Moderate-severe ME/CFS, now much better after cutting back to part-time work
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 2 years
- Last post
- Dec 2025
In their words
- Condition: ME/CFS
I probably had mild ME/CFS prior but surgery + the stress of completing projects before I took a month off from work put me into the Moderate-Severe category
In context ↗ - At worst: Moderate
At first I was moderate and now I'm closer to mild and no longer fully housebound
In context ↗ - Now: Much better
Thankfully I've been able to get back to Mild again but I am still clearly disabled
In context ↗ - Began after: injury or surgery
recovering from surgery triggered me to get so sick
Summary
Fell ill at 24; recovering from gender-transition surgery plus work stress turned probable mild ME/CFS into moderate-severe ME/CFS. A February 2024 crash left them on the couch for days and able to do little. They cut to part-time remote work and improved gradually, reaching mild by late 2025 but still clearly disabled and grieving. No ME treatment is credited; they improved somewhat after cutting down.
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What they tried
Their words about each treatment
- supplements (for low iron) · Helped
I had low iron and severely low vitamin D. I was put on supplements which initially helped.
In context ↗
Approaches: Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2023 | mild fatigue before surgeryIn hindsight, I probably had mild ME/CFS priorIn context ↗ | Mild |
| February 2024 | crashed, could only lie on the couch and napthe only thing I could do for several days was drag myself to the couch and napIn context ↗ | Moderate |
| May 2024 | improved somewhat, still far below pre-illness energySince my crash, I have improved somewhat but I'm nowhere near the energy levels I had pre-crash or pre-onset-of-noticeable-fatigue.In context ↗ | Mild |
| December 2025 | back to mild, still clearly disabledThankfully I've been able to get back to Mild again but I am still clearly disabledIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Brain fog
I do get the cognitive impairment/brain fog, difficulty with thinking and speaking
In context ↗ - Sleep problems
disrupted sleep
In context ↗ - Pain & fibromyalgia
dull muscle soreness
In context ↗ - Light & noise sensitivity
increased sensory sensitivity
In context ↗
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