Miruvor
Sign up
Long COVID Moderate → somewhat betterIll 4 years before improving or writing

Long COVID with head pressure and cognitive slowing, somewhat better on isotretinoin

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving or writing
4 years
Last post
Dec 2024
In their words
  • Condition: Long COVIDless of the stalling I had with my long COVID self In context ↗
  • At worst: ModerateNow I can't even focus for 10 minutes, and it's destroying my life. The feeling is like when you dive underwater; everything gets slower, blurrier, and harder to process. I’m in a constant state like this. In context ↗
  • Now: Somewhat betterRight now, I’m still purging here and there, but fortunately, I’m progressing slowly. In context ↗
Read from 7 of their posts and comments; links to the 5 this page draws on

Request to remove this story

Summary

Zephyr 15535 fell ill in 2020 with pneumonia, then allergies, gut problems, head pressure, tinnitus, blurred vision and cognitive slowing; they date the worst decline to a first Pfizer mRNA dose. A 15-day water fast gave 60-70% relief and six months of ketosis a 30-40% baseline gain, but symptoms returned. Isotretinoin, started November 2024, brought slow partial improvement that plateaued after two weeks; after a dose increase they report slow ongoing progress.

Ask Miruvor AI

Asking aboutZephyr 15535’s story

What they tried

Also tried

15-day water fast· Helped a lot · wore offantibiotics· Helped · wore offImmunace vitamins / multivitamin· HelpedPiracetam· Helpedsteroid-antibiotic eye drops· Helpedlow-dose isotretinoin· Helpedless acidic yogurt· Helpedhigh protein calorie deficit diet· Helpedmelissa tea· Helpedheat compress· No changemethylphenidate· WorseWellbutrin· Worseenergy drinks and coffee· Worsepainkillers and muscle relaxers· Worseallergy medications / allergy pills· Not saidinhalers· Not saidcomplex pre workout· Not saidcomplex protein powder· Not saidFolik acid· Not said
Their words about each treatment
  • allergy medications / allergy pills · Not saidI was prescribed different allergy medications and inhalers (including disc-type ones), which I used as prescribed. ... At night time I got prescribed allergy pills for dust allergy lately, so it makes me a bit sleepy.
  • inhalers · Not saidinhalers (including disc-type ones), which I used as prescribed In context ↗
  • antibiotics · Helpedmore antibiotics and inhaler prescriptions. Once again, COVID tests were negative, but I saw some temporary improvement. In context ↗
  • daily exercise · HelpedI was exercising intensely, pushing myself daily ... started exercising daily ... The lower I go the better I feel somehow.
  • 15-day water fast · Helped a lotstarting with a 15-day water fast. During the fast, all my symptoms disappeared. In context ↗
  • strict ketosis · Helpedsix months of strict ketosis: no sugar, alcohol, energy drinks, coffee, salt, fried food, or oil ... Ketosis improved my baseline significantly (30–40% improvement) In context ↗
  • methylphenidate · WorseMethylphenidate, once effective for my ADHD with no side effects, now triggers severe side effects like heart pain, blurred vision, shaky hands, and stomach cramps. In context ↗
  • Wellbutrin · WorseWellbutrin caused a severe panic attack for the first time in my life during an important event In context ↗
  • Immunace vitamins / multivitamin · HelpedImmunace vitamins help slightly (5–7%), depending on deficiencies. ... Taking a multivitamin to cover any deficiencies.
  • energy drinks and coffee · Worseenergy drinks and coffee initially helped clear my mind but worsened my stomach over time In context ↗
  • painkillers and muscle relaxers · Worsepainkillers and muscle relaxers were beneficial at first but led to worsening issues In context ↗
  • Piracetam · HelpedPiracetam helped memory In context ↗
  • lion’s mane · Helpedother supplements like lion’s mane, ginseng, gingko, bromelain, and L-tyrosine offered small gains (5–7%) In context ↗
  • steroid-antibiotic eye drops · HelpedSteroid antibiotic drops are not helping. ... I gave steroid eye drops another shot, and this time, they’re working
  • heat compress · No changeHeat compress doesn't work. In context ↗
  • low-dose isotretinoin · HelpedI’ve been on low-dose isotretinoin (20mg/day) for 11 days now, and I’ve started to notice slow but consistent improvements. In context ↗
  • less acidic yogurt · HelpedIntroduced a less acidic yogurt before starting isotretinoin ... now I feel better when I eat it. In context ↗
  • high protein calorie deficit diet · HelpedHigh protein calorie deficit diet along with daily exercise to lose/ kick toxic waste/fat/spike protein out of my body. In context ↗
  • complex pre workout · Not saidConsuming complex pre workout which contains a high amount of L-citrulline In context ↗
  • complex protein powder · Not saidConsuming complex protein powder which contains a high amount of creatine to heal and grow. In context ↗
  • Folik acid · Not saidIsotretinoin + Folik acid to heal skin/muscle/organ tissue and to lower gut bacteria In context ↗
  • melissa tea · HelpedUsually a melissa tea calms me down so I can suggest that In context ↗

Approaches: Amino acids and carnitine · Diet · Exercise and activity · Supplements

Their path

What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedAfter
2020pneumonia and pleural effusion while freelancing from homeI unexpectedly developed serious lung issues. In context ↗
half a year later (2020)acute illness subsided but developed allergen sensitivity and returning coughHalf a year later, the acute illness subsided, but I developed an extreme sensitivity to allergens like pollen and dust. In context ↗
2022cough worsened; antibiotics gave temporary improvementOnce again, COVID tests were negative, but I saw some temporary improvement. In context ↗Antibiotics (unspecified)
after 2022 (undated)decline after first Pfizer mRNA dose: bloating, cramps, twitches, cognitive declineThings began to unravel after I took the Pfizer mRNA shot, receiving only the first dose. In context ↗
undated15-day water fast; all symptoms disappeared (60-70% relief)During the fast, all my symptoms disappeared. In context ↗Extended water fasting (3+ days)
undated (before end of 2023)six months of strict ketosis, 30-40% better baselineKetosis improved my baseline significantly In context ↗Keto and low-carb diets
end of 2023symptoms gradually returned and speech comprehension failedbut the symptoms gradually returned In context ↗
2024small bowel infection cleared by medication, bowel habit normalisedmedication cleared the infection, and my restroom habits returned to once a day. In context ↗
2024-11-15slow improvement on low-dose isotretinoin (head pressure eased, mind clearer, skin and gut better)After day 2, I began feeling slightly better. In context ↗
2024-12-21isotretinoin effect plateaued, dose raised, daily exercise, slow progressprogressing slowly In context ↗

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Brain fogCognitive issues: declining attention span, quick disinterest in complex tasks. In context ↗
  • Mast cell (MCAS) & allergiesI developed an extreme sensitivity to allergens like pollen and dust In context ↗
  • Pain & fibromyalgiajoint pain (especially in the shoulders) In context ↗
  • Headaches & migrainePersistent neck and head pressure In context ↗
  • Heart symptoms & palpitationsrandom heart racing during sleep, and sudden chest stinging In context ↗
  • Anxiety & low moodloss of ambition and pleasure In context ↗
  • Tinnitusconstant tinnitus In context ↗
  • Vision problemsoccasional blurry vision, temporary shaky vision In context ↗

Ask Miruvor AI

Asking aboutZephyr 15535’s story

Similar stories

  • Long COVID with brain fog, almost back to normal after supplements and running

    Near normal Zephyr 58311 Long COVID Mild at worstIll 9 months before improving or writing reddit.com Jan 2025

    Zephyr 58311, 35, in Ireland, fell ill with long COVID in late 2023 with panic attacks, palpitations, breathlessness, dizziness, brain fog, anxiety and later tinnitus. Over three months of supplements, low-carb eating, fasting, running 4 km three times…

  • Bed and housebound with ME/CFS, now much better with pacing and supplements

    Much better Heron 46119 ME/CFS Severe at worstIll 20 years before improving or writing reddit.com Sep 2026

    Ill about 20 years, first labelled fibromyalgia then long COVID in 2020; at worst mainly bed and housebound with pain, malaise and brain fog. They credit ribose, nattokinase, boswellia serrata, creatine and other supplements, with pacing, for a large…

  • Long COVID at 30% functioning for a year, now recovered after keto and tinctures

    Recovered Comet 98520 Long COVID Moderate at worstIll 1 year before improving or writing reddit.com Dec 2024

    A person with long COVID was ill for about a year, around 30% functioning and doing a lot of working from bed. A keto diet lifted them from 30% to 60%, supplements, rest and IV vitamin C carried them to 80%, and herbal tinctures took them to 100% within a…

  • Housebound and often bedbound with long COVID, now much better on guanfacine with NAC

    Much better Maple 66690 Long COVID Severe at worstIll 3.5 years before improving or writing reddit.com Oct 2026

    Maple 66690, a woman in her late 60s, fell ill with covid in March 2020 and became housebound and often bedbound over the past year with severe neurological and gut symptoms. Near-infrared light, guanfacine with NAC, and valacyclovir each helped; by late…

A little hope, every Sunday

New recovery stories and data-driven research on ME/CFS and long COVID. Ideas worth considering, and the evidence behind them.

Free · Unsubscribe anytime