Long COVID with brain fog, nerve pain and collapses, now some improvement on antihistamines
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 3 years
- Last post
- Mar 2023
In their words
- Condition: Long COVID
LC is taking away my quality of life… but COVID almost took my life.
In context ↗ - At worst: Severe
Symptoms are brain fog, severe nerve pain, leg weakness, collapsed several times, breathing issues, headaches, vision issues.
In context ↗ - Now: Somewhat better
I’ve had some improvement after my doses.
In context ↗ - Began after: COVID
Original infection, March 2020. Nearly died.
In context ↗
Read from 7 of their posts and comments; links to the 5 this page draws on
Summary
Prairie 62147 got long COVID from a March 2020 infection that nearly killed them, with reinfections in December 2021 and April 2022. Two and a half years in, symptoms including brain fog, severe nerve pain, leg weakness, collapses and vision problems were worsening. Nightly Claritin and other antihistamines helped a lot, and they reported some improvement after vaccine doses, though sleep problems persisted.
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What they tried
What they credit
Also tried
Their words about each treatment
- Claritin · Helped
The antihistamines have helped a LOT (also with my allergies) ... Claritin has been a godsend! I take it nightly and it’s helped SO MUCH
- ginkgo · Not said
I take ginkgo, and was on an oxygen tank for several months post covid.
In context ↗ - oxygen tank · Not said
was on an oxygen tank for several months post covid. My pulse ox has been normal for most of a year now.
In context ↗ - Aspirin · Worse
Aspirin makes it worse. So I went off. Leg clots returned and they gave out again.
In context ↗ - COVID vaccine doses · Helped
I’ve had some improvement after my doses.
In context ↗ - weighted eye mask, lavender oil, sleep tea, nose strip, weighted blanket, contoured pillows, sleep headphones, ambient noises · Helped
Me, with my weighted eye mask, lavender oil, sleep tea, nose strip, weighted blanket, contoured pillows, sleep headphones, ambient noises….. and limited relief
In context ↗
Approaches: H1 antihistamines · Vaccination
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| March 2020 | original COVID-19 infection, nearly diedOriginal infection, March 2020. Nearly died.In context ↗ | Severe | |
| Dec 2021 | Omicron reinfectionOmicron in Dec 2021, round 3 in April 2022.In context ↗ | Not stated | |
| April 2022 | third COVID round | Not stated | |
| before Oct 2022 | felt somewhat normal after ups and downsI was feeling somewhat normal after back and forth.In context ↗ | Mild | |
| 2022-10-06 | set back again; worse after going off aspirin, constipation and fissureNow I feel like I’ve set myself back again.In context ↗ | Moderate | |
| 2022-12-18 | some improvement after vaccine dosesI’ve had some improvement after my doses.In context ↗ | Moderate | COVID vaccination as treatment |
| 2023-03-13 | still struggling with sleep despite many aidsand limited reliefIn context ↗ | Moderate |
Adverse events
- Aspirin“Aspirin makes it worse. So I went off. Leg clots returned and they gave out again.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Neuropathy & tingling
Severe nerve pain is back even though I’m back on it.
In context ↗ - POTS & dysautonomia
collapsed several times
In context ↗ - Breathlessness
breathing issues
In context ↗ - Gut problems
Constipation to the point I ended up with an anal fissure.
In context ↗ - Sleep problems
and limited relief
In context ↗ - Mast cell (MCAS) & allergies
The antihistamines have helped a LOT (also with my allergies)
In context ↗
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