Long COVID with constant air hunger, now somewhat better but not recovered
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 5 months
- Last post
- Mar 2022
In their words
- Condition: Long COVID
I’ve had shortness of breath at rest for 5 months now since Covid December 2020.
In context ↗ - At worst: Moderate
Almost 5 months of this 24/7, it makes it really hard to get through every day
In context ↗ - Now: Somewhat better
Better yes, recovered no
In context ↗ - Began after: COVID
5 months now since Covid December 2020
In context ↗
Read from 13 of their posts and comments; links to the 11 this page draws on
Summary
This user caught COVID in December 2020 and developed long COVID with 24/7 air hunger at rest, daily headaches for about two weeks early on, palpitations for the first two months, a drunk or high feeling and suicidal distress; they could still walk 30 minutes. Steroid and rescue inhalers and Pepcid gave no relief. The air hunger improved significantly in early May 2021, but a week later they said only a little better overall, and by March 2022 they reported being better but not recovered.
Ask Miruvor AI
What they tried
Their words about each treatment
- Steroid inhaler · No change
steroid inhaler/ rescue do nothing to help
In context ↗ - Pepcid · No change
Yes have been on Pepcid for a while now, not much help.
In context ↗ - Niacin · Not said
I took it knowing the side effects and even then it scared me how I reacted haha
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 4 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| December 2020 | COVID-19 infection, followed by long COVID symptoms5 months now since Covid December 2020In context ↗ | Not stated |
| 2021-04-14 | 24/7 air hunger at rest, suicidal, six ER visitsI had periods of time where I basically wanted to die with almost every breath I took due to the torture.In context ↗ | Moderate |
| 2021-05-02 | air hunger eased so they no longer felt they were suffocatingmine has actually improved significantly over the last weekIn context ↗ | Moderate |
| 2022-03-06 | better but not recoveredBetter yes, recovered noIn context ↗ | Mild |
Adverse events
- Niacin (vitamin B3)“Niancin flush for sure almost. I took it knowing the side effects and even then it scared me how I reacted haha” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Breathlessness
I’ve been having 24/7 shortness of breath ( air hunger) at rest for 4 months now since Covid
In context ↗ - Brain fog
I feel like I’m high/drunk all the time.
In context ↗ - Headaches & migraine
I had head pressure and headaches every day for about 2 weeks
In context ↗ - Heart symptoms & palpitations
I had heart palpitations for the first two months but they’re gone now.
In context ↗ - Anxiety & low mood
I’m literally suicidal to a point because every second I’m awake is pure torture due to this
In context ↗