Long COVID with nerve and muscle pain, now much better with NAD+ and glutathione
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 1 year
- Last post
- Dec 2024
In their words
- Condition: Long COVID
I had many many symptoms after my Covid infection that was a little over 2 months ago
In context ↗ - At worst: Mild
general muscle weakness but worse on the left side of my body, muscle twitching, pins and needless, GI issues (GERD, diarrhea, bloating), nausea, dizziness sleeping issues, low energy
In context ↗ - Now: Much better
1 year road to recovery - ups & downs, dramatic improvement, and surprising findings
In context ↗ - Began after: COVID
I had many many symptoms after my Covid infection that was a little over 2 months ago.
Read from 8 of their posts and comments; links to the 7 this page draws on
Summary
Pond 20532 developed long COVID after a COVID infection in December 2023, with nerve and muscle pain, weakness, twitching, pins and needles, GI problems, dizziness and poor sleep, but kept working. NAD+ with glutathione, magnesium malate, muscle relaxants, massages, hot baths and McDonald's meals eased symptoms. A year on they reported dramatic improvement with ups and downs.
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What they tried
What they credit
Also tried
Their words about each treatment
- pre/probiotics · No change
So far can’t say that I spotted any improvements with the randomness of my GI issues.
In context ↗ - modified IBS diet · Not said
I am also on sort of modified IBS diet since the beginning of this year
In context ↗ - Vigantol vitamin D · Not said
For vitamin D I take a drop of Vigantol which supposedly should have about 20 000 UI + vitamin K.
In context ↗ - B-complex and additional B12 in bioactive form · Not said
I also take high amounts of B-complex and additional B12 in bioactive form
In context ↗ - special enzymes used in neuropathy/nerve damage treatment (uridin, cytidin) · Not said
special enzymes used in neuropathy/nerve damage treatment (uridin, cytidin)
In context ↗ - breathing techniques · Helped
I had relative success with breathing techniques when my anxiety got really really bad so I am practicing that on a regular basis.
In context ↗ - relaxing and taking it easy · No change
Sitting on my ass the whole day that I was practicing at the start of my problems didn't really help anything
In context ↗ - Nimesulid (Aulin) · Worse
Nimesulid was the only thing that could take the edge off for a couple of hours, however, it caused worsening of GI issues.
In context ↗ - opioids · Worse
Even tried some opioids but they had no effect on the pain and had many side effects.
In context ↗ - Alprazolam · Not said
I was on a very low dose of Alprazolam for anxiety and trouble with sleep
In context ↗ - cold showers · Worse
Cold showers (makes skin feel like if it is on fire)
In context ↗ - cutting back my caffeine intake · Helped
What helped me slightly was cutting back my caffeine intake and cold showers.
In context ↗ - exercise · Worse
Exercise (made all symptoms worse)
In context ↗ - Keto and Mediterranean diets · Worse
Diets (tried Keto and Mediterranean - both made GI issues insanely worse and had no effect on other issues)
In context ↗ - fasting · Worse
Fasting (started fainting)
In context ↗ - melatonin · Worse
Melatonin supplements for sleeping (subjectively lowered my sleeping baseline)
In context ↗ - CBD · No change
CBD (had no effect)
In context ↗ - kratom · Worse
Kratom (increased nausea and did not see any helpful effects)
In context ↗ - sauna · Worse
Sauna (made me feel very dizzy and nauseous)
In context ↗ - magnesium citrate/bisglycinate · Worse
Magnesium citrate/bisglycinate (did not feel any difference when using it, just made GERD worse.)
In context ↗ - junk food (McDonald's) · Helped
my GI issues and nausea went away
In context ↗ - NAD+ · Helped
NAD+ and SAG (S-Acetyl-L-Glutathione) supplements - Recommended by a neurologist. Significantly helps with energy levels during the day.
In context ↗ - magnesium malate · Helped
Magnesium malate (the only form of magnesium that worked and helped to lower the muscle twitching)
In context ↗ - muscle relaxants · Helped
Muscle relaxants (helped with the deep muscle pains significantly)
In context ↗ - massages · Helped
Massages (helped with muscle pains as well)
In context ↗ - hot baths · Helped
Hot baths (helps to short-term improve pretty much every symptom)
In context ↗ - supplementing salt · No change
salt in many different forms did not bring any results
In context ↗ - COVID vaccination as treatment · Not said
I had a terrible reaction after my second dose of Phizer ... it took me out for good two weeks with intense fatigue and flu like symptoms
Approaches: Supplements
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| last week of 2023 and first week of 2024 | lowest point, sitting at home all day, nerve and muscle symptomsSitting on my ass the whole day that I was practicing at the start of my problems didn't really help anythingIn context ↗ |
| January 2024 | better days mixed with worse days, taking very short walksI do have better days and worse days, however, the last week and a half is much better in comparison to like last week of 2023 and the first week of 2024In context ↗ |
| early 2024 | bad crash with GI issues and nauseaat the time I felt very bad and had a bad crash, I had to order foodIn context ↗ |
| early February 2024 | GI issues and nausea cleared, later symptoms mostly skin, nerve and sleepmiraculously" my GI issues and nausea went awayIn context ↗ |
| December 2024 | dramatic improvement over a year, with ups and downs1 year road to recovery - ups & downs, dramatic improvement, and surprising findingsIn context ↗ |
Adverse events
- COVID vaccination as treatment“I had a terrible reaction after my second dose of Phizer ... it took me out for good two weeks with intense fatigue and flu like symptoms” Side effects
- Keto and low-carb diets“Diets (tried Keto and Mediterranean - both made GI issues insanely worse and had no effect on other issues)” In context ↗ Gut side effects
- Mediterranean diet“Diets (tried Keto and Mediterranean - both made GI issues insanely worse and had no effect on other issues)” In context ↗ Gut side effects
- Extended water fasting (3+ days)“Fasting (started fainting)” In context ↗ Low blood pressure or fainting
- Everyday exercise and activity“Exercise (made all symptoms worse)” In context ↗ Made symptoms worse
- Melatonin“Melatonin supplements for sleeping (subjectively lowered my sleeping baseline)” In context ↗ Insomnia from treatment
- “Nimesulid was the only thing that could take the edge off for a couple of hours, however, it caused worsening of GI issues.” In context ↗ Gut side effects
- Opioids (unspecified)“Even tried some opioids but they had no effect on the pain and had many side effects.” In context ↗ Side effects
- Kratom“Kratom (increased nausea and did not see any helpful effects)” In context ↗ Gut side effects
- Hyperthermia and sauna“Sauna (made me feel very dizzy and nauseous)” In context ↗ Side effects
- Cryotherapy and cold exposure“Cold showers (makes skin feel like if it is on fire)” In context ↗ Made symptoms worse
- Magnesium“Magnesium citrate/bisglycinate (did not feel any difference when using it, just made GERD worse.)” In context ↗ Gut side effects
Symptoms mentioned
Their words about their symptoms
- Neuropathy & tingling
Pins and needles in hands and feet
In context ↗ - Muscle weakness
general muscle weakness but worse on the left side of my body
In context ↗ - Pain & fibromyalgia
Occasional muscle pain that comes and goes, usually in legs
In context ↗ - Gut problems
Occasional nausea
In context ↗ - Sleep problems
Waking up several times every night - bad sleep overall
In context ↗ - POTS & dysautonomia
nausea, dizziness sleeping issues
In context ↗ - Post-exertional malaise
Exercise (made all symptoms worse)
In context ↗ - Anxiety & low mood
I feel like anxiety is playing a big role in how I feel
In context ↗
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