Couch-bound with long COVID and POTS, nearly back to normal after pacing and beta blocker
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- Not stated
- Last post
- Feb 2026
In their words
- Condition: Long COVID
diagnosed with long covid (dysautonomia/POTS)
In context ↗ - At worst: Severe
I was on disability and couch-bound at my worst.
In context ↗ - Now: Near normal
I've (30 F) mostly recovered ... My life is back.
In context ↗
Read from 23 of their posts and comments; links to the 14 this page draws on
Summary
Cove 81054 got long COVID with POTS/dysautonomia in April 2022 and was couch-bound and on disability at her worst. Strict pacing, two COVID boosters and a beta blocker brought slow improvement, and famotidine, omeprazole, probiotics and a low-histamine diet helped her gut. By mid-2024 she was mostly recovered, walking 15,000 steps, though cardio and long standing still limited her.
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What they tried
What they credit
Also tried
Their words about each treatment
- strict pacing · Helped a lot
very slow, mild improvements with strict pacing
In context ↗ - famotidine (pepcid) · Helped a lot
Pepcid 2x a day completely got rid of the gnawing stomach pain I had
In context ↗ - PPI (omeprazole) · Helped a lot
After I did 3 weeks of a PPI this past December (on top of famotidine and extra strength align), they have completely disappeared.
In context ↗ - probiotics (Align brand) · Helped
greatly calmed down when I started famotidine (pepcid) and probiotics (the align brand specifically)
In context ↗ - ginger pills, tea and chews · Helped
ginger pills (take with a full glass of water), or ginger chews
In context ↗ - smaller, frequent meals · Helped
smaller, frequent meals
In context ↗ - kefir · Helped
just drinking a cup of kefir from a day is working much better for me
In context ↗ - psyllium (Metamucil) · Helped
I've started a serving of psyllium (prebiotic), sunfiber (prebiotic), and kefir (probiotic) every day for about 2 months now.
In context ↗ - zyrtec · Helped
I started taking zyrtec and eating less histamine-heavy foods and I think it really did help my stomach issues.
In context ↗ - betablocker · Helped a lot
Betablocker helped the most medication-wise.
In context ↗ - slowly adding in light exercise · Helped
slowly adding in light exercise once I felt it was alright again
In context ↗ - therapy · No change
Therapy didn't help me through this much either.
In context ↗ - healing affirmations / guided meditation (Insight Timer) · Helped
listening to healing affirmations (shout out insight timer app) multiple times a day had a big impact on me
In context ↗ - water, electrolytes and salt pills (Klaralyte) · Helped
so. much. water. and salt pills.
In context ↗ - bluelight glasses · Helped
bluelight glasses. Just cheap ones from amazon help me a lot.
In context ↗ - time · Helped
time (annoying, but it got better each month)
In context ↗
Approaches: Beta-blockers · Pacing · Physiotherapy and rehab
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 7 months after onset: the story doesn’t say how ill they were before that. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| about 7 months in | rock bottom: couch-bound and on disabilityI was on disability and couch-bound at my worst.In context ↗ | Severe | |
| October 2023 | big improvement after 2023 booster, no PEM, sleeping through the nightalmost three weeks out of my latest shot and I have slept through the night the past week!! I walked 15,000 steps for a work event last weekIn context ↗ | Mild | |
| July 2024 | mostly recovered, life back, still limited by standing and exerciseI've (30 F) mostly recovered and rarely have POTS symptoms anymore unless I overdo itIn context ↗ | Near normal | Pacing and the energy envelope |
| February 2026 | feeling much better for the past year, five weeks pregnantI've been feeling much better the past year or so and just found out I'm 5 weeks pregnant.In context ↗ | Near normal |
Symptoms mentioned
Their words about their symptoms
- Gut problems
I'm still experiencing blood pooling, GERD, and very minor vertigo at night
In context ↗ - Post-exertional malaise
I have had 0 PEM
In context ↗ - POTS & dysautonomia
I've (30 F) mostly recovered and rarely have POTS symptoms anymore unless I overdo it
In context ↗ - Brain fog
All of my creativity and mental clarity is back now too.
In context ↗ - Sleep problems
I have slept through the night the past week!!
In context ↗ - Tinnitus
All my tinnitus went away.
In context ↗ - Anxiety & low mood
I am filled with anxiety about getting reinfected
In context ↗
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