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Long COVID Moderate → recoveredIll 17 months before improving

Successful Long Covid Recovery - Melissa Mansfield's Story

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving
17 months
Published
No date given
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In their words
  • Condition: Long COVIDthat was the infection that set off my long Co Watch the video ↗From the video’s captions
  • At worst: Moderateit wound up being about nine months of like that real kind of hibernating totally changed my life rest period Watch the video ↗From the video’s captions
  • Now: RecoveredI can really say I am recovered I am healthy I'm good Watch the video ↗From the video’s captions
  • Began after: COVIDI contracted covid for the first time in March of 20122

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Summary

Melissa Mansfield caught COVID in Colombia in March 2022 and was left with long COVID that at its worst stopped her walking to the shops. After about six months she stopped dancing and rested for about nine months, pacing and taking low-dose naltrexone (LDN). She credits reaching a certain LDN dose, close to a year and a half in, with starting her recovery. Two years on she was dancing nightly in Havana and says she is recovered.

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What they tried

Also tried

Mindset shift and self-compassion (grieving the past, being kinder to herself)· Helpedother medications and supplements (unnamed)· Not said
Their words about each treatment
  • LDN · Helped a lotI hit a certain dose in my LDN that seemed to kind of help me turn the corner Watch the video ↗From the video’s captions
  • radical rest and healing · Helped a lotthat real kind of hibernating totally changed my life rest period Watch the video ↗From the video’s captions
  • pacing · HelpedI did a lot of pacing which I learned from the mcfs community Watch the video ↗From the video’s captions
  • Mindset shift and self-compassion (grieving the past, being kinder to herself) · HelpedI really just focused on being kind to myself taking care of myself putting aside Ambitions and goals Watch the video ↗From the video’s captions
  • other medications and supplements (unnamed) · Not saidI was taking other a few other medications and supplements Watch the video ↗From the video’s captions

Approaches: CBT & mindset · Pacing · Radical rest

Their path

Very severeSevereModerateMildNear normalRecoveredonset6 mo12 mo18 mo2 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
March 2022mild COVID in Colombia followed by heavy fatigue; never felt well over the next four months despite cutting backI contracted covid for the first time in March of 20122 and that was the infection that set off my long Co Watch the video ↗From the video’s captionsMild
about six months after infectionphysically and emotionally depleted; stopped dancing and began about nine months of hibernating restI just got to a point where I was so depleted so physically and emotionally depleted Watch the video ↗From the video’s captionsModerate
a year after infectionstarted working a little and went to a concert with accommodationsI was able to start working a year after I got infected Watch the video ↗From the video’s captionsModerateRadical rest
almost a year and a half after infectionmore good days than bad after reaching a certain LDN dose; danced salsa again on a tripI started noticing like more good days than bad days I hit a certain dose in my LDN that seemed to kind of help me turn the corner Watch the video ↗From the video’s captionsMildLow-dose naltrexone
February, about two years after infectionten days in Havana dancing almost every nightI went on a 10-day trip and I danced every single night Watch the video ↗From the video’s captionsNear normalLow-dose naltrexone
just before the interviewback from a 34-day trip around Europe with a week-long salsa festival, never got sickit's taken a very long time for me to really feel like I can really say I am recovered I am healthy I'm good Watch the video ↗From the video’s captionsRecoveredLow-dose naltrexone

Symptoms mentioned

Their words about their symptoms
  • Muscle weaknessI wasn't feeling like sort of a weakness Watch the video ↗From the video’s captions
  • BreathlessnessI wasn't getting winded Watch the video ↗From the video’s captions
  • Anxiety & low moodI think of the first six months as this period of grief and heartbreak Watch the video ↗From the video’s captions
  • Post-exertional malaiseI was just so fatigued I was just learning what Pam was Watch the video ↗From the video’s captions

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