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Long COVID Severe → much betterIll 1 year before improving or writingNeeds ongoing treatment

Crashing every six weeks with long COVID, now much better after niacin and melatonin

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill before improving or writing
1 year
Last post
Jun 2021
In their words
  • Condition: Long COVIDI had my first symptoms 3/9/2020. In context ↗
  • At worst: SevereI relapsed so hard, bedridden and pain for a month. In context ↗
  • Now: Much betterI'm still low energy and have workout I tolerance, but my mind is clear and I get good sleep. In context ↗
  • Began after: COVIDI had my first symptoms 3/9/2020. In context ↗
Read from 19 of their posts and comments; links to the 10 this page draws on

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Summary

A user who fell ill on 9 March 2020 and was crashing every six weeks until starting niacin and melatonin; starting to lift again left them bedridden with pain for a month. They credited niacin, melatonin, L-theanine and a strict low-histamine elimination diet, and by March 2021 said they no longer felt sick. In May 2021 their mind was clear and they slept well but still had low energy and exercise intolerance; by June they were pain-free when sedentary but relapsed with light exercise.

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Asking aboutDew 82168’s story

What they tried

Their words about each treatment
  • keto, dairy free and intense elimination diet · Helped a lotelimination diet was also a big deal for me. Histamine wrecks me. In context ↗
  • histamine diet · Helped a lotso I looked up a histamine diet and I took out things like nightshades, avocados, olives and chocolate In context ↗
  • melatonin · Helped a lotI take like .5 a g of melatonin a night and it makes a huge difference. In context ↗
  • lifting weights · Much worseI relapsed so hard, bedridden and pain for a month. In context ↗
  • niacin (nicotinic acid, B3) · Helped a lotI was repairing every six weeks until I started taking niacin b3 and melatonin consistently. That’s been a game changer. In context ↗
  • L-theanine · Helped a lotI finally started feeling like myself after I added 400 g of l theanine a week ago. In context ↗
  • herbs for Gu Syndrome (Thunder and Lightning pairing) · HelpedI'm am taking herbs for Gu Syndrome, see below. I'm doing the Thunder and Lightning pairing with cinnamon pearls added in for the allergies. In context ↗
  • Gu Syndrome food protocol · Helped a lotThey have a food protocol for goo that’s made a huge difference for me. In context ↗
  • four main healing mushrooms (lions mane, cordyceps, reishi) · HelpedI'm also taking the four main healing mushrooms, as suggested by Paul stametts; lions mane, cordyceps, reishi and... Oh the other one. In context ↗
  • learning to listen to body to calibrate activity levels · HelpedThat and learning to listen to body to calibrate my activity levels. In context ↗
  • vitamin C · HelpedVitamin c-2000 across the day In context ↗
  • cranberry supplement · Not saidCranberry supplement In context ↗
  • vitamin D · Not saidThen the basics.... Vitamin d, iron, potassium, magnesium, alpha lipoic acid, and other stuff I don't remember enough about to report. In context ↗
  • scraping and blood cupping · HelpedAlso scraping and blood cupping helps us significantly. In context ↗
  • yin yoga · HelpedI'm doing yin yoga now as a compromise and it seems okay. In context ↗
  • air filter · Not saidAlso an air filter to reduce allergens. In context ↗

Approaches: Alternative therapies · Amino acids and carnitine · Diet · Pacing · Supplements

Their path

Very severeSevereModerateMildNear normalRecoveredonset6 mo12 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
2020-03-09first symptoms of COVID-19; crashed roughly every six weeksI had my first symptoms 3/9/2020. In context ↗Moderate
late 2020relapse after returning to weightlifting; bedridden with pain for a monthI relapsed so hard, bedridden and pain for a month. In context ↗Severe
2021-03on niacin, melatonin and an elimination diet they no longer felt sick, though not back to their old workoutsI’m still not working out like I did, but I don’t feel sick anymore. In context ↗Mild
2021-06-14repeated relapses after what they considered light exercisehave relapsed so. Many. Times. With what I consider light exercise. In context ↗Mild
2021-06-14pain-free and clear-headed while sedentary; low energy and exercise intolerance remainI’m not in pain anymore, as long as I take 300 g of niacin and avoid even chocolate. In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseI would be feeling great, do some yoga and by the end of the session be curled up in bed with the intense covid nausea. In context ↗
  • Brain fogI start to have brain fog and muscle issues at 6 hours. In context ↗
  • Mast cell (MCAS) & allergiesHistamine wrecks me. In context ↗
  • Sleep problemsfour days without it and I’m deeply sleep deprived even with ten hours of sleep a night. In context ↗
  • Pain & fibromyalgiaI’m not in pain anymore, as long as I take 300 g of niacin In context ↗
  • Gut problemscurled up in bed with the intense covid nausea. In context ↗
  • Anxiety & low moodI’m not depressed anymore In context ↗

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