ME/CFS
Moderate → no benefit
ME/CFS with neck tension headaches, pain and fatigue; gratitude journal tried
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- Not stated
- Last post
- Jun 2020
In their words
- Condition: ME/CFS
From what I know it’s quite common in CFS for severe pain and such to cause bad crashes.
In context ↗ - At worst: Moderate
managed to get to a good(Ish) place where I can do a few things help cook some meals
In context ↗ - Now: No benefit
then I’m struck down by a headache or throat infection and it feels I’ve gone straight back to the beginning over and over again
In context ↗
Summary
Writing in June 2020, Sparrow 35375 described cycles of getting to a better place where they could do a few things and help cook meals, then being struck down by headaches or throat infections and feeling back at the beginning. Neck tension headaches, pain and fatigue limited them, and they said they were generally not happy. A gratitude journal was helping their mood, and they felt trying to grow positivity helped their recovery.
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What they tried
Also tried
gratitude journal / growing positivity· Helpeddynamint muscle roll-on· HelpedYoga for neck pain videos (individual poses)· Helpedresting the neck / leaning back on cushions· Helpedcold showers· Helpedmeditations for pain and body scans (Pathways app)· Helpedheat packs· Helped
Their words about each treatment
- gratitude journal / growing positivity · Helped
I have recently started a gratitude journal ... Which is helping even though the fatigue and pain don’t allow me to physically write in every day
In context ↗ - dynamint muscle roll-on · Helped
I found a muscle roll-on called dynamint Very helpful it doesn’t last long
In context ↗ - Yoga for neck pain videos (individual poses) · Helped
Yoga for neck pain videos on YouTube ... are Great
In context ↗ - resting the neck / leaning back on cushions · Helped
Resting it as much as possible even if you’re doing other things
In context ↗ - cold showers · Helped
cold showers for at least 3 minutes are great for pain overall and I’ve found they help with brain fog
In context ↗ - meditations for pain and body scans (Pathways app) · Helped
meditations for pain and body scans. you can find some on YouTube but there’s also and app called pathways that’s all about pain management
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2020-06-05 | reached a better place, able to help cook meals and do a few thingsmanaged to get to a good(Ish) place where I can do a few things help cook some mealsIn context ↗ | Mild |
| 2020-06-05 | struck down by a headache or throat infection, felt back at the beginningthen I’m struck down by a headache or throat infection and it feels I’ve gone straight back to the beginning over and over againIn context ↗ | Moderate |
| 2020-06-06 | still limited by fatigue and pain; gratitude journal helping moodWhich is helping even though the fatigue and pain don’t allow me to physically write in every dayIn context ↗ | Moderate |
Symptoms mentioned
Anxiety & low moodBrain fogFlu-like symptomsHeadaches & migrainePain & fibromyalgiaPost-exertional malaise
Their words about their symptoms
- Post-exertional malaise
managed to get to a good(Ish) place where I can do a few things help cook some meals and then I’m struck down
In context ↗ - Headaches & migraine
I’m struck down by a headache
In context ↗ - Flu-like symptoms
I’m struck down by a headache or throat infection
In context ↗ - Pain & fibromyalgia
the fatigue and pain don’t allow me to physically write in every day
In context ↗ - Brain fog
I’ve found they help with brain fog
In context ↗ - Anxiety & low mood
Overall I would say I’m not happy
In context ↗