Crashing every six weeks with long COVID, now much better after niacin and melatonin
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 1 year
- Last post
- Jun 2021
In their words
- Condition: Long COVID
I had my first symptoms 3/9/2020.
In context ↗ - At worst: Severe
I relapsed so hard, bedridden and pain for a month.
In context ↗ - Now: Much better
I'm still low energy and have workout I tolerance, but my mind is clear and I get good sleep.
In context ↗ - Began after: COVID
I had my first symptoms 3/9/2020.
In context ↗
Read from 19 of their posts and comments; links to the 10 this page draws on
Summary
A user who fell ill on 9 March 2020 and was crashing every six weeks until starting niacin and melatonin; starting to lift again left them bedridden with pain for a month. They credited niacin, melatonin, L-theanine and a strict low-histamine elimination diet, and by March 2021 said they no longer felt sick. In May 2021 their mind was clear and they slept well but still had low energy and exercise intolerance; by June they were pain-free when sedentary but relapsed with light exercise.
Ask Miruvor AI
What they tried
What they credit
Also tried
Their words about each treatment
- keto, dairy free and intense elimination diet · Helped a lot
elimination diet was also a big deal for me. Histamine wrecks me.
In context ↗ - histamine diet · Helped a lot
so I looked up a histamine diet and I took out things like nightshades, avocados, olives and chocolate
In context ↗ - melatonin · Helped a lot
I take like .5 a g of melatonin a night and it makes a huge difference.
In context ↗ - lifting weights · Much worse
I relapsed so hard, bedridden and pain for a month.
In context ↗ - niacin (nicotinic acid, B3) · Helped a lot
I was repairing every six weeks until I started taking niacin b3 and melatonin consistently. That’s been a game changer.
In context ↗ - L-theanine · Helped a lot
I finally started feeling like myself after I added 400 g of l theanine a week ago.
In context ↗ - herbs for Gu Syndrome (Thunder and Lightning pairing) · Helped
I'm am taking herbs for Gu Syndrome, see below. I'm doing the Thunder and Lightning pairing with cinnamon pearls added in for the allergies.
In context ↗ - Gu Syndrome food protocol · Helped a lot
They have a food protocol for goo that’s made a huge difference for me.
In context ↗ - four main healing mushrooms (lions mane, cordyceps, reishi) · Helped
I'm also taking the four main healing mushrooms, as suggested by Paul stametts; lions mane, cordyceps, reishi and... Oh the other one.
In context ↗ - learning to listen to body to calibrate activity levels · Helped
That and learning to listen to body to calibrate my activity levels.
In context ↗ - vitamin C · Helped
Vitamin c-2000 across the day
In context ↗ - cranberry supplement · Not said
Cranberry supplement
In context ↗ - vitamin D · Not said
Then the basics.... Vitamin d, iron, potassium, magnesium, alpha lipoic acid, and other stuff I don't remember enough about to report.
In context ↗ - scraping and blood cupping · Helped
Also scraping and blood cupping helps us significantly.
In context ↗ - yin yoga · Helped
I'm doing yin yoga now as a compromise and it seems okay.
In context ↗ - air filter · Not said
Also an air filter to reduce allergens.
In context ↗
Approaches: Alternative therapies · Amino acids and carnitine · Diet · Pacing · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2020-03-09 | first symptoms of COVID-19; crashed roughly every six weeksI had my first symptoms 3/9/2020.In context ↗ | Moderate |
| late 2020 | relapse after returning to weightlifting; bedridden with pain for a monthI relapsed so hard, bedridden and pain for a month.In context ↗ | Severe |
| 2021-03 | on niacin, melatonin and an elimination diet they no longer felt sick, though not back to their old workoutsI’m still not working out like I did, but I don’t feel sick anymore.In context ↗ | Mild |
| 2021-06-14 | repeated relapses after what they considered light exercisehave relapsed so. Many. Times. With what I consider light exercise.In context ↗ | Mild |
| 2021-06-14 | pain-free and clear-headed while sedentary; low energy and exercise intolerance remainI’m not in pain anymore, as long as I take 300 g of niacin and avoid even chocolate.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I would be feeling great, do some yoga and by the end of the session be curled up in bed with the intense covid nausea.
In context ↗ - Brain fog
I start to have brain fog and muscle issues at 6 hours.
In context ↗ - Mast cell (MCAS) & allergies
Histamine wrecks me.
In context ↗ - Sleep problems
four days without it and I’m deeply sleep deprived even with ten hours of sleep a night.
In context ↗ - Pain & fibromyalgia
I’m not in pain anymore, as long as I take 300 g of niacin
In context ↗ - Gut problems
curled up in bed with the intense covid nausea.
In context ↗ - Anxiety & low mood
I’m not depressed anymore
In context ↗
Ask Miruvor AI
Similar stories
-
Long COVID with dysautonomia, some benefit from antihistamines then relapsed
A Massachusetts person infected in late February/early March 2020 had relapsing dysautonomia, concentration, mood and gut symptoms, walking with dogs but little more. Antihistamines, supplements, metoprolol, prednisone and niacin were used with some benefit;…
-
Partly bedbound with long COVID, now much better after low-histamine diet and supplements
Long COVID began in December 2023 after a mild infection, with constant depersonalisation, panic attacks, insomnia and breathlessness; at worst suicidal; partly bedbound from PEM. A strict low-histamine diet, cold showers, breathing work, yoga nidra and…
-
Long COVID with ME/CFS-type symptoms, somewhat better with LDN and stellate ganglion block
After COVID-19 in May 2020, she had ME/CFS-type long COVID and later POTS, with remissions and relapses after strep, a too-long hike, reinfection and the bivalent booster. By 2023 she was still working, though with recurring crashes, and thought she might…
-
Long COVID with crippling fatigue, somewhat better after water fast and low-histamine diet
Long COVID began with acid reflux, then tinnitus, hallucinations, electric shocks, crippling fatigue and burning, pooling hands and feet; he was 23 and could not work for over 9 months. Prolonged water fasting cleared his reflux, and a low-histamine,…