Barely able to leave bed with long COVID, somewhat better after Zyrtec and low stress
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 3 months
- Last post
- Mar 2024
In their words
- Condition: Long COVID
My GP ran all the tests which came normal and diagnosed me with post covid syndrome.
In context ↗ - At worst: Severe
now I can hardly leave the bed ... now I can barely walk up the stairs
In context ↗ - Now: Somewhat better
while many of my earlier LC symptoms have gotten better this one seems to have gotten worse
In context ↗ - Began after: COVID
My whole family and I tested positive about 2 months ago
Read from 4 of their posts and comments; links to the 4 this page draws on
Summary
A healthy 21-year-old weightlifter caught COVID around December 2023; two PEM crashes in his first fortnight led to short-term disability and left him barely able to leave bed, with insomnia, palpitations, tingling and a burning neck. Tests were normal; his GP diagnosed post-COVID syndrome. By three months many early symptoms had eased, but severe neck pain worsened, causing dizziness and some insomnia, and Zyrtec seemingly cleared most of his doom sensations, along with a low-stress environment.
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What they tried
Their words about each treatment
- ibuprofen · Helped
Now im just taking ibuprofen as needed for symptoms, but even that isnt working as well anymore.
In context ↗ - Zyrtec · Helped
Zyrtec seemingly got rid of 90% of my doom sensations along with low stress environment.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| December 2023 | COVID-19 infection; whole family positive, only he stayed illMy whole family and I tested positive about 2 months ago, while they all recovered I still havent.In context ↗ | Moderate |
| February 2024 | two PEM crashes after trying to keep working; bedbound, on short-term disabilityI foolishly tried to keep working initially, but was hit with two full on PEM crashes in the first 2 weeks of being sick.In context ↗ | Severe |
| March 2024 | many symptoms slowly easing by three monthsYep 3 months here, but its slowly gotten better.In context ↗ | Moderate |
| 2024-03-20 | earlier symptoms better but severe neck pain, dizziness and insomnia worsewhile many of my earlier LC symptoms have gotten better this one seems to have gotten worseIn context ↗ | Moderate |
Adverse events
- Cetirizine (Zyrtec)“I wish I could try Zyrtec but I had an allergic reaction to it 4 years ago.” In context ↗ Allergic reaction / anaphylaxis
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
was hit with two full on PEM crashes in the first 2 weeks of being sick
In context ↗ - Sleep problems
terrible insomnia ... causing some insomnia
- POTS & dysautonomia
pots like symptoms ... causing dizziness
- Heart symptoms & palpitations
crazy heart palps
In context ↗ - Neuropathy & tingling
random numbness and tingling
In context ↗ - Headaches & migraine
burning neck and headache which is super painful
In context ↗ - Pain & fibromyalgia
severe throbbin/inflammation running up the back of my neck
In context ↗ - Muscle weakness
my limbs feel filled with concrete
In context ↗ - Anxiety & low mood
Zyrtec seemingly got rid of 90% of my doom sensations
In context ↗