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Long COVID Moderate → much betterIll 3.5 years before improving or writing

Long COVID with brain fog and extreme fatigue, now much better

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving or writing
3.5 years
Last post
Jul 2023
In their words
  • Condition: Long COVIDI've been long-hauling since mid-2020 (infected late March 2020) In context ↗
  • At worst: Moderateextreme fatigue that forced me to leave work for 2 months In context ↗
  • Now: Much betterThankfully most have gone but I've been stuck with breathing issues and varying degrees of fatigue. In context ↗
  • Began after: COVIDinfected late March 2020
Read from 4 of their posts and comments; links to the 4 this page draws on

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Summary

After COVID in late March 2020 they felt mostly back to normal until June 2020, when breathing trouble, brain fog, chest pain, palpitations and extreme fatigue left them off work for two months and 40 lbs lighter. Over the next two years fatigue and breathing eased, though cold still triggered breathing problems and insomnia kept work hours short. By mid-2023 most symptoms had gone, leaving breathing issues and varying degrees of fatigue.

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What they tried

Also tried

spicy food· Helped · wore off
Their words about each treatment
  • spicy food · HelpedAt some point I ate something spicy to try and clear it out that way. Later in the evening my breathing improved and the soreness wasn't as bad In context ↗

Their path

Very severeSevereModerateMildNear normalRecoveredonset12 mo2 y3 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
March 2020COVID symptoms hit, then felt mostly back to normalSymptoms hit me 3.29.2020 but I felt mostly back to normal until a few months later. In context ↗Near normal
June 2020breathing trouble, brain fog, chest pain, palpitations and extreme fatigue; left work for two monthsextreme fatigue that forced me to leave work for 2 months In context ↗Moderate
2022-01-07fatigue and breathing much less severe; housebound except for workIt's more manageable now, fatigue and breathing are much less severe but still bad enough to keep me from leaving the house except to work. In context ↗Mild
2022-12-13chest soreness and breathing flareI'm sore again today and having a hard time breathing. My throat feels tighter than usual as well. In context ↗Mild
2023-07-06most symptoms gone, stuck with breathing issues and varying fatigueThankfully most have gone but I've been stuck with breathing issues and varying degrees of fatigue. In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • BreathlessnessI've been stuck with breathing issues and varying degrees of fatigue. In context ↗
  • Brain fogeventually was hit with brain fog (2-3 days) In context ↗
  • Heart symptoms & palpitationsintermittent chest pain, heart palpitations (or something like it, mostly when trying to sleep) In context ↗
  • Sleep problemsthe insomnia keeps my work window very short (can't usually wake up before 12-1pm) In context ↗

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