crash in ME/CFS, barely up, no improvement with strict pacing
- Condition
- ME/CFS
- At worst
- Very severe (bedbound, unable to do basic care)
- Ill for
- Not stated
- Last post
- May 2026
In their words
- Condition: ME/CFS
I’m in a severe rolling PEM crash that’s been going on for about 3 weeks
In context ↗ - At worst: Very severe
I’m being fed meals, minimizing movement and speaking as much as possible.
In context ↗ - Now: No benefit
Despite this, I’m continuing to crash.
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Plover 36390 reported a severe rolling PEM crash lasting about three weeks, with rapidly declining function. They were fed meals, minimised movement and speech, and could barely get up to the bathroom. Their PEM caused burning pain in the arms and legs, a 'brain on fire' feeling and severe insomnia. They were pacing strictly and planned to ask about low-dose Abilify and benzodiazepines.
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What they tried
Also tried
Their words about each treatment
- Pacing · No change
I’m pacing as strictly as I can ... Despite this, I’m continuing to crash.
In context ↗
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I’m in a severe rolling PEM crash that’s been going on for about 3 weeks
In context ↗ - Pain & fibromyalgia
intense burning pain in my arms and legs that worsens with any movement
In context ↗ - Sleep problems
severe insomnia
In context ↗