ME/CFS with flare-ups, somewhat better after yoga with rest
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- Not stated
- Last post
- May 2024
In their words
- Condition: ME/CFS
It also helps with the pain that comes with CFS.
In context ↗ - At worst: Mild
This has allowed me to increase my activity level without crashing.
In context ↗ - Now: Somewhat better
Not cured but I know now what I can do to try to avoid a flair up.
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A Reddit user with CFS, not cured, who has learned to avoid flare-ups by stopping and resting before their energy runs out. They credit yoga, with rest allowed, for raising activity without crashing and easing pain. Bedtime THC and CBD help sleep and pain; magnesium, vitamin D and creatine feel helpful. Keto gave twice the energy, but they now just limit carbs and gluten.
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What they tried
What they credit
Also tried
Their words about each treatment
- Never run out of spoons · Helped
Not cured but I know now what I can do to try to avoid a flair up. ... If you feel like are are about to run out of energy just stop and rest.
In context ↗ - pushing past discomfort and fatigue · Worse
Before yoga, I was taught to push past discomfort and fatigue which will always lead to me run out of spoons and crash.
In context ↗ - Yoga · Helped
It helped be gain more stamina and strength while having the liberty to rest if I was getting too tired. ... This has allowed me to increase my activity level without crashing.
In context ↗ - TCH and CBD · Helped
I only take a small dose right before bed time but I feel the effects of it all week long. It helps me get good sleep and also helps with my pain management.
In context ↗ - Magnesium · Helped
I keep buying these because I can feel a difference while taking them.
In context ↗ - Keto diet · Helped a lot
I felt at my best when I was on a Keto diet. I had twice the energy and almost no pain.
In context ↗ - carb/gluten-free diet · Helped
Now I just try to limit the amount of carbs I consume and try not to consume gluten as much as possible.
In context ↗
Approaches: Diet · Mind-body practices · Pacing · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| onset | CFS with crashes after running low on energyTrying to recover from a crash for me can take days or even weeks.In context ↗ | Not stated |
| — | gentle yoga class that allowed rest, increased activity without crashingThis has allowed me to increase my activity level without crashing.In context ↗ | Mild |
| — | keto diet, felt at their best with twice the energyI felt at my best when I was on a Keto diet. I had twice the energy and almost no pain.In context ↗ | Mild |
| 2024-05-30 | resting before energy runs out, yoga, low-carb and low-gluten dietNot cured but I know now what I can do to try to avoid a flair up.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
Trying to recover from a crash for me can take days or even weeks.
In context ↗ - Pain & fibromyalgia
It also helps with the pain that comes with CFS.
In context ↗ - Sleep problems
It helps me get good sleep and also helps with my pain management.
In context ↗
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