Long COVID
Mild → near normalIll 4 years before improving or writingNeeds ongoing treatment
Long COVID brain fog and palpitations for two years, now nearly normal on levothyroxine
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 4 years
- Last post
- Oct 2026
In their words
- Condition: Long COVID
I've had these nervous system issues for almost 3 years, after my third bout with COVID
In context ↗ - At worst: Mild
Yeah I play hockey or go to the gym (or both) almost every day as long as I'm not having a bad flare up of symptoms.
In context ↗ - Now: Near normal
After a year on levo, I finally feel I can play hockey at pre-covid level again. I'm still dealing with other symptoms though, the worst being internal vibrations/tremors at night
In context ↗ - Began after: COVID
Some of my long term symptoms began after my third vax dose, and some after getting covid for the third time about a month later.
Read from 40 of their posts and comments; links to the 28 this page draws on
Summary
He fell ill in December 2022, within a day of his third Moderna booster, and worsened after a third COVID infection a month later. For two years he had palpitations, chest and abdominal pain, sinus mucus and brain fog. Levothyroxine for COVID-damaged hypothyroidism cleared almost all of it over about six months; by late 2025 he was playing hockey at pre-COVID level. Internal tremors and numbness remained, and he still has anhedonia dating from past SSRI use.
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What they tried
What they credit
Also tried
Retin A· HelpedAllegra· HelpedPepcid· HelpedWellbutrin· HelpedKlonopin / Clonazepam· Helpedtable salt· Helpedvibrating massage pillow· HelpedAleve· Helpedergonomic chair and stretches· HelpedGabapentin· Helpedmagnesium· HelpedCitrulline· HelpedAgmatine· Helpedmethylprednisolone· Helped · wore offelimination diets· No changeintermittent fasting· No changenicotine pouches· WorseCOVID vaccination as treatment· WorsePaxil (SSRI)· Much worse
Their words about each treatment
- Paxil (SSRI) · Much worse
I believe they permanently damaged me.
In context ↗ - Retin A · Helped
I'm experimenting using Retin A (prescribed for another reason) on the capillaries.
In context ↗ - Allegra · Helped
Taking Allegra daily has helped me a lot with this.
In context ↗ - Pepcid · Helped
antihistamines got rid of all the excess mucus and reflux. Allegra and pepcid.
In context ↗ - Wellbutrin · Helped
It worked decently for me mentally but gave me tinnitus so I had to quit.
In context ↗ - elimination diets · No change
I've done elimination diets to test.
In context ↗ - Klonopin / Clonazepam · Helped
It's the only thing that I've found that gets rid of my "internal vibrations / chest tremors" and allows me to sleep.
In context ↗ - intermittent fasting · No change
even on all liquids or doing IF, I still get pain attacks
In context ↗ - table salt · Helped
Put a bunch of regular table salt on it and then brush it gently with a toothbrush.
In context ↗ - levothyroxine / Synthroid · Helped a lot
all vanished within a couple months of starting levo
In context ↗ - vibrating massage pillow · Helped
I've resorted to sleeping with a vibrating massage pillow on my chest when they're bad.
In context ↗ - Aleve · Helped
ice or icy hot gel help, and Aleve but I try not to take that very often.
In context ↗ - ergonomic chair and stretches · Helped
buying a high end ergonomic chair for desk work ... and doing back and shoulder stretches
In context ↗ - Gabapentin · Helped
It has helped quite a bit.
In context ↗ - magnesium · Helped
magnesium is the only thing that seems to help with my resting tremors/internal vibrations.
In context ↗ - Citrulline · Helped
I have also had fewer palpitations and better circulation in fingers and toes since taking Citrulline and Agmatine.
In context ↗ - methylprednisolone · Helped
The other thing that really helped reduce symptoms temporarily was methylprednisolone.
In context ↗ - nicotine pouches · Worse
I tried nicotine pouches; only made things worse in the long run.
In context ↗ - COVID vaccination as treatment · Worse
Everything got worse for me after the moderna booster also, which was my third moderna shot
In context ↗
Approaches: Thyroid hormones
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2022-12 | Symptoms began within 24 hours of third Moderna boostermine started within 24hrs of the booster shot (my third vaccine dose, moderna)In context ↗ | Mild | |
| 2023-01 | Worse after third COVID infectionThen it got worse when I got COVID for the third time a month later.In context ↗ | Mild | |
| 2024 | Levothyroxine for damaged thyroid; symptoms gradually clearedThe good news is after about 6 months on medication for that, almost everything went back to normal.In context ↗ | Mild | Levothyroxine (Synthroid) |
| 2025-10 | Back to playing hockey at pre-COVID levelAfter a year on levo, I finally feel I can play hockey at pre-covid level again.In context ↗ | Near normal | Levothyroxine (Synthroid) |
| 2026-10 | Still has internal tremors at night and other residual symptomsIt's the only thing that I've found that gets rid of my "internal vibrations / chest tremors" and allows me to sleep.In context ↗ | Near normal |
Adverse events
- “Warning though: I learned the hard way to use Retin A only very sparingly” In context ↗ Side effects
- Paroxetine (Paxil)“Taking SSRIs permanently dampened my ability to feel happiness / pleasure. I was zombified while on it and never fully recovered after quitting” In context ↗ Mood or psychiatric effects
- Paroxetine (Paxil), Bupropion (Wellbutrin)“Horrible sexual side effects that can be permanent. Look up PSSD.” In context ↗ Side effects
- Bupropion (Wellbutrin)“It worked decently for me mentally but gave me tinnitus so I had to quit.” In context ↗ Side effects
- Gabapentin (Neurontin)“Only 100mg gives me headache and eye ache + blurry vision.” In context ↗ Side effects
- Nicotine pouches (Zyn)“I tried nicotine pouches; only made things worse in the long run.” In context ↗ Made symptoms worse
- COVID vaccination as treatment“Everything got worse for me after the moderna booster also, which was my third moderna shot” In context ↗ Made symptoms worse
- COVID vaccination as treatment“the third one felt like having COVID for several days and gave me chest pain for two months” In context ↗ Side effects
Symptoms mentioned
Anxiety & low moodBrain fogHeart symptoms & palpitationsMast cell (MCAS) & allergiesNeuropathy & tinglingPain & fibromyalgiaSleep problemsTemperature regulationVision problems
Their words about their symptoms
- Brain fog
My thoughts seem slower and also struggle to think of words and names.
In context ↗ - Mast cell (MCAS) & allergies
I'm pretty sure I developed histamine intolerance after COVID.
In context ↗ - Sleep problems
considering I've had 3 years of poor sleep
In context ↗ - Pain & fibromyalgia
I had nearly constant aching abdominal pain and sometimes aching testicles, as well as stabbing / stinging pains around my abdomen, legs, and even in my penis.
In context ↗ - Heart symptoms & palpitations
For the muscle twitches and heart palpitations, synthroid had gotten rid of those.
In context ↗ - Neuropathy & tingling
I still have neurological issues (internal vibrations/tremors when resting and limbs going numb)
In context ↗ - Anxiety & low mood
Anhedonia is killing me.
In context ↗ - Vision problems
I also had puffy eyes and blurry vision along with this pressure and aching.
In context ↗ - Temperature regulation
Weakened voice, heart palpitations, chest pains, fatigue, fluid retention, night sweats
In context ↗
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