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Long COVID Severe → somewhat betterIll 3 months before improving or writing

Barely able to leave bed with long COVID, somewhat better after Zyrtec and low stress

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill before improving or writing
3 months
Last post
Mar 2024
In their words
  • Condition: Long COVIDMy GP ran all the tests which came normal and diagnosed me with post covid syndrome. In context ↗
  • At worst: Severenow I can hardly leave the bed ... now I can barely walk up the stairs In context ↗
  • Now: Somewhat betterwhile many of my earlier LC symptoms have gotten better this one seems to have gotten worse In context ↗
  • Began after: COVIDMy whole family and I tested positive about 2 months ago
Read from 4 of their posts and comments; links to the 4 this page draws on

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Summary

A healthy 21-year-old weightlifter caught COVID around December 2023; two PEM crashes in his first fortnight led to short-term disability and left him barely able to leave bed, with insomnia, palpitations, tingling and a burning neck. Tests were normal; his GP diagnosed post-COVID syndrome. By three months many early symptoms had eased, but severe neck pain worsened, causing dizziness and some insomnia, and Zyrtec seemingly cleared most of his doom sensations, along with a low-stress environment.

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What they tried

Their words about each treatment
  • ibuprofen · HelpedNow im just taking ibuprofen as needed for symptoms, but even that isnt working as well anymore. In context ↗
  • Zyrtec · HelpedZyrtec seemingly got rid of 90% of my doom sensations along with low stress environment. In context ↗

Their path

Very severeSevereModerateMildNear normalRecoveredonset3 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
December 2023COVID-19 infection; whole family positive, only he stayed illMy whole family and I tested positive about 2 months ago, while they all recovered I still havent. In context ↗Moderate
February 2024two PEM crashes after trying to keep working; bedbound, on short-term disabilityI foolishly tried to keep working initially, but was hit with two full on PEM crashes in the first 2 weeks of being sick. In context ↗Severe
March 2024many symptoms slowly easing by three monthsYep 3 months here, but its slowly gotten better. In context ↗Moderate
2024-03-20earlier symptoms better but severe neck pain, dizziness and insomnia worsewhile many of my earlier LC symptoms have gotten better this one seems to have gotten worse In context ↗Moderate

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaisewas hit with two full on PEM crashes in the first 2 weeks of being sick In context ↗
  • Sleep problemsterrible insomnia ... causing some insomnia
  • POTS & dysautonomiapots like symptoms ... causing dizziness
  • Heart symptoms & palpitationscrazy heart palps In context ↗
  • Neuropathy & tinglingrandom numbness and tingling In context ↗
  • Headaches & migraineburning neck and headache which is super painful In context ↗
  • Pain & fibromyalgiasevere throbbin/inflammation running up the back of my neck In context ↗
  • Muscle weaknessmy limbs feel filled with concrete In context ↗
  • Anxiety & low moodZyrtec seemingly got rid of 90% of my doom sensations In context ↗

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