ME/CFS
Severe → no benefitIll for 8 years
Bedridden for eight years with ME/CFS, no improvement from many treatments
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- 8 years
- Last post
- Jun 2014
In their words
- Condition: ME/CFS
I have been suspecting it's been chronic fatigue for a while
In context ↗ - At worst: Severe
this has caused me to be stagnant and bedridden for 8 years
In context ↗ - Now: No benefit
I've exhausted a lot of options, but this underlying issue is extremely stubborn
In context ↗ - Began after: nothing they could name
I think the cognitive thing goes way back, though, to when I was a kid.
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A person bedridden and stagnant for eight years with an undiagnosed illness they suspected might be chronic fatigue. Constant severe head pressure and cognitive problems dominated; muscles were tender and weak, sleep never refreshed and standing made them light-headed. Many medications for depression, anxiety and schizophrenia, acupuncture, therapy, alternative medicine and lifestyle changes brought nothing, and one drug left a permanent side effect. They reported no improvement.
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What they tried
Also tried
acupuncture· No changetherapy· No changealternative medicine· No changelifestyle changes· No changenumerous medications· Worse
Their words about each treatment
- numerous medications · Worse
I've accordingly taken numerous medications, but none of them assisted my issue, one even producing a permanent side effect.
In context ↗ - acupuncture · No change
I then pursued other avenues like acupuncture, therapy, alternative medicine, and lifestyle changes, but they never produced anything positive.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| childhood | cognitive symptoms from childhoodI think the cognitive thing goes way back, though, to when I was a kid.In context ↗ | Not stated |
| 2014-06-08 | bedridden and stagnant for eight years, undiagnosedthis has caused me to be stagnant and bedridden for 8 yearsIn context ↗ | Severe |
Adverse events
- “I've accordingly taken numerous medications, but none of them assisted my issue, one even producing a permanent side effect.” In context ↗ Side effects
Symptoms mentioned
Anxiety & low moodBrain fogFlu-like symptomsHeadaches & migraineMuscle weaknessPOTS & dysautonomiaPain & fibromyalgiaSleep problems
Their words about their symptoms
- Brain fog
Apparently people call this mental fog
In context ↗ - Headaches & migraine
I have a severe pressure in my head 24/7 with no relief
In context ↗ - Pain & fibromyalgia
All of my muscles are tender and achy
In context ↗ - Muscle weakness
they feel weak and ill like I'm suffering a flu
In context ↗ - Sleep problems
I always feel like I haven't slept for days, and I could literally sleep for more than two at a time
In context ↗ - POTS & dysautonomia
When I stand up I always feel light-headed, and I need to sit down right away
In context ↗ - Anxiety & low mood
I believe the depression and anxiety I have is secondary
In context ↗