Long COVID
Severe → no benefitIll for 18 months
Winded after a few steps from bed to bathroom with long COVID, no improvement
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill for
- 18 months
- Last post
- Apr 2024
In their words
- Condition: Long COVID
I started to think it was long Covid related
In context ↗ - At worst: Severe
I can no longer drive and I get winded walking a few steps from bed to the bathroom.
In context ↗ - Now: No benefit
a SHARP increase in the severity of my dysautonomia symptoms that still has not gone away
In context ↗ - Began after: COVID
I got Covid in October 2022. It was a super mild infection.
In context ↗
Read from 10 of their posts and comments; links to the 8 this page draws on
Summary
After a mild COVID infection in October 2022 she lost her stamina, and in March 2023 her stable psychiatric medication stopped working overnight and her libido vanished. Vomiting began in May 2023 and dysautonomia over that summer; flu in February 2024 left her unable to drive and winded walking a few steps from bed to the bathroom. She remained that ill in April 2024, without a specific dysautonomia diagnosis and pursuing non-medication options such as ketamine or TMS.
Ask Miruvor AI
What they tried
Also tried
Their words about each treatment
- stable cocktail of psych meds (antidepressant, mood stabilizer, etc) · Helped
I was on a stable cocktail of psych meds (antidepressant, mood stabilizer, etc) that stopped working overnight and no adjustments worked any better.
In context ↗ - Abilify · Helped
Abilify really helped me when I got injured and couldn't rely on exercise to self regulate!
In context ↗ - cannabis · Worse
it was working very well for me for a while but then it stopped... and then it made me feel worse
In context ↗ - psylocibin · No change
I have never gotten much out of psylocibin
In context ↗ - LDN · Not said
I have been hitching my wagon to the LDN star but I'll see what I can find out about the other meds you recommended.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| October 2022 | mild COVID infection; stamina and lung capacity lostI got Covid in October 2022. It was a super mild infection.In context ↗ | Mild |
| March 2023 | psych meds stopped working and libido vanishedIn March 2023 my stable cocktail of psych meds stopped working pretty much overnight and my (consistently high) libido vanished.In context ↗ | Mild |
| May 2023 | began vomiting repeatedlyIn May 2023 I started puking up to multiple times a day, rarely going more than a week without vomiting.In context ↗ | Mild |
| summer 2023 | dysautonomia symptoms beganOver the summer of 2023 I start experiencing dysautonomia symptoms which I chalked up to being out of shapeIn context ↗ | Mild |
| February 2024 | flu brought debilitating fatigue, lightheadedness and far worse dysautonomia; can no longer driveI can no longer drive and I get winded walking a few steps from bed to the bathroom.In context ↗ | Severe |
| April 2024 | still as ill, dysautonomia not gone, stomach issuesa SHARP increase in the severity of my dysautonomia symptoms that still has not gone awayIn context ↗ | Severe |
Adverse events
- Cannabis (THC, marijuana)“I tried an edible to sleep. That was A MISTAKE because being actually high on top of the lightheaded high feeling was pretty awful.” In context ↗ Made symptoms worse
- Cannabis (THC, marijuana)“Yeah it was working very well for me for a while but then it stopped... and then it made me feel worse.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
a SHARP increase in the severity of my dysautonomia symptoms that still has not gone away
In context ↗ - Gut problems
In May 2023 I started puking up to multiple times a day, rarely going more than a week without vomiting.
In context ↗ - Breathlessness
I get winded walking a few steps from bed to the bathroom.
In context ↗ - Anxiety & low mood
No improvement in either mental health or libido.
In context ↗ - Pain & fibromyalgia
at one point it was super helpful for my mood issues and pain
In context ↗