Long COVID
Moderate → near normalIll 9 months before improving or writingNeeds ongoing treatment
Homebound by long COVID, now close to normal on anticoagulants and low-histamine diet
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 9 months
- Last post
- Jun 2024
In their words
- Condition: Long COVID
I am a recovering longhauler
In context ↗ - At worst: Moderate
At my lowest I was likely moderate severity. Home bound on short term disability.
In context ↗ - Now: Near normal
Gym rat who has recovered and is back to hitting the weights hard again
In context ↗ - Began after: COVID
I first got sick summer 2022
Read from 92 of their posts and comments; links to the 39 this page draws on
- Apr 2024
- Nov 2023
- Jun 2024
- Feb 2023
- Feb 2023
- Mar 2023
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- Feb 2024
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- Apr 2023
Summary
Eagle 84778 fell ill with long COVID in August 2022 and was homebound on short-term disability by early 2023 with palpitations, dizziness, headaches and brain fog. They credit triple anticoagulant therapy, a low-histamine diet, gut treatment and tenofovir for reactivated EBV; they were back at work and the gym at 80-90% better, though headaches persisted and brain fog occasionally recurred. They spent thousands on medications; a COVID reinfection in April 2024 was treated with paxlovid.
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What they tried
What they credit
antihistamine diet / low histamine, gluten and dairy free· Helped a lotstellate ganglion block· Helped a lottriple therapy· Helped a lot · mainLDN· Helped a lotWellbutrin· Helped a lotTenofovir AF· Helped a lot · mainPepcid· HelpedAllegra· HelpedTENs unit vagal nerve stim· HelpedNatto· HelpedSerra· Helpedlumbo (lumbrokinase)· HelpedButyrate· Helpedvit c· HelpedL arginine· Helpedpycnogel· Helpedivermectin· Helped
Also tried
Niacin (Nicotinic acid)· Helped a lotMidodrine· Helped a lotbeta blocker· Helpedgym exercise / weight lifting· HelpedD Ribose· HelpedMirtazapine· Helpedoxygen concentrator· Helpedcardiac Miracle· Helpednicotine patches· Helpedpaxlovid· HelpedMetformin· Helpedfludrocortisone· Worsemelatonin· Not saidCBD· Not saidz-quil· Not saidSingulair· Not saidBPC-157· Not saidMOTs C· Not saidprobiotics· Not saidglutamine· Not saidcollagen· Not saidBenadryl· Not saidzinc· Not said
Their words about each treatment
- melatonin · Not said
Typically I take : melatonin , CBD, z-quil.
In context ↗ - beta blocker · Helped
See if doctor recommends beta blocker. They helped me some when it was really bad
In context ↗ - antihistamine diet / low histamine, gluten and dairy free · Helped a lot
Low histamine , gluten free diet with AM and PM antihistamines has been essential for me
In context ↗ - Pepcid · Helped
Pepcid is a must.
In context ↗ - Allegra · Helped
I also take Pepcid, Allegra to provide H1, H2 block.
In context ↗ - Singulair · Not said
As well as Singulair.
In context ↗ - Niacin (Nicotinic acid) · Helped a lot
the difference in energy was significant from the first dose
In context ↗ - stellate ganglion block · Helped a lot
The right side was done first and I felt no change. But the left wow. I think that was a big help.
In context ↗ - Midodrine · Helped a lot
Midodrine helped me a lot
In context ↗ - fludrocortisone · Worse
Fudrocortisone helps some , made me to anxious / nervous
In context ↗ - TENs unit vagal nerve stim · Helped
I purchased a TENs unit with Vagal nerve ear thingy. Do it at bedtime while me and the wife are watching TV . Find it relaxing and I am improving
In context ↗ - gym exercise / weight lifting · Helped
I started super light just to get my body moving again. Walked for cardio. Now I am basically back to normal exercise as my symptoms have improved
In context ↗ - D Ribose · Helped
I try to combat it with midodrine , D Ribose, and Niacin. Usually gets me up and moving.
In context ↗ - triple therapy · Helped a lot
It’s called triple therapy (aspirin , Plavix and Eliquis ) it was the cornerstone of my healing and recovery .
In context ↗ - Natto · Helped
I was on baby aspirin , Natto 16000fu , Serra 120,000, and Plavix 75mg for one month
In context ↗ - lumbo (lumbrokinase) · Helped
My low dose aspirin , Plavix , natto, Serra, lumbo combination is definitely working.
In context ↗ - BPC-157 · Not said
BPC-157 and MOTs C (can they not give these things easier names lol) I feel I am improving but I also take multiple other supplements
In context ↗ - Butyrate · Helped
I just started. Third dose today . A little early to give worthwhile feedback but I have noticed a start of more regular BMs as I am often constipated
In context ↗ - probiotics · Not said
I try to balance this with daily probiotics , glutamine, and collagen.
In context ↗ - LDN · Helped a lot
LDN and Wellbutrin have been life savers
In context ↗ - Mirtazapine · Helped
It got me back to sleeping then I got right off . Too strong for me
In context ↗ - Benadryl · Not said
Also I was taking Benadryl and melatonin with it
In context ↗ - Tenofovir AF · Helped a lot
If I had to guess what helped me Triple therapy , fixing my gut , and taking Tenofovir AF for my reactivated EBV have been the game changers.
In context ↗ - oxygen concentrator · Helped
first two mornings I felt really good though
In context ↗ - vit c · Helped
Followed by assisting with reperfusion and vascular / endothelial damage ( vit c L arginine , niacin , I love cardiac Miracle )
In context ↗ - L arginine · Helped
L arginine , pycnogel, cardio miracle cleaned up after the storm
In context ↗ - zinc · Not said
L-arginine / zinc
In context ↗ - nicotine patches · Helped
I tried it. I would not say I felt the incredible improvement as some have reported. I did feel some improved energy.
In context ↗ - ivermectin · Helped
I also respond well to ivermectin despite studies saying it’s useless
In context ↗ - paxlovid · Helped
I had covid again April 2024. took paxlovid, ivermectin and Metformin . Would def recommend.
In context ↗
Approaches: H1 antihistamines · H2 blockers · Anticoagulants · Antivirals · Diet · Other antidepressants · Other drugs and medicines · Supplements · Vagus nerve stimulation
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| August 2022 | Fell ill with long COVID; kept working through the first months in a fogfor the first 6 months I basically roamed around in a fog as I was still workingIn context ↗ | Mild | |
| early 2023 | Homebound, on short-term disability, in and out of hospitalAt my lowest I was likely moderate severity. Home bound on short term disability.In context ↗ | Moderate | |
| March 2023 | Turned a corner after starting triple anticoagulationI have most definitely turned a corner. My symptoms while still very much present seem to have improved significantly.In context ↗ | Moderate | Triple anticoagulant therapy |
| April 2023 | Going to the gym daily, rated himself 80% and preparing to leave disabilityNow 2 months later I’ve been to the gym everyday this week and am getting ready to come off STDIn context ↗ | Mild | Triple anticoagulant therapy |
| June 2023 | Working full time at 80-90%; dysautonomia and brain fog resolved, headaches remained10 months and about 80% some days closer to 90-95%In context ↗ | Mild | Triple anticoagulant therapy |
| June 2024 | Back to hard weight training, with occasional headaches and brain fog remainingGym rat who has recovered and is back to hitting the weights hard againIn context ↗ | Near normal |
Adverse events
- Fludrocortisone / Florinef“Fudrocortisone helps some , made me to anxious / nervous .” In context ↗ Mood or psychiatric effects
- Famotidine (Pepcid)“So I deal with the gut side effects for now” In context ↗ Gut side effects
- Triple anticoagulant therapy“Herx reaction . I did too. Mine was a little less pronounced because I started natto and Plavix before all 3.” In context ↗ Herx / die-off reaction
Symptoms mentioned
Anxiety & low moodBrain fogGut problemsHair lossHeadaches & migraineHeart symptoms & palpitationsMast cell (MCAS) & allergiesNeuropathy & tinglingPOTS & dysautonomiaPost-exertional malaiseSleep problems
Their words about their symptoms
- Sleep problems
My sleep has been terrible making symptoms worse
In context ↗ - Headaches & migraine
I still get headaches
In context ↗ - Brain fog
Occasional random brain fog
In context ↗ - POTS & dysautonomia
Symptoms that have fully resolved would be like dysautinomia / POTs stuff
In context ↗ - Heart symptoms & palpitations
In 2022 I started having palpitations
In context ↗ - Neuropathy & tingling
the numbness is basically gone
In context ↗ - Anxiety & low mood
Prior to LC I had very little experience with anxiety and depression.
In context ↗ - Gut problems
I am often constipated
In context ↗ - Hair loss
Head hair still shedding however
In context ↗ - Mast cell (MCAS) & allergies
my histamine reactions were probably my worst symptom
In context ↗
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