ME/CFS
Severe → no benefit
On the couch with ME/CFS, fogged and pained, no benefit from gentle yoga and rest
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- Not stated
- Last post
- Jun 2026
In their words
- Condition: ME/CFS
I'm sliding back into severe and it's been hard to keep the hope up.
In context ↗ - At worst: Severe
I'm lucky to be able to live on the couch, walk to the bathroom on my own.
In context ↗ - Now: No benefit
I'm sliding back into severe and it's been hard to keep the hope up.
In context ↗
Read from 11 of their posts and comments; links to the 9 this page draws on
Summary
A Reddit user with ME/CFS spent a rough period in August 2022 largely on the couch, able to walk to the bathroom but too fogged and pained to play games for long. They credited gentle yoga, meditation and structured rest with helping them manage. By October 2022 they were sliding back into severe and struggling to keep hope; a 2026 post only thanked someone for calm videos.
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What they tried
Also tried
pain cream· Helpedibuprofen· Helpedstructured rest and energy budgeting· Helpedyoga· Helpedmeditation· Helpedmedical marijuana· Helpedmeal replacement shakes (Soylent, Huel)· Not saidfasting· Not saidvarious diets· Not said
Their words about each treatment
- pain cream · Helped
Putting the pain cream on or taking ibuprofen.
In context ↗ - ibuprofen · Helped
Ibuprofen is going to barely touch the pain, but even a tiny bit of relief is *something*.
In context ↗ - structured rest and energy budgeting · Helped
Structured rest. You should allow yourself rest before you're forced to rest.
In context ↗ - yoga · Helped
Yoga(as much as everyone hates the suggestion) has been instrumental.
In context ↗ - meditation · Helped
Meditation has also been helpful, though I don't do it enough.
In context ↗ - medical marijuana · Helped
But it covers the pain, or sometime it just helps me cope.
In context ↗ - meal replacement shakes (Soylent, Huel) · Not said
I am a huge fan of meal replacement shakes though. Especially total nutrition ones like Soylent or huel.
In context ↗ - fasting · Not said
So I do lot of fasting and I experimented with a ton of different diets in the past year.
In context ↗ - various diets · Not said
I experimented with a ton of different diets in the past year.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 2 steps say too little to place on the scale and are only in the table. The line stops at their last step that can be placed; how they are now is in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| — | living with ME/CFS, onset not datedI've been too sick to have friends that could have introduced meIn context ↗ | Not stated | |
| August 2022 | a particularly rough period, largely living on the couchI'm lucky to be able to live on the couch, walk to the bathroom on my own.In context ↗ | Severe | |
| September 2022 | portioning energy between tasks, improvement work and restBalancing out how I spend my days in this way has gone a huge way towards making me feel better about life despite my current limitationsIn context ↗ | Moderate | Pacing and the energy envelope |
| October 2022 | sliding back into severeI'm sliding back into severe and it's been hard to keep the hope up.In context ↗ | Severe | |
| June 2026 | still watching calm videosThese videos have been such a balmIn context ↗ | Not stated |
Adverse events
- Cannabis (THC, marijuana)“there's always negative effects I don't want. Like I genuinely hate being so stoned I can't think” In context ↗ Side effects
- Cannabis (THC, marijuana)“Medical marijuana is so freaking strong I usually end up more stoned than I want to be and lose any ability to self regulate or properly assess how I'm doing.” In context ↗ Side effects
Symptoms mentioned
Anxiety & low moodBrain fogLight & noise sensitivityMuscle weaknessPain & fibromyalgiaPost-exertional malaiseSleep problems
Their words about their symptoms
- Post-exertional malaise
reduce the crashes
In context ↗ - Brain fog
I can't even play my usual games as distraction for long because of the brain fog
In context ↗ - Pain & fibromyalgia
my back is on fire
In context ↗ - Anxiety & low mood
as someone who also deals with mental health it does make a difference
In context ↗ - Sleep problems
If I can't sleep I still make myself lay still for 30-60min periods
In context ↗ - Light & noise sensitivity
I'm so overstimulated from my symptoms
In context ↗ - Muscle weakness
if my legs don't work I can still access common things I might need
In context ↗