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Long COVID Moderate → somewhat betterIll 16 months before improving or writing

Long COVID for months, somewhat better after ivermectin and hyperbaric oxygen

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving or writing
16 months
Last post
May 2023
In their words
  • Condition: Long COVIDI was injured by Pfizer and then got covid 3 months later, then several months of long covid. In context ↗
  • At worst: ModerateThen several months of misery, no exercise, constant panic attacks, etc later I got acute Covid. In context ↗
  • Now: Somewhat betterThe long covid symptoms faded with time but the vaccine injury (chest pain) is pernicious even after a year. In context ↗
  • Began after: a vaccinationI was injured by the Pfizer booster on 1/7/2022. I got pericarditis. In context ↗
Read from 17 of their posts and comments; links to the 13 this page draws on

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Summary

Creek 37083 got pericarditis from a Pfizer booster in January 2022, then months of misery and panic attacks, then COVID three months later with almost every symptom, followed by months of long COVID. Ivermectin shortened the long haul and mild hyperbaric oxygen helped their brain; long COVID faded with time but the vaccine-injury chest pain persisted a year. Prednisone caused neurological symptoms and rebound brain fog; an SSRI got them sleeping again.

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Asking aboutCreek 37083’s story

What they tried

Their words about each treatment
  • strict low amine diet · Helped a lotI got rid of it with a strict low amine diet. In context ↗
  • prednisone / steroids · WorseSo this time I tried 20 mg for 3 days, 10 mg for 1 day, then 2 days of 5mg before I stopped. It gave me insane neurological symptoms In context ↗
  • colchicine · No changeI’m on colchine and have been the whole time. It doesn’t do much for me. In context ↗
  • NSAIDs · No changeMy pericarditis hasn’t responded to NSAIDs or traditional cardio meds. In context ↗
  • Ivermectin · Helped a lotI took it during acute covid and it took my symptoms down dramatically, which I believe shortened my covid long haul In context ↗
  • Mirtazapine · HelpedYes I started it for long Covid insomnia and it got me sleeping again. In context ↗
  • mild hyperbaric oxygen therapy · HelpedMild hyperbaric oxygen therapy helped me last week and I am going everyday this week in hopes of clearing this. In context ↗
  • NAC · HelpedMagtein, NAC, Vit C, Vit D In context ↗
  • CBD · Not saidI’m taking NAC, CBD, adaptogens and eating mostly keto, anti-inflammatory and low histamine. In context ↗
  • Extra Sleepy Bear tea · HelpedThis tea knocks me right out: In context ↗
  • Boluoke (lumbrokinase) · HelpedSo far I have used Boluoke from Researched Nutritionals. It’s extremely expensive but has been helpful. In context ↗
  • LDN · HelpedYeah I was using LDN for a while. It was helpful for a certain period of time and then stopped being helpful. In context ↗
  • COVID vaccination as treatment · Not saidI had no reaction to the first two and got myopericarditis from the 3rd Pfizer shot. In context ↗

Approaches: Anticoagulants · Other drugs and medicines

Their path

Very severeSevereModerateMildNear normalRecoveredonset6 mo12 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
2022-01-07Pfizer booster caused pericarditisI was injured by the Pfizer booster on 1/7/2022. I got pericarditis. In context ↗Mild
2022-04acute Covid then months of long Covid with almost every symptomthen 3 months later I got horribly ill from Covid and have had long haul since In context ↗Moderate
2022-07-05prednisone caused neurological symptoms and brain inflammation to returnAfter stopping, I have had more awful neurological symptoms and the intense gripping pulsating brain inflammation from my first days of acute Covid came back. In context ↗MildCorticosteroid pulses
2022-08-04long haul eased back to the original vaccine injuryLong hauled for a few months, now I am back down to the original vax injury pretty much that is still here. In context ↗MildIvermectin
2023-01-28long Covid faded but vaccine-injury chest pain persistedThe long covid symptoms faded with time but the vaccine injury (chest pain) is pernicious even after a year. In context ↗Mild

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Heart symptoms & palpitationsThe long covid symptoms faded with time but the vaccine injury (chest pain) is pernicious even after a year. In context ↗
  • Anxiety & low moodseveral months of misery, no exercise, constant panic attacks In context ↗
  • Brain fogPrednisone gave me rebound Covid brain fog In context ↗
  • Sleep problemsYes I started it for long Covid insomnia and it got me sleeping again. In context ↗
  • Hair lossmy hair is falling out as of 3 weeks ago In context ↗
  • TinnitusI had Meniere’s (tinnitus now comes and goes since the vax) In context ↗
  • Gut problemsMy entire physiology has changed, including my skin, my hair, my digestion, etc. In context ↗

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