16 years of ME/CFS, somewhat better after H. pylori treatment and diet changes
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 16 years
- Last post
- Oct 2026
In their words
- Condition: ME/CFS
Tengo un sfc muy similar al tuyo desde hace 16 años.
In context ↗ - At worst: Mild
si que puedo hacer un poco de ejercicio de fuerza, dentro de unos límites y con un coste asumible
In context ↗ - Now: Somewhat better
Yo he mejorado en los últimos meses tras erradicar H Pylori, retirar azúcar, gluten, alcohol e irritantes.
In context ↗
Summary
Petrel 87632 said they had ME/CFS for 16 years by March 2026, with stress, fasting, alcohol, poor sleep and many supplements or drugs among their triggers and aerobic exercise the worst tolerated. They managed with rest, sleep, breathing exercises, an alcohol-free diet, gentle strength training, naps and magnesium, CoQ10, NAG, taurine and glycine. In recent months they improved after eradicating H. pylori and removing sugar, gluten, alcohol and irritants.
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What they tried
What they credit
Also tried
Their words about each treatment
- descanso · Helped
Lo único que parece ayudar un poco es el descanso
In context ↗ - dormir al menos 8 horas · Helped
intentar dormir lo mejor posible y al menos 8 horas
In context ↗ - ejercicios de respiración · Helped
ejercicios de respiración
In context ↗ - dieta saludable, nada de alcohol · Helped
dieta saludable, nada de alcohol
In context ↗ - ejercicio de fuerza suave y controlado · Helped
ejercicio de fuerza suave y controlado para ganar tolerancia
In context ↗ - bisglicinato de Magnesio · Helped
algunos suplementos que tolero como el bisglicinato de Magnesio, coenzima Q10, NAG, taurina y glicina
In context ↗ - erradicar H Pylori · Helped
Yo he mejorado en los últimos meses tras erradicar H Pylori
In context ↗ - retirar azúcar, gluten, alcohol e irritantes · Helped
retirar azúcar, gluten, alcohol e irritantes
In context ↗
Approaches: Amino acids and carnitine · Antibiotics · Diet · Exercise and activity · Mind-body practices · Pacing · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 16 years after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 16 years before March 2026 | ME/CFS beganTengo un sfc muy similar al tuyo desde hace 16 años.In context ↗ | Not stated | |
| 2026-03-15 | living with ME/CFS, able to do a little strength exercise within limitsEl ejercicio aeróbico es lo que peor tolero, si que puedo hacer un poco de ejercicio de fuerza, dentro de unos límites y con un coste asumible.In context ↗ | Mild | |
| 2026-10-01 | improved after eradicating H Pylori and an elimination dietYo he mejorado en los últimos meses tras erradicar H Pylori, retirar azúcar, gluten, alcohol e irritantes.In context ↗ | Mild | Antibiotics (unspecified) |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
El ejercicio aeróbico es lo que peor tolero
In context ↗ - Sleep problems
no dormir lo suficiente
In context ↗
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