Long COVID with severe fatigue and brain fog, improved then relapsed, now mostly in bed
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 18 months
- Last post
- Jan 2024
In their words
- Condition: Long COVID
I’ve had long covid since June 2022
In context ↗ - At worst: Severe
I am able to do very light exercise for a total of 20-30 minutes a day and spend the rest of the day in bed.
In context ↗ - Now: Relapsed
currently I have been in a bad period for over 16 weeks
In context ↗ - Began after: COVID
I’ve had long covid since June 2022
In context ↗
Summary
A 21-year-old male student from the Boston area developed long COVID in June 2022, with severe fatigue and brain fog. His health fluctuated in good and bad periods; in summer 2023 he reached about 70% of normal activity, working 25 hours a week and exercising. Since mid-August 2023 he has been unable to work or take classes and spends most of the day in bed. By December 2023 he had been in that bad period for over 16 weeks; supplements and medications had not significantly helped.
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What they tried
Also tried
Their words about each treatment
- Adderall · No change
tried Adderall, NAC, CoQ10, Niagen, statins, etc...) without a significant decrease in symptoms ... I'm taking adderall which also decreases my appetite
- NAC · No change
tried Adderall, NAC, CoQ10, Niagen, statins, etc...) without a significant decrease in symptoms
In context ↗ - vaccines · Helped
Sometimes my health actually improves after getting a vaccine
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 13 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| June 2022 | long COVID beganI’ve had long covid since June 2022In context ↗ | Not stated |
| summer 2023 | good period with about 70% of normal activityI was able to get up to 25 hours of cognitively intensive research work a week, ran 2 miles every morning for over a monthIn context ↗ | Mild |
| mid-August 2023 | bad period: unable to work or take classes, in bed most of the daySince mid-August, I have been unable to work/take classes at all.In context ↗ | Severe |
| December 2023 | still in a bad period for over 16 weekscurrently I have been in a bad period for over 16 weeksIn context ↗ | Severe |
Adverse events
- Amphetamine salts (Adderall)“my appetite tends to be pretty low (and I'm taking adderall which also decreases my appetite)” In context ↗ Side effects