Long COVID brain fog, severe depression and cognitive loss, close to normal then relapsed
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 2.5 years
- Last post
- Jul 2023
In their words
- Condition: Long COVID
Started long haul symptoms in March of this year
In context ↗ - At worst: Moderate
the Second shot a month later fucked me up HARD. I was barely functioning (at best 40% of normal)
In context ↗ - Now: Relapsed
Can’t say I am much better, am surely not worse
In context ↗ - Began after: COVID
Got Covid from (now ex) wife late December. No symptoms at all.
In context ↗
Read from 22 of their posts and comments; links to the 13 this page draws on
Summary
Hawk 31003 caught COVID-19 in December 2020 without symptoms, then developed brain fog and memory lapses. A first Moderna dose worsened the fog and a second left them barely functioning at about 40% of normal, with severe depression and cognitive loss. By October 2021 they were close to 95% back to normal, but symptoms returned with allergy season and worsened; by mid-2023 they said they were no better and no worse.
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What they tried
What they credit
Also tried
Their words about each treatment
- Moderna vaccine · Much worse
the Second shot a month later fucked me up HARD
In context ↗ - sleeping meds · Not said
my sleeping meds kicked in
In context ↗ - Welbutrin (bupropion) · Worse
I was prescribed Welbutrin and had serious adverse reactions
In context ↗ - scheduling meals and hydrating · Helped
since I have been eating when. I hydrate, snd scheduling meals, I have gone back up to 180
In context ↗ - Lexipro (escitalopram) · Helped
Lexipro worked well for me
In context ↗ - OTC allergy medication · Helped
as did OTC allergy medication
In context ↗
Approaches: H1 antihistamines · SSRIs
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| late December 2020 | COVID-19 caught from ex-wife, initially without symptomsGot Covid from (now ex) wife late December. No symptoms at all.In context ↗ | Mild |
| June 2021 | second Moderna dose, barely functioningthe Second shot a month later fucked me up HARD. I was barely functioning (at best 40% of normal)In context ↗ | Moderate |
| August 2021 | slowly clawing back some functionI am winning by inches when once I felt every day I was losing ground.In context ↗ | Moderate |
| October 2021 | close to 95% back to normalI am starting to see real improvement, I would say I am close to 95% back to normal.In context ↗ | Near normal |
| March 2022 | long-haul symptoms reappearing with allergy seasonAllergy season here so all kinds of long-haul crap is reappearing with me.In context ↗ | Mild |
| July 2022 | symptoms worsening again with good days sprinkled inBut, I see more and more it getting worse, with some really good days sprinkled in.In context ↗ | Mild |
| July 2023 | still symptomatic, coping betterCan't say I am much better, am surely not worseIn context ↗ | Mild |
Adverse events
- COVID vaccination as treatment“For my first vaccine (Moderna)and was sick the second day with fever for about 8 hours” In context ↗ Side effects
- COVID vaccination as treatment“I had my first vaccine mid May, had a nasty fever and the fog and cognitive issues became much more noticeable” In context ↗ Made symptoms worse
- COVID vaccination as treatment“My first shot, my long haul symptoms seemed to get worse ... Got the shot, sick for 12 hours with fever, then had a slight decline (maybe back down to 65-70%)” Made symptoms worse
- COVID vaccination as treatment“the Second shot a month later fucked me up HARD. I was barely functioning (at best 40% of normal) it has taken me months to get back to 60% function” In context ↗ Made symptoms worse
- Bupropion (Wellbutrin)“I was prescribed Welbutrin and had serious adverse reactions. I became very depressed and having mental break downs ... Welbutrin almost killed me” Mood or psychiatric effects
Symptoms mentioned
Their words about their symptoms
- Brain fog
I had minor brain fog and memory lapses a few weeks after getting the all clear.
In context ↗ - Anxiety & low mood
I have now for the past month been dealing with, severe depression
In context ↗ - Heart symptoms & palpitations
Mine spiked to 155 for three minutes just sitting.
In context ↗ - Sleep problems
The amount of sleep I get directly impacts me the next day.
In context ↗
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