Long COVID with palpitations and POTS much better on beta blocker and water/LMNT
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 5.5 years
- Last post
- May 2026
In their words
- Condition: Long COVID
It’s just this week I’m starting to think it’s all COVID related.
In context ↗ - At worst: Severe
couldnt get through a shower anymore
In context ↗ - Now: Much better
But things are really improving again!
In context ↗ - Began after: COVID
It’s just this week I’m starting to think it’s all COVID related.
In context ↗
Summary
A 29-year-old ill with long COVID from about 2021 still had palpitations, chest pain, tingling, numbness and muscle twitching two years later, with cardiomyopathy and later POTS. After a low point when they could not get through a shower, a beta blocker plus 100oz of water and LMNT daily reduced many symptoms; by May 2026 twitching was down to several a week.
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What they tried
Also tried
Their words about each treatment
- beta blocker · Helped
I believe they are less because of the beta blocker im on due to the cardiomyopathy
In context ↗ - drinking 100oz of water a day along with 1 packet of LMNT · Helped
drinking 100oz of water a day along with 1 packet of LMNT has reduced a lot of my symptoms
In context ↗
Approaches: POTS medication
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 5.2 years after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2021 | long COVID beganI feel like I’ve missed the last two years of my life and it’s heartbreaking.In context ↗ | Not stated | |
| March 2026 | low point before POTS was diagnosed, too ill to showerI was feeling hopeless again, couldnt get through a shower anymore etc.In context ↗ | Severe | |
| 2026-05-13 | improving on POTS fluids, salt and a beta blockerBut things are really improving again! Unfortunately it has been a roller-coaster that I am still riding.In context ↗ | Mild | Salt, electrolytes and fluids |
Adverse events
- “Had another doctor find precancerous polyp in my intestines and after removal I went home and woke up bleeding a ton and almost bled to death needing a few transfusions” In context ↗ Other
Symptoms mentioned
Their words about their symptoms
- Neuropathy & tingling
Tingling and numbness, that’s going away, or a lot less often at least.
In context ↗ - Heart symptoms & palpitations
the numbness and tingles usually came with severe heart palps and chest pain
In context ↗ - POTS & dysautonomia
I was also diagnosed with POTS
In context ↗ - Pain & fibromyalgia
My thigh muscles were sore for a few days
In context ↗ - Anxiety & low mood
I was feeling hopeless again
In context ↗
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