Largely bedridden with long COVID for months, now much better with time
- Condition
- Long COVID
- At worst
- Very severe (bedbound, unable to do basic care)
- Ill before improving or writing
- 7 months
- Last post
- Jan 2026
In their words
- Condition: Long COVID
So my long term Covid ended about eight months of pure hell.
In context ↗ - At worst: Very severe
So bad I quit smoking bc I didn’t have the strength to stand, my husband had to shower with me.
In context ↗ - Now: Much better
I got better and the fatigue only gets slightly better. It has stayed with me.
In context ↗ - Began after: COVID
So my long term Covid ended about eight months of pure hell.
In context ↗
Read from 23 of their posts and comments; links to the 13 this page draws on
Summary
Swan 97022, a therapist, became ill with long COVID in 2024 and was largely bedridden for months, barely able to walk to the bathroom and needing help to shower. They improved gradually without doing anything specific, crediting little beyond time, but a two-week good spell ended in an ER visit for a suspected small stroke. By early 2025 they could get around again, though fatigue, vertigo, poor eyesight and muscle soreness persist.
Ask Miruvor AI
What they tried
What they credit
Their words about each treatment
- therapy · Helped
I'm in therapy. A lot of therapy. ... Therapy helps keep me centered.
In context ↗ - taking it really slow · Not said
One day I got out of bed and laid on the living room sofa. I took it really slow.
In context ↗ - time · Helped a lot
I didn't do anything specific. ... I think maybe it just ran its course.
In context ↗ - COVID vaccination as treatment · Worse
I had such a horrific reaction to the vaccine my doctors actually advised me to not get the second shot or the booster. ... I ended up hospitalized twice.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| March 2024 | Long COVID beganSo my long term Covid ended about eight months of pure hell.In context ↗ | Severe |
| mid 2024 | Bedridden for the first monthsThe first four months i could barely walk to the bathroom. I seriously consider wearing diapers.In context ↗ | Very severe |
| 2024-10-09 | Brain fog cleared, moving around moreOh I’ve gotten up to 900 steps in one day! Even swept the kitchen and living room two days ago!In context ↗ | Mild |
| 2024-10-10 | Bad night, all the symptoms returnedAll the bad feeling are back. I’ve been goodish (mildly functional) and now it feels like a day in that first week.In context ↗ | Severe |
| 2024-11-03 | Great days, drove a car and went outI went to a restaurant and am having a drink! Drove a car for the first time in eight months!!!In context ↗ | Mild |
| 2024-11-10 | ER visit for a suspected small stroke, back in bedThen I ended up in the ER for what they believe was possibly a small stroke. I am back in bedIn context ↗ | Severe |
| 2024-12-10 | Kicked the worst parts, still needs much sleepI managed to kick the horrendous parts, but I still need a ton of sleepIn context ↗ | Mild |
| 2025-03-03 | Able to get around again, cooking sometimesIt’s been almost three months I’ve been able to get around ... I am feeling better.In context ↗ | Mild |
| 2026-01-09 | Better overall, fatigue and soreness remainI got better and the fatigue only gets slightly better. It has stayed with me. That and muscle soreness.In context ↗ | Mild |
Adverse events
- COVID vaccination as treatment“I had such a horrific reaction to the vaccine my doctors actually advised me to not get the second shot or the booster. ... I ended up hospitalized twice.” In context ↗ Hospitalisation
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
the few days I’ve felt a bit better that o would crash for a week bc I overdid it
In context ↗ - Brain fog
I’m still really foggy and my memory is still bad.
In context ↗ - POTS & dysautonomia
I also have wicked vertigo.
In context ↗ - Sleep problems
I still need 12-14 hours of sleep some nights.
In context ↗ - Pain & fibromyalgia
Now my joints and muscles are horrible!
In context ↗ - Muscle weakness
My shoulders are still heavy and I’m still really tired and my legs still shake.
In context ↗ - Anxiety & low mood
Anxiety is an issue
In context ↗ - Vision problems
my eye sight is awful now
In context ↗
Ask Miruvor AI
Similar stories
-
Unable to walk around house with long COVID, much better after pacing and antihistamines
A Canadian man with long COVID for about three years was unable to walk around the house for the first two years, with constant migraines, brain fog and PEM. From year three, pacing, rest, stress reduction, H1/H2 antihistamines, hydroxyzine for sleep,…
-
Profoundly severe ME/CFS for about five years, now somewhat better but still severe
Dew 49079 was profoundly severe with ME/CFS for about five years, and once slept a week around the clock after overdoing it. They said they snapped out of it one day after five years, 'nothing I did', and have been out of the dark about a year, though it…
-
Bedridden for years with ME/CFS, now housebound and moderate after time and rest
A person with ME/CFS for six or more years was severe and bedridden for several years, then gradually improved to housebound and moderate. They credited time, rest and harm reduction rather than one treatment. Nicotine patches, microdosed psilocybin, pacing…
-
Bedridden with long COVID for three years, now nearly back to normal with time and pacing
Caught COVID in December 2019, before lockdown, and was mostly bedridden for three years as symptoms worsened. From year three she improved slowly, crediting time, rest, pacing, a gradual walking programme, daily antihistamines and gabapentin. A 2023…