Long COVID
Severe → no benefitIll for 10 monthsNeeds ongoing treatment
Bedridden with long COVID, still unwell with no improvement on propranolol
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill for
- 10 months
- Last post
- Oct 2023
In their words
- Condition: Long COVID
I finally got in after months to a long covid recovery program
In context ↗ - At worst: Severe
I started to have a variety of symptoms that have rendered me completely bedridden
In context ↗ - Now: No benefit
I'm at my wits end now because drs can't seem to figure it out.
In context ↗ - Began after: COVID
I got covid for the second time in december.
Summary
After a second, asymptomatic COVID infection in December 2022, Tern 11730's symptoms began in January 2023 and left them completely bedridden. They had POTS with PVCs, brain fog, vertigo, numbness and tingling, MCAS and new food intolerances, and episodes of tachycardia and anxiety. By October 2023 propranolol was the only drug keeping their resting heart rate under 100; they still felt unwell, with high CRP and no improvement.
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What they tried
Also tried
Their words about each treatment
- metoprolol / nebivolol / propranolol · Helped
Tried like 4 different BBs until I got to propranolol which is the only thing keeping my rhr below 100 without it going to the 40s.
In context ↗ - famotidine · Not said
also prescribed famotidine and ceterizine 20mg each for the allergies
In context ↗ - ativan · Not said
1mg of ativan whenever the panic attacks hit
In context ↗ - long covid recovery program · Not said
I finally got in after months to a long covid recovery program
In context ↗ - electrolytes · Helped
Electrolytes, diet, etc all kind of help but aren't fixing it.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| January 2023 | symptoms began after second COVID infection; completely bedriddenstarting in January I started to have a variety of symptoms that have rendered me completely bedriddenIn context ↗ | Severe |
| 2023-10-18 | still unwell; propranolol only keeps resting heart rate under 100propranolol which is the only thing keeping my rhr below 100 without it going to the 40s. Doesn't help anything else.In context ↗ | Not stated |
Adverse events
- Metoprolol (Lopressor, Toprol), Propranolol (Inderal)“trying various doses of metoprolol and them working TOO well (rhr was 44 at night on 25mg!)” In context ↗ Heart rhythm problems
Symptoms mentioned
Anxiety & low moodBrain fogHeart symptoms & palpitationsMast cell (MCAS) & allergiesNeuropathy & tinglingPOTS & dysautonomia
Their words about their symptoms
- POTS & dysautonomia
orthostatic intolerance, pvcs, tachy, bp all over the place
In context ↗ - Heart symptoms & palpitations
episodes of tachycardia & extreme anxiety
In context ↗ - Brain fog
the neurological cocktail of brain fog, vertigo, numbness, and pins&needles
In context ↗ - Neuropathy & tingling
numbness, and pins&needles
In context ↗ - Mast cell (MCAS) & allergies
bad allergies, new food intolerances
In context ↗ - Anxiety & low mood
extreme anxiety
In context ↗