ME/CFS
Outcome unclearNeeds ongoing treatment
List of ME/CFS Recovery and Improvement Stories (page 13 discussion)
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- Not stated
- Published
- 2024
Read the original ↗
In their words
- Condition: ME/CFS
DISCUSSION: List of ME/CFS Recovery and Improvement Stories
- At worst: Moderate
A 1/2 level up for me would put me at about mild/moderate
In context ↗
The story comes from their 4 posts in this thread
Summary
Florida Guy had ME/CFS and was about moderate; he had given up occasional walks because a short one might bring on PEM. He had earlier tried pregabalin for insomnia and found it less than ideal. After a single 200mg dose of gabapentin in September 2024 he woke feeling great, with more energy and better mood, but said it was too early to know if it would last. Later he said a teaspoon of glutamine takes away the leg neuropathy discomfort he gets.
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What they tried
What they credit
gabapentin· Helped · main
Also tried
Their words about each treatment
- pregabalin · No change
I happen to have some pregabalin left over from when I tried using it to combat insomnia. It proved less than ideal but does have some sleepy effects.
In context ↗ - usual sleep meds · Not said
along with my usual sleep meds
In context ↗ - gabapentin · Helped
I took 200mg gabapentin last night along with my usual sleep meds. I woke up this morning feeling great!
In context ↗ - glutamine · Helped
a tsp of glutamine will take away the discomfort
In context ↗
Approaches: Other drugs and medicines · Supplements
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them.
| When | What happened |
|---|---|
| onset | ME/CFS; onset date not statedDISCUSSION: List of ME/CFS Recovery and Improvement Stories |
| 2024-09-24 | woke feeling great with more energy and better mood after gabapentinI took 200mg gabapentin last night along with my usual sleep meds. I woke up this morning feeling great!In context ↗ |
| 2026-10-19 | still gets leg neuropathy discomfort; a teaspoon of glutamine relieves itI get it in my legs but a tsp of glutamine will take away the discomfort.In context ↗ |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
even a short walk might give pem in the legs a day or two later
In context ↗ - Brain fog
see how it affects my energy levels, brain fog and pem
In context ↗ - Sleep problems
I haven't slept like that in years.
In context ↗ - Neuropathy & tingling
I get it in my legs but a tsp of glutamine will take away the discomfort.
In context ↗