Unfit to work with long COVID, napping; somewhat better with breathing exercises and rest
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 2 years
- Last post
- Aug 2023
In their words
- Condition: Long COVID
I had it twice and long covid from first.
In context ↗ - At worst: Moderate
Still alive, improving but not fit to work yet over a year since first infection.
In context ↗ - Now: Somewhat better
Still alive, improving but not fit to work yet over a year since first infection.
In context ↗ - Began after: COVID
I had it twice and long covid from first.
In context ↗
Read from 7 of their posts and comments; links to the 6 this page draws on
Summary
Zephyr 76022 developed long COVID after a first COVID-19 infection in 2021, and a reinfection brought ocular migraines, headaches and floaters. They were not fit to work and napped daily; by late 2022 they could walk briskly again, though POTS and relapses after overdoing it remained, and they later reported eye and neck pain and dizziness. Breathing exercises, meditation and rest helped somewhat; cold showers were among their routines.
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What they tried
What they credit
Also tried
Their words about each treatment
- rest · Helped
Getting adequate rest is only thing that helps reduce them.
In context ↗ - Breathing exercises, meditation and light yoga/stretching · Helped
alternate nostril breathing 5 mins each morning ... Light yoga/ stretching most days.
In context ↗ - Strict Bedtime Routine · Helped
Strict Bedtime Routine - screens off at 10pm, lights out 11pm, awake 6:30am
In context ↗ - Homemade electrolyte drink · Helped
Homemade electrolyte drink for when my pots symptoms flare up.
In context ↗ - 20 mins daylight each day · Helped
20 mins daylight each day.
In context ↗ - Working on acceptance and self compassion · Helped
Working on acceptance and self compassion.
In context ↗ - heart meds · Not said
I have to need heart meds as I developed POTS
In context ↗ - cold showers · Not said
I currently take cold showers most mornings
In context ↗ - 36 hr fast once or twice most weeks · Helped
I do 36 hr fast once or twice most weeks which helps some.
In context ↗
Approaches: POTS medication · Diet · Mind-body practices · Radical rest · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2021 | First COVID-19 infection followed by long COVIDI had it twice and long covid from first.In context ↗ | Moderate |
| 2022-03-27 | cold brought back the internal vibrationsMine has improved a bit too, but have it again these last 2 weeks as I got a coldIn context ↗ | Moderate |
| 2022-08-13 | a decent amount of improvement with a daily routine of breathing, rest and meditationOverall, I've improved a decent amount but I relapse when I overdo it.In context ↗ | Moderate |
| 2022-12-01 | walking at a brisk pace again and no longer napping dailyI'm able to walk at a brisk pace again (albeit that I have to need heart meds as I developed POTS) and don't need a nap every dayIn context ↗ | Mild |
| 2023-08-26 | still improving, sleep better, but screen time, dizziness, POTS and eye and neck pain persistI currently take cold showers most mornings, meditate and have generally improved my sleep though I need to get disciplined on that again.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
Overall, I've improved a decent amount but I relapse when I overdo it.
In context ↗ - POTS & dysautonomia
I also seem to have developed pots (diagnosed over zoom)
In context ↗ - Headaches & migraine
I never had migraines before, but after round #2 I get ocular migraines, headaches and floaters somewhat frequently.
In context ↗ - Vision problems
as well as eye pain/problems, neck pain etc.
In context ↗ - Sleep problems
generally improved my sleep though I need to get disciplined on that again
In context ↗ - Neuropathy & tingling
Yes, it starts in my legs and goes to ny arms, usually when I've run out of energy.
In context ↗
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