Everyone · 967 people
How it went for everyone who tried one of its treatments
Helped means they said it helped with what they took it for, which may be one symptom and not the illness. Each person counts once: someone who tried several of these treatments is split equally across those they said how it went for.
Shares are out of the 680 people who said how it went for at least one of them, each counted once, the parts rounded to whole people. 287 more tried one or credit the approach without saying how it went.
Show as a table
| How it went | People | Share |
|---|---|---|
| Helped a lot | 84 | 12% |
| Helped | 374 | 55% |
| No change | 139 | 21% |
| Worse | 74 | 11% |
| Much worse | 9 | 1% |
Everyone · 244 people
Among the 244 who credit it with their improvement, here’s how they are now
Credit it means they say it’s one reason they got better.
Where each person was at the end of their story, or in their latest post that says how they are, compared with their worst point.
Show as a table
| Outcome described | People | Share |
|---|---|---|
| Recovered | 20 | 8% |
| Near normal | 30 | 12% |
| Much better | 80 | 33% |
| Somewhat better | 85 | 35% |
| Relapsed | 29 | 12% |
Did it last?
- 16 of 244 said the benefit of a treatment in this approach wore off (9 of them among the 29 who relapsed).
- 148 of 244 say they still need to keep doing something (not always one in this approach) to stay well.
Read from what people wrote, and the more someone wrote, the more likely they are to mention it. Some people stop posting before saying, so the real number may be higher.
Long COVID · 354 people
How it went for everyone who tried one of its treatments
Helped means they said it helped with what they took it for, which may be one symptom and not the illness. Each person counts once: someone who tried several of these treatments is split equally across those they said how it went for.
Shares are out of the 234 people who said how it went for at least one of them, each counted once, the parts rounded to whole people. 120 more tried one or credit the approach without saying how it went.
Show as a table
| How it went | People | Share |
|---|---|---|
| Helped a lot | 33 | 14% |
| Helped | 145 | 62% |
| No change | 31 | 13% |
| Worse | 24 | 11% |
| Much worse | 1 | <1% |
Long COVID · 97 people
Among the 97 who credit it with their improvement, here’s how they are now
Credit it means they say it’s one reason they got better.
Where each person was at the end of their story, or in their latest post that says how they are, compared with their worst point.
Show as a table
| Outcome described | People | Share |
|---|---|---|
| Recovered | 7 | 7% |
| Near normal | 18 | 19% |
| Much better | 28 | 29% |
| Somewhat better | 34 | 35% |
| Relapsed | 10 | 10% |
Did it last?
- 4 of 97 said the benefit of a treatment in this approach wore off (3 of them among the 10 who relapsed).
- 57 of 97 say they still need to keep doing something (not always one in this approach) to stay well.
Read from what people wrote, and the more someone wrote, the more likely they are to mention it. Some people stop posting before saying, so the real number may be higher.
ME/CFS · 600 people
How it went for everyone who tried one of its treatments
Helped means they said it helped with what they took it for, which may be one symptom and not the illness. Each person counts once: someone who tried several of these treatments is split equally across those they said how it went for.
Shares are out of the 438 people who said how it went for at least one of them, each counted once, the parts rounded to whole people. 162 more tried one or credit the approach without saying how it went.
Show as a table
| How it went | People | Share |
|---|---|---|
| Helped a lot | 51 | 12% |
| Helped | 224 | 51% |
| No change | 106 | 24% |
| Worse | 49 | 11% |
| Much worse | 8 | 2% |
ME/CFS · 143 people
Among the 143 who credit it with their improvement, here’s how they are now
Credit it means they say it’s one reason they got better.
Where each person was at the end of their story, or in their latest post that says how they are, compared with their worst point.
Show as a table
| Outcome described | People | Share |
|---|---|---|
| Recovered | 13 | 9% |
| Near normal | 12 | 8% |
| Much better | 52 | 37% |
| Somewhat better | 49 | 34% |
| Relapsed | 17 | 12% |
Did it last?
- 11 of 143 said the benefit of a treatment in this approach wore off (5 of them among the 17 who relapsed).
- 91 of 143 say they still need to keep doing something (not always one in this approach) to stay well.
Read from what people wrote, and the more someone wrote, the more likely they are to mention it. Some people stop posting before saying, so the real number may be higher.
Everyone · not split by condition
By how ill people were
Only the 244 who credit this approach, so people it didn’t help or made worse aren’t here. How they are now is their outcome overall.
| Severity at worst | How they are now | n | Recovered or near normal |
|---|---|---|---|
| Mild | 53 | 21% | |
| Moderate | 54 | 20% | |
| Severe | 84 | 21% | |
| Very severe | 11 | 18% | |
| Not stated | 42 | 19% |
Show as a table
| At worst | Outcome | People | Share |
|---|---|---|---|
| Mild | Recovered | 5 of 53 | 10% |
| Mild | Near normal | 6 of 53 | 11% |
| Mild | Much better | 12 of 53 | 23% |
| Mild | Somewhat better | 24 of 53 | 45% |
| Mild | Relapsed | 6 of 53 | 11% |
| Moderate | Recovered | 1 of 54 | 2% |
| Moderate | Near normal | 10 of 54 | 18% |
| Moderate | Much better | 19 of 54 | 35% |
| Moderate | Somewhat better | 16 of 54 | 30% |
| Moderate | Relapsed | 8 of 54 | 15% |
| Severe | Recovered | 9 of 84 | 11% |
| Severe | Near normal | 9 of 84 | 10% |
| Severe | Much better | 36 of 84 | 43% |
| Severe | Somewhat better | 20 of 84 | 24% |
| Severe | Relapsed | 10 of 84 | 12% |
| Very severe | Recovered | 2 of 11 | 18% |
| Very severe | Much better | 5 of 11 | 46% |
| Very severe | Relapsed | 4 of 11 | 36% |
| Not stated | Recovered | 3 of 42 | 7% |
| Not stated | Near normal | 5 of 42 | 12% |
| Not stated | Much better | 8 of 42 | 19% |
| Not stated | Somewhat better | 25 of 42 | 60% |
| Not stated | Relapsed | 1 of 42 | 2% |
Everyone · not split by condition
Treatments in this approach
The bar (How it went) and the line under each name are among everyone on the site who tried it and said how it went, the same numbers as on each treatment’s own page. Recovered and Faded are among the people here who credit it. Grey numbers rest on fewer than 10 people; a faded share in red is a third or more.
Everyone · 244 people
20 of the 244 people
See all 244 stories-
ME/CFS at rock bottom, now much better but still often in bed with pacing
Cedar 14930 has had ME/CFS for over 30 years, with a sudden flu-like onset, and deteriorated until hitting rock bottom around 11 years before 2020; since then they have improved but remain far from well, often spending 16–23 hours a day in bed and unable to…
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Near-total loss of function with ME/CFS; a year of remission, then relapse
Fell ill around 2000 with a cold-like illness; severe hypokalaemia later caused paralysis and hospital care. Years of moderate CFS deteriorated into constant shivering and near-total loss of function until levothyroxine stopped it. A combined diet, thyroid,…
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Long COVID: unable to work for months, now somewhat better after antihistamines and LDN
After covid in March 2024, they developed long covid with EBV reactivation, histamine intolerance, dizziness and sensory overload, and could not work for months. Antihistamines with a low-histamine diet helped mood and sleep; LDN helped, and acupuncture…
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Nearly bedbound and housebound with ME/CFS, now much better after T4/T3 and diet changes
Quail 70138 had CFS and hypothyroidism and was nearly bedbound/housebound before a decade-long improvement to moderate-mild. Treating subclinical hypothyroidism with T4/T3, plus diet changes, hydrocortisone, amino acids and PQQ with ubiquinol, helped: she…
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Five-month ME/CFS crash with light and sound intolerance, now much better with pacing
She fell ill with COVID-19 in April 2022 and developed long COVID, ME/CFS and orthostatic tachycardia. After worsening overall in the first year and a half, she had a five-month crash in early 2024 when she could barely do things and could not tolerate light…
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Bedridden with ME/CFS for a year, now somewhat better but still unwell
ME/CFS began in August 2003, in her early forties, probably from a virus plus inborn myopathy; she was bedridden and using a wheelchair for about a year, then improved over years to walking about a mile a day with help, though unable to hold a job. She later…
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Housebound with ME/CFS, somewhat better after testosterone gel
A trans man ill with ME/CFS and POTS since about December 2019, he was housebound and mostly sitting up in bed before testosterone gel in February 2022 lifted his energy within a week. Ketotifen and celecoxib also raised his crash threshold. After a…
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ME/CFS over 20 years, bedbound, thyroid and Lyme treatment helped before relapse
They had ME/CFS for over 20 years, sleeping 30 minutes a night for over a decade. Thyroid and adrenal treatment improved sleep and many symptoms, and Lyme and bartonella treatment helped their function for many years. Later ADHD medication worsened them, a…
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Daily fatigue and PEM with ME/CFS, somewhat better with Prozac and less work stress
Stream 75770 developed mild long COVID after a suspected infection in March 2020 and was close to normal by mid-2021. Moderna shots brought back daily fatigue, PEM, joint and nerve pain, worse than the first bout. Later they tried Prozac, cut out caffeine…
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ME/CFS for over 16 years, now recovered after tai chi and cold-water swimming
Nightjar 85524 had ME/CFS for over 16 years by 2022, working part time much of that time. Pacing, a smartwatch and NADH brought slow gains, while a second Pfizer dose caused a severe crash that took about eight months to recover from. Tai chi and carefully…
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Severe ME/CFS, now somewhat better with cyclobenzaprine and electrolytes
A Michigan mother with ME/CFS and fibromyalgia, ill for several years, kept a sedentary full-time job but otherwise mostly rested or slept. She credited a mix of medications, especially the muscle relaxer cyclobenzaprine, and daily electrolytes with small…
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Couchbound with long COVID then housebound, now recovered after nervous-system training
Cove 48309 got long COVID in 2022 and was couchbound with PEM, severe cognitive dysfunction, palpitations and MCAS, then housebound for the rest of the two and a half years. Pacing, LDN, ketotifen, NAC and a birth-control switch made them more functional but…
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Long COVID chest pressure and labored breathing, much better with low-carb diet and LDN
Developed long COVID in December 2022 with chest pressure, labored breathing and tachycardia triggered by carbohydrates, but no fatigue, brain fog or PEM. A low-carb diet and Larazotide eased symptoms, the diet leaving them at about 90%. Pneumonia in…
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ME/CFS and no social life, much better with hyperbaric oxygen and B12
Lagoon 34908 had mild ME/CFS before an April 2020 COVID infection that wrecked them; an untested flu or other infection, mono, Lyme and mould exposure also contributed. While still working, they improved from poor work performance and no social life to good…
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Long COVID brain fog and fatigue, much better after antihistamines and low-histamine diet
They got long COVID from a 2022 COVID infection, with migraine, brain fog, aphasia, body pain and fatigue that kept them in bed for days. Over three years they improved by treating histamine intolerance with antihistamines and a low-histamine AIP diet,…
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Very severe long COVID, unable to eat normal food, now much better with thyroid treatment
Stream 93767 has had long COVID since very early in the pandemic, with POTS, MCAS and SIBO, and was very severe in the winter of 2025, unable to eat normal food or get to the bathroom. IVIG lifted them out of that state, and thyroid treatment for Hashimoto's…
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Mild-to-moderate ME/CFS with PEM crashes, now trending toward mild with LDN and pacing
She was 41, later 42, when ME/CFS or long COVID followed a mild COVID infection about three years earlier; she described being mild-to-moderate, working very part time and not going out much, with PEM crashes. Low-dose naltrexone, compounded and not covered…
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ME/CFS for two decades with a bedbound crash, now vastly improved on nicotine patches
They were unwell for about two decades with ME/CFS, including a months-long bedbound crash. Nicotine patches brought marked improvement over months, and rapamycin caused initial worsening followed by a few weeks of large gains before a virus led to a…
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Severe ME/CFS, now milder end of moderate after pacing
Creek 98736 fell ill overnight in January 2021 and was severe to very severe for about two and a half years, sleeping 21 hours a day and unable to write or speak at times. Around her May 2023 ME diagnosis she began pacing and stopped antidepressants that had…
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ME/CFS crashes on exertion, in bed much of day, now much better with rest and pacing
Cove 32044 dates her assumed ME/CFS to an unspecified illness in 2019 during college, after years of unexplained fatigue since her teens. She crashed after classes, shopping and any exertion, in bed much of the day. Seven years of constant rest and pacing,…
The newest 20 people who credit thyroid hormones.
Long COVID · 97 people
20 of the 97 people
See all 97 stories-
Long COVID: unable to work for months, now somewhat better after antihistamines and LDN
After covid in March 2024, they developed long covid with EBV reactivation, histamine intolerance, dizziness and sensory overload, and could not work for months. Antihistamines with a low-histamine diet helped mood and sleep; LDN helped, and acupuncture…
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Couchbound with long COVID then housebound, now recovered after nervous-system training
Cove 48309 got long COVID in 2022 and was couchbound with PEM, severe cognitive dysfunction, palpitations and MCAS, then housebound for the rest of the two and a half years. Pacing, LDN, ketotifen, NAC and a birth-control switch made them more functional but…
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Long COVID chest pressure and labored breathing, much better with low-carb diet and LDN
Developed long COVID in December 2022 with chest pressure, labored breathing and tachycardia triggered by carbohydrates, but no fatigue, brain fog or PEM. A low-carb diet and Larazotide eased symptoms, the diet leaving them at about 90%. Pneumonia in…
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Long COVID brain fog and fatigue, much better after antihistamines and low-histamine diet
They got long COVID from a 2022 COVID infection, with migraine, brain fog, aphasia, body pain and fatigue that kept them in bed for days. Over three years they improved by treating histamine intolerance with antihistamines and a low-histamine AIP diet,…
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Very severe long COVID, unable to eat normal food, now much better with thyroid treatment
Stream 93767 has had long COVID since very early in the pandemic, with POTS, MCAS and SIBO, and was very severe in the winter of 2025, unable to eat normal food or get to the bathroom. IVIG lifted them out of that state, and thyroid treatment for Hashimoto's…
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Long COVID brain fog and palpitations for two years, now nearly normal on levothyroxine
He fell ill in December 2022, within a day of his third Moderna booster, and worsened after a third COVID infection a month later. For two years he had palpitations, chest and abdominal pain, sinus mucus and brain fog. Levothyroxine for COVID-damaged…
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Housebound by long COVID, now much better with rest and LDN
Their first long COVID bout in 2021 was mild. A February 2024 infection brought a worse second bout: after a spring reinfection they could barely leave bed for three months and were housebound. Rest, psilocybin, niacin flushes, supplements, creatine, HRT,…
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In bed with long COVID for about a year, now much better with time and thyroid treatment
Valley 46258 got long COVID from a COVID infection and was in bed for about a year after a third Pfizer dose, with brain fog, blurry vision, dizziness and unrefreshing sleep. Time, vitamin D and proper thyroid treatment including T3 brought most of the…
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Long COVID gastritis and 55 lbs weight loss; hydrocortisone and lactoferrin gains wore off
Breeze 53344 fell ill a few years ago, a few months after a second Pfizer jab, with gut pain and 25 lbs of weight loss; four years of daily gastritis followed and they lost 55 lbs. Self-started hydrocortisone stopped the stomach pain within three days and…
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Most days in bed with long COVID; nicotine patches gave major improvement, then relapses
Long COVID followed a 2020 infection and facial tingling after their second vaccine dose, with symptoms intensifying about a year later; at worst they spent most days in bed. Ivermectin and supplements helped, and a 20-day nicotine patch course from March…
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Severe long COVID with burning head symptoms, now around 90% after glycine and NAC
Mesa 43715, a 39-year-old man, got long COVID in May 2023 and became severe months later after doxycycline, with burning head symptoms. An SSRI eased the neuro-inflammation; from June 2024 high-dose glycine and NAC stopped his PEM within weeks; he also took…
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In bed most of the day with long COVID, now near normal after Truxima and gluten-free diet
He caught COVID in February 2020 and long COVID symptoms came 6-9 months later. At worst he was in bed or on the couch 16-20 hours a day, worked under 50%, and a one-mile ride meant a four-hour nap. After a second rheumatologist diagnosed mixed connective…
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Unable to walk with long COVID, close to normal after antihistamines and low-histamine diet
Rain 49676 fell ill in November 2021; COVID in June 2022 triggered MCAS and anaphylaxis, and a second infection that August left her unable to walk with severe muscle wasting. Levothyroxine and hydroxychloroquine for Hashimoto's, with antihistamines and a…
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Severely debilitated by long COVID, slowly improving after leaving mold and lactoferrin
US mother whose long COVID worsened after a March 2021 Pfizer vaccination, becoming severely debilitated with POTS, MCAS, pericarditis and left-sided nerve pain. She tried supplements, statins, nicotine patches, EBO2 and hyperbaric oxygen with mixed or…
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Bedridden with long COVID and severe MCAS, now much better on ketogenic diet
At their worst they were bedridden and had severe MCAS, neuropathy and autoimmune problems, and recovered from POTS with midodrine, fludrocortisone and a low-carb diet. They credited a ketogenic diet for a huge difference in their chronic fatigue and brain…
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Borderline bedridden with long COVID, now 80% functional after LDN and low-dose Abilify
This long COVID patient fell ill in July 2023 with head pressure, brain fog and fatigue, becoming borderline bedridden. Hydrocortisone with LDN and low-dose Abilify brought major progress within a month, and Zepbound, started in 2025, made a big further…
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Long COVID with brain fog and PEM, somewhat better after antihistamines and LDN
Long COVID with brain fog, PEM, gut problems, chest pain, an ER visit, breathlessness and tingling hands, still affected after two and a half years. Antihistamines, natto-serra, fasting, thyroid medication and low-dose naltrexone each seemed to help; they…
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Long COVID depression and fatigue, much better after thyroxine and carnivore diet
Canyon 74560 caught COVID in May 2020 and seven months later developed depression, fatigue and anhedonia. They credit thyroxine, antidepressants, supplements, a zero-carb carnivore diet and water fasting with clearing most physical symptoms, and say each…
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Long COVID with brain fog, fatigue and dizziness; nicotine patches helped, then relapse
Ridge 68466, a college teacher in Greece, developed long COVID after a COVID infection in December 2022, with brain fog, anxiety, fatigue, aching muscles and later low blood pressure and dizziness. A June 2024 reinfection brought the symptoms back. Nicotine…
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Long COVID with severe PEM and POTS after a career-ending relapse, still worse again
Orchid 21313 had CFS from 2009, in remission until a COVID vaccine in January 2021 reactivated it, adding severe PEM, POTS, Hashimoto's and brain fog and forcing them to quit their career. They reported slight improvement in 2023 while taking daily vitamins,…
The newest 20 people with long COVID who credit thyroid hormones.
ME/CFS · 143 people
20 of the 143 people
See all 143 stories-
ME/CFS at rock bottom, now much better but still often in bed with pacing
Cedar 14930 has had ME/CFS for over 30 years, with a sudden flu-like onset, and deteriorated until hitting rock bottom around 11 years before 2020; since then they have improved but remain far from well, often spending 16–23 hours a day in bed and unable to…
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Near-total loss of function with ME/CFS; a year of remission, then relapse
Fell ill around 2000 with a cold-like illness; severe hypokalaemia later caused paralysis and hospital care. Years of moderate CFS deteriorated into constant shivering and near-total loss of function until levothyroxine stopped it. A combined diet, thyroid,…
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Nearly bedbound and housebound with ME/CFS, now much better after T4/T3 and diet changes
Quail 70138 had CFS and hypothyroidism and was nearly bedbound/housebound before a decade-long improvement to moderate-mild. Treating subclinical hypothyroidism with T4/T3, plus diet changes, hydrocortisone, amino acids and PQQ with ubiquinol, helped: she…
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Five-month ME/CFS crash with light and sound intolerance, now much better with pacing
She fell ill with COVID-19 in April 2022 and developed long COVID, ME/CFS and orthostatic tachycardia. After worsening overall in the first year and a half, she had a five-month crash in early 2024 when she could barely do things and could not tolerate light…
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Bedridden with ME/CFS for a year, now somewhat better but still unwell
ME/CFS began in August 2003, in her early forties, probably from a virus plus inborn myopathy; she was bedridden and using a wheelchair for about a year, then improved over years to walking about a mile a day with help, though unable to hold a job. She later…
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Housebound with ME/CFS, somewhat better after testosterone gel
A trans man ill with ME/CFS and POTS since about December 2019, he was housebound and mostly sitting up in bed before testosterone gel in February 2022 lifted his energy within a week. Ketotifen and celecoxib also raised his crash threshold. After a…
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ME/CFS over 20 years, bedbound, thyroid and Lyme treatment helped before relapse
They had ME/CFS for over 20 years, sleeping 30 minutes a night for over a decade. Thyroid and adrenal treatment improved sleep and many symptoms, and Lyme and bartonella treatment helped their function for many years. Later ADHD medication worsened them, a…
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Daily fatigue and PEM with ME/CFS, somewhat better with Prozac and less work stress
Stream 75770 developed mild long COVID after a suspected infection in March 2020 and was close to normal by mid-2021. Moderna shots brought back daily fatigue, PEM, joint and nerve pain, worse than the first bout. Later they tried Prozac, cut out caffeine…
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ME/CFS for over 16 years, now recovered after tai chi and cold-water swimming
Nightjar 85524 had ME/CFS for over 16 years by 2022, working part time much of that time. Pacing, a smartwatch and NADH brought slow gains, while a second Pfizer dose caused a severe crash that took about eight months to recover from. Tai chi and carefully…
-
Severe ME/CFS, now somewhat better with cyclobenzaprine and electrolytes
A Michigan mother with ME/CFS and fibromyalgia, ill for several years, kept a sedentary full-time job but otherwise mostly rested or slept. She credited a mix of medications, especially the muscle relaxer cyclobenzaprine, and daily electrolytes with small…
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ME/CFS and no social life, much better with hyperbaric oxygen and B12
Lagoon 34908 had mild ME/CFS before an April 2020 COVID infection that wrecked them; an untested flu or other infection, mono, Lyme and mould exposure also contributed. While still working, they improved from poor work performance and no social life to good…
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Mild-to-moderate ME/CFS with PEM crashes, now trending toward mild with LDN and pacing
She was 41, later 42, when ME/CFS or long COVID followed a mild COVID infection about three years earlier; she described being mild-to-moderate, working very part time and not going out much, with PEM crashes. Low-dose naltrexone, compounded and not covered…
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ME/CFS for two decades with a bedbound crash, now vastly improved on nicotine patches
They were unwell for about two decades with ME/CFS, including a months-long bedbound crash. Nicotine patches brought marked improvement over months, and rapamycin caused initial worsening followed by a few weeks of large gains before a virus led to a…
-
Severe ME/CFS, now milder end of moderate after pacing
Creek 98736 fell ill overnight in January 2021 and was severe to very severe for about two and a half years, sleeping 21 hours a day and unable to write or speak at times. Around her May 2023 ME diagnosis she began pacing and stopped antidepressants that had…
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ME/CFS crashes on exertion, in bed much of day, now much better with rest and pacing
Cove 32044 dates her assumed ME/CFS to an unspecified illness in 2019 during college, after years of unexplained fatigue since her teens. She crashed after classes, shopping and any exertion, in bed much of the day. Seven years of constant rest and pacing,…
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Moderate ME/CFS, unable to work, now somewhat better with pacing and surgery
She became ill with ME/CFS after a tick bite and has been moderate, unable to work, cook or shop without crashing. She credited a strict schedule, physical therapy, an air filter, and endometriosis surgery plus a hormonal IUD with small gains—about 2% from…
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ME/CFS for 12 years, moderate-severe and 99% housebound, later relapsed
Summit 93928 became ill at 16 after Epstein-Barr/mono and had had ME/CFS about 12 years by 2021, becoming moderate-severe and around 99% housebound after overdoing exercise in 2017-18. They were considering weight-loss surgery and used cannabis/CBD for pain.…
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ME/CFS: mostly in bed, now somewhat better but still housebound with LDN and supplements
Her ME/CFS began in 2004, after she came off thyroid hormone for radioactive iodine treatment for thyroid cancer. A January 2025 Covid infection caused a massive flare; she stopped working and spent about six months mostly in bed. Low-dose naltrexone eased…
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Housebound with ME/CFS, somewhat better with dysautonomia medication and power wheelchair
Fatigue began in her early 20s, after glandular fever at 16 and cancer treatment, and waxed and waned for over 20 years before she became much worse and had to stop work. Intensive physiotherapy left her in a wheelchair. Dysautonomia medication helped a…
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Bedbound after an ME/CFS relapse, now much better on RTHM protocol
They got ME/CFS at 18 after mono, were bedridden two years, then recovered over about three years to 85% for 17 years using thyroid hormone, rotating antibiotics, antifungals, antivirals, diet and EFT tapping. After Covid and a mouldy house in 2023 they…
The newest 20 people with ME/CFS who credit thyroid hormones.