Miruvor
Sign up
ME/CFS Moderate → no benefit

ME/CFS with instant exercise exhaustion and pain, still drumming and in bed a lot

Condition
ME/CFS
At worst
Moderate (mostly housebound)
Ill for
Not stated
Last post
Jun 2024
In their words
  • Condition: ME/CFSsince i was very young, way before i even knew of CFS In context ↗
  • At worst: Moderaterunning, lifting, or any actual exercise exhausts me immediately and i end up in extreme pain and dazed after only a couple seconds ... diet of shitty easily-accessible no prep food and bed rotting In context ↗
  • Now: No benefitany actual exercise exhausts me immediately and i end up in extreme pain and dazed after only a couple seconds In context ↗
Read from 1 of their posts and comments; links to the one this page draws on

Request to remove this story

Summary

A Reddit user in r/cfs described a major health decline, with any real exercise exhausting them immediately and leaving them in extreme pain and dazed within seconds. They still drummed regularly despite a resting heart rate in the 140s that spiked to the 180s and left them drained afterwards. They ate mainly easy no-prep food and spent a lot of time in bed.

Ask Miruvor AI

Asking aboutZephyr 49587’s story

What they tried

Their words about each treatment
  • running and lifting · Worserunning, lifting, or any actual exercise exhausts me immediately and i end up in extreme pain and dazed after only a couple seconds In context ↗
  • drumming · Worsemy body is basically completely fine with it, other than the fact my heart rate will rest in the 140s, spike to the 180s. afterwards im unfortunately completely drained In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedWhere they were
years agomajor health decline after years of being fit and muscularyears ago before my major health decline, i used to love doing all of those things and staying fit/muscular In context ↗Not stated
2024-06-04still ill: any exercise exhausts them at once, drums but is drained after, much time in bedany actual exercise exhausts me immediately and i end up in extreme pain and dazed after only a couple seconds In context ↗Moderate

Symptoms mentioned

Their words about their symptoms
  • Pain & fibromyalgiai end up in extreme pain In context ↗
  • Brain fogdazed after only a couple seconds In context ↗
  • Heart symptoms & palpitationsmy heart rate will rest in the 140s, spike to the 180s In context ↗

Ask Miruvor AI

Asking aboutZephyr 49587’s story

A little hope, every Sunday

New recovery stories and data-driven research on ME/CFS and long COVID. Ideas worth considering, and the evidence behind them.

Free · Unsubscribe anytime