ME/CFS
Mild → no benefitIll for 18 months
Worsening fatigue and PEM for a year, still ill and crashing, nothing helped
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- 18 months
- Last post
- Nov 2025
In their words
- Condition: ME/CFS
I’ve got ME/CFS
In context ↗ - At worst: Mild
Overdid it with my personal trainer who’s helping me stay even a little bit active during this time
In context ↗ - Now: No benefit
I've had chronic fatigue for about a year and it's just gotten worse and worse ... am crashing extra hard this week
- Began after: another virus
the wellness gurus were right about what was causing my symptoms (viral)
Read from 8 of their posts and comments; links to the 5 this page draws on
Summary
A person with chronic fatigue for about a year that kept worsening after pericarditis in January 2025, plus chronic pain, anxiety, spasms and PEM. Journaling, EMDR, tapping, the Curable app, qigong, yoga, meditation and the Medical Medium protocol brought no relief. Overexertion with poor sleep led to crashes, and they were still ill and crashing extra hard after starting famciclovir for high HHV6 at the last post.
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What they tried
Also tried
journaling· No changeEMDR· No changeEFT Tapping· No changeCurable app· No changeqigong· No changeyoga· No changeEden Energy Medicine· No changemeditation· No changeMedical Medium protocol· No changepersonal trainer· Worsefamciclovir· Worsecalming tea (tulsi/lemon balm)· Not saidcalming tea (tulsi/lemon balm)· Not said
Their words about each treatment
- journaling · No change
I've tried journaling, EMDR, EFT Tapping, the Curable app, qigong, yoga, Eden Energy Medicine, meditation, and nothing has helped me.
In context ↗ - Medical Medium protocol · No change
I’m like 4 months in to trying the protocol cause I’m desperate and can’t say it’s helped at all so far
In context ↗ - personal trainer · Worse
Overdid it with my personal trainer who’s helping me stay even a little bit active during this time
In context ↗ - calming tea (tulsi/lemon balm) · Not said
I’ve been resting with my legs elevated and drinking calming tea (tulsi/ lemon balm), and my HR is coming down
In context ↗ - famciclovir · Worse
Started famciclovir to treat high HHV6 levels last week and am crashing extra hard this week.
In context ↗
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| onset | chronic fatigue began and worsened over the following yearI've had chronic fatigue for about a year and it's just gotten worse and worse.In context ↗ |
| January 2025 | pericarditis, energy never returned to the previous levelI also had pericarditis and January and getting even the amount of energy I had before has been so farIn context ↗ |
| 2025-06-30 | worsening; at the end of their rope after nothing helpedI am at the end of my rope, friends.In context ↗ |
| 2025-10-09 | crashed after overdoing it with a personal trainer and a broken night's sleepthe PEM is very scary, my body is twitching and jerking and shaking and I just feel awfulIn context ↗ |
| 2025-11-26 | heart rate spike and deep chest ache after days of packing and cleaning and a late nightI’ve got ME/CFS and just had a few days of packing/cleaning, plus a really late night of sleep.In context ↗ |
| 2025-11-30 | crashing extra hard after starting famciclovir for high HHV6Started famciclovir to treat high HHV6 levels last week and am crashing extra hard this week.In context ↗ |
Adverse events
- Famvir / famciclovir (Pridgen)“Started famciclovir to treat high HHV6 levels last week and am crashing extra hard this week.” In context ↗ Made symptoms worse
Symptoms mentioned
Anxiety & low moodBreathlessnessFlu-like symptomsHeart symptoms & palpitationsPOTS & dysautonomiaPain & fibromyalgiaPost-exertional malaiseSleep problems
Their words about their symptoms
- Post-exertional malaise
the PEM is very scary
In context ↗ - Sleep problems
woke up at 3 and couldn’t go back to sleep
In context ↗ - Heart symptoms & palpitations
Deep chest ache that radiated around my rib cage and up my neck
In context ↗ - POTS & dysautonomia
Jumped to 112 after standing
In context ↗ - Breathlessness
Some mild shortness of breath, but nothing extreme
In context ↗ - Flu-like symptoms
Now I feel like I have the flu.
In context ↗