ME/CFS
Mild → near normalIll 3 years before improving or writing
ME/CFS as a teen, bad for about three years, now near normal but headaches and IBS persist
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 3 years
- Last post
- Oct 2025
In their words
- Condition: ME/CFS
I got mono when I was 13 and was diagnosed with CFS when I was 14.
In context ↗ - At worst: Mild
I had it pretty bad for about three years.
In context ↗ - Now: Near normal
for the most part CFS is not a major health issue for me
In context ↗ - Began after: glandular fever or EBV
I was diagnosed after I had mono.
Summary
Moon 86166 got mono at 13 and was diagnosed with CFS at 14, battling it through high school before a specialist called it remission around age 19-20. Now 52, they have taught for 21 years, but chronic daily headaches, IBS and concentration problems have persisted for decades, with occasional flares and a couple of relapses. No treatment is credited; they had it bad for about three years before improving into remission.
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Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| age 13 | got mono, then diagnosed with CFS at 14I got mono when I was 13 and was diagnosed with CFS when I was 14.In context ↗ |
| age 14-16 | bad years through high schoolI had it pretty bad for about three years.In context ↗ |
| around age 16 | started to improveI had it pretty bad for about three years. I started to improveIn context ↗ |
| around age 19-20 | went into remissionfinally going into remission around 19In context ↗ |
| over the years | flares and a couple of relapsesI have had some flares and what I believe are a couple of relapses over the years.In context ↗ |
| 2025-10-30 | mostly in remission, still teachingfor the most part CFS is not a major health issue for meIn context ↗ |
Symptoms mentioned
Their words about their symptoms
- Headaches & migraine
chronic, daily headaches
In context ↗ - Brain fog
issues with concentration
In context ↗ - Pain & fibromyalgia
I have recently been diagnosed with some pain conditions
In context ↗ - Anxiety & low mood
I do live with the anxiety that I might not be able to work someday
In context ↗