Long COVID
Mild → no benefitIll for 5 years
Long COVID with visual and spatial instability, still unwell after naltrexone
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill for
- 5 years
- Last post
- Apr 2026
In their words
- Condition: Long COVID
Some have said this is equivalent to long covid.
In context ↗ - At worst: Mild
They are mostly neuro/visual and have hampered my ability to work.
In context ↗ - Now: No benefit
I’ve tried many supplements and antibiotics but I’m still in the same state.
In context ↗ - Began after: a vaccination
My experience with Covid started with the vaccine.
Read from 9 of their posts and comments; links to the 7 this page draws on
Summary
Had chronic Lyme with mainly neurological and visual symptoms for over 20 years, then a tenfold worsening after a second COVID vaccine dose in March 2021. COVID in September 2022 and a long sinus infection in December 2023 added to it. Low-histamine foods, D-Hist, NAC, naltrexone and mindfulness helped a little, but by 2026 visual/spatial instability, food sensitivities and mast cell problems remained and they could no longer do their old work.
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What they tried
Also tried
low histamine foods· HelpedD-Hist supplement· HelpedNAC· Helpednaltrexone· Helpedmindfulness exercises· Helpedacupuncture· HelpedReiki energy work· HelpedPaxlovid· No changemany supplements· No changeantibiotics· No changeguanfacine· Worsesleep medication· Not said
Their words about each treatment
- guanfacine · Worse
I tried guanfacine but that seemed to aggravate my symptoms.
In context ↗ - low histamine foods · Helped
What has helped me is low histamine foods, D-Hist supplement, NAC, naltrexone and mindfulness exercises.
In context ↗ - acupuncture · Helped
What’s helped in a small way are certain supplements, especially those dealing with histamine intolerance, acupuncture, Naltrexone, NAC, and Reiki energy work.
In context ↗ - Paxlovid · No change
I tried Paxlovid the last time and I didn’t feel better
In context ↗ - many supplements · No change
I’ve tried many supplements and antibiotics but I’m still in the same state.
In context ↗ - sleep medication · Not said
I take sleep medication so my brain gets to heal.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| March 2021 | second COVID vaccine dose; neurological and visual symptoms worsened tenfoldAfter the 2nd shot my symptoms got many times worseIn context ↗ | Mild | |
| December 2023 | long sinus infection set them backI got a sinus infection in December and that set me back to where I’m still dealing with itIn context ↗ | Mild | |
| January 2024 | small improvement on low-histamine diet, supplements, naltrexone and mindfulnessWhat has helped me is low histamine foods, D-Hist supplement, NAC, naltrexone and mindfulness exercises. It’s still with me but it is better.In context ↗ | Mild | Low-histamine diet |
| April 2026 | same state, unable to do former workI’ve tried many supplements and antibiotics but I’m still in the same state.In context ↗ | Mild |
Adverse events
- Guanfacine“I tried guanfacine but that seemed to aggravate my symptoms.” In context ↗ Made symptoms worse
Symptoms mentioned
Heart symptoms & palpitationsMast cell (MCAS) & allergiesPain & fibromyalgiaSleep problemsVision problems
Their words about their symptoms
- Vision problems
The main symptoms are neurological: visual/spatial dysfunction which makes everything in my visual field unsteady
In context ↗ - Mast cell (MCAS) & allergies
I have developed many food sensitivities as well as mast cell regulation problems
In context ↗ - Sleep problems
I take sleep medication so my brain gets to heal
In context ↗ - Pain & fibromyalgia
Lots of face, jaw and tooth pain.
In context ↗ - Heart symptoms & palpitations
I also feel my heart working hard.
In context ↗