Long COVID with breathlessness and burning lungs, now nearly back to normal on inhalers
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 4 months
- Last post
- Oct 2023
In their words
- Condition: Long COVID
my only long covid symptoms are short of breath and minor circulation issues in my legs
In context ↗ - At worst: Mild
My lungs hurt. They burn. I can barely sleep.
In context ↗ - Now: Near normal
Yep! I am feeling loads better. I have been on like a long term inhaler, and using my rescue inhaler when needed.
In context ↗ - Began after: COVID
We think its a combo platter of Post Covid inflammation and my Allergies messing with my Asthma.
In context ↗
Read from 14 of their posts and comments; links to the 10 this page draws on
Summary
A long-COVID patient who posted from October 2022, they described shortness of breath, burning lungs, aching calves, minor brain fog, panic attacks and trouble sleeping. Two rounds of prednisone plus a twice-daily inhaler left them pretty much better by January 2023, with random flares eased by a rescue inhaler. By October 2023 they felt loads better on a long-term inhaler and said it had also just improved over time.
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What they tried
What they credit
Also tried
Their words about each treatment
- Zyrtec · Helped
if I take my Zyrtec and Mucinex, as well as an inhaler, that seems to help
In context ↗ - inhaler · Helped a lot
After two rounds of prednisone and a 2 times a day inhaler for a few weeks, im pretty much better.
In context ↗ - Prednisone · Helped a lot
My lungs dont burn like they did before I started prednisone, but we wil see.
In context ↗ - nebulizer with meds · Worse
i had a reaction to it with a higher heart rate and more shortness of breath
In context ↗ - compression socks · Helped
Its gone after compression socks
In context ↗ - Magnesium pills · Helped
Magnesium pills and compression socks help!
In context ↗ - dayquil · Not said
I just take some dayquil and rest. Goes away after a nap.
In context ↗ - rescue inhaler · Helped
I get random flares here and there, but my rescue inhaler for my asthma helps.
In context ↗
Approaches: Other drugs and medicines
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| September 2022 | Long-COVID breathing and lung symptoms begin; lungs burning, sleepless, panic attacksMy lungs hurt. They burn. I can barely sleep.In context ↗ | Mild | |
| 2022-10-05 | Slept and felt a bit better after prednisone, inhaler and nebuliserI finally slept last night and woke up feeling a bit better todayIn context ↗ | Mild | Corticosteroid pulses |
| 2022-11-02 | Symptoms that had gone came backIts gone away, but it just came back a day or so ago.In context ↗ | Mild | |
| 2023-01-01 | Pretty much better after two rounds of prednisone and twice-daily inhalerAfter two rounds of prednisone and a 2 times a day inhaler for a few weeks, im pretty much better.In context ↗ | Near normal | Corticosteroid pulses |
| 2023-10-01 | Feeling loads better on a long-term inhaler plus rescue inhaler; improved over timeYep! I am feeling loads better. I have been on like a long term inhaler, and using my rescue inhaler when needed.In context ↗ | Near normal |
Adverse events
- “I have a nebulizer but i had a reaction to it with a higher heart rate and more shortness of breath.” In context ↗ Heart rhythm problems
Symptoms mentioned
Their words about their symptoms
- Breathlessness
my only long covid symptoms are short of breath and minor circulation issues in my legs
In context ↗ - Brain fog
I still get some minor brain fog
In context ↗ - POTS & dysautonomia
I do also get some dizzy spells and a headache now and then.
In context ↗ - Sleep problems
I can barely sleep.
In context ↗ - Anxiety & low mood
I have had panic attacks over this and cried to my partner.
In context ↗ - Mast cell (MCAS) & allergies
We think its a combo platter of Post Covid inflammation and my Allergies messing with my Asthma.
In context ↗
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