ME/CFS
Mild → no benefitIll for 16 months
Itching, migraines and bowel trouble for 16 months, no better, ME/CFS suspected
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- 16 months
- Last post
- May 2025
In their words
- Condition: ME/CFS
wondering if its some sort of dysautonomia, MCAS, or possibly CFS
In context ↗ - At worst: Mild
Some days i also have extreme fatigue, feeling like im malnourished and generally exhausted despite normal intake. Then the next day, ill wake up with tons of energy.
In context ↗ - Now: No benefit
I've (21M) been having some strange problems for the past year that have started to become more severe in the past few months.
In context ↗ - Began after: nothing they could name
i'm really struggling to pin down a trigger.
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A 21-year-old man reported about 16 months of itchy skin and rashes, a severe migraine, constipation with pelvic pain and urinary frequency, fragmented sleep and intermittent fatigue. Antihistamines mostly controlled itching; laxatives and an enema helped bowel movements, and pelvic-floor physiotherapy found muscle weakness that improved. His urinary frequency later stabilized somewhat. He still had inconsistent bowels, itching without antihistamines, poor sleep and tiredness after hard work, and suspected MCAS, dysautonomia or CFS without diagnosis.
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What they tried
Also tried
Their words about each treatment
- Benadryl · Helped
Eventually i tried benadryl which stopped the itching
In context ↗ - Claritin · Helped
transitioned to Claritin which ive been taking daily since, which mostly manages the itching
In context ↗ - dulcolax · Not said
other than diarrhea after taking dulcolax and miralax
In context ↗ - enema · Helped
Eventually i tried an enema and was able to get things moving again
In context ↗ - stretching routine · Helped
The soreness eventually subsided, possibly as a result of a stretching routine id been doing.
In context ↗ - pelvic floor physical therapy · Not said
I saw a pelvic floor pt who did originally find some muscle weakness/lack of endurance down there
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| January 2024 | itchy skin and rashes beganLast year around January i started getting very itchy all over my body.In context ↗ | Near normal |
| February 2025 | flu-like illness then constipation, pelvic pain, urinary frequency and fragmented sleepThis February i had what i thought was the flu for a week or so, then one night 2 weeks later, after having an orgasm, i found myself constipated.In context ↗ | Mild |
| May 2025, past couple weeks | symptoms better overallThe past couple weeks have been better overallIn context ↗ | Mild |
| May 2025, last week | tiredness after hard physical workrecently after a day of hard physical work last week i havent really felt 100% since.In context ↗ | Mild |
Adverse events
- Bisacodyl (Dulcolax), Macrogol / polyethylene glycol (Movicol, MiraLAX, Laxido)“other than diarrhea after taking dulcolax and miralax” In context ↗ Gut side effects
Symptoms mentioned
Anxiety & low moodBrain fogGut problemsHeadaches & migraineMuscle weaknessPain & fibromyalgiaPost-exertional malaiseSleep problemsVision problems
Their words about their symptoms
- Headaches & migraine
In November of 2024 i had a really bad migraine.
In context ↗ - Gut problems
my bowel movements are still all over the place and inconsistent.
In context ↗ - Sleep problems
my sleep has been fragmented and i find myself waking many times during the night.
In context ↗ - Post-exertional malaise
after a day of hard physical work last week i havent really felt 100% since.
In context ↗ - Anxiety & low mood
I have been very emotionally distressed over this.
In context ↗ - Vision problems
ive alsp developed eye floaters and a little while later an occasional white flashing in the corner of my right eye.
In context ↗ - Pain & fibromyalgia
i felt a strange pressure/ache in my perineum
In context ↗ - Muscle weakness
did originally find some muscle weakness/lack of endurance down there, but that has since improved.
In context ↗ - Brain fog
Eventually it became very difficult to read or speak properly.
In context ↗