Long COVID unable to walk, somewhat better; credits B vitamins and probiotics
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 3 years
- Last post
- Sep 2024
In their words
- Condition: Long COVID
I have Lyme disease and Long Covid.
In context ↗ - At worst: Severe
I hope what I’m doing works cuz I want to walk again.
In context ↗ - Now: Somewhat better
Is everything gone no, still can’t walk. But some things are better.
In context ↗ - Began after: COVID
The damage the first COVID’s have done to my body.
Read from 14 of their posts and comments; links to the 13 this page draws on
Summary
Swan 55077, 47, had had Lyme disease since age 7 and developed long COVID about three years before writing, becoming unable to walk. They credited high protein, B vitamins (B1 cleared their POTS), vitamin D 20,000 IU daily, glutamine and gut probiotics with improving memory and returning feeling to their feet. They still could not walk in September 2024, and hair lost to COVID had not regrown.
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What they tried
What they credit
Their words about each treatment
- good bugs for the gut biome · Helped
Good bugs for the gut biome helped me but still dizzy.
In context ↗ - B1 · Helped a lot
I started taking B1 an mine personally went away.
In context ↗ - glutamate · Helped
I’m finding glutamate is helpful if you’re looking.
In context ↗ - glutamine · Helped
I landed on glutamine turning into glutathione repairing the small intestine
In context ↗ - high protein diet · Helped
My brain is coming back after the protein. I remember better now.
In context ↗ - B vitamins · Helped
Good B vitamins helped my heart.
In context ↗ - vitamin D · Helped
The major help is taking vitamin D daily. I take 20,000 Iu a day.
In context ↗ - B12 · Helped
The cure that I’m stumbling upon for myself is nutrition. Mainly B12.
In context ↗ - Lorazepam · Not said
No I take Lorazepam and Neurontin.
In context ↗ - clonozepam · No change
I believe I tried clonozepam but having Lyme very little works on me. It didn’t work unfortunately.
In context ↗
Approaches: Amino acids and carnitine · Diet · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 2.9 years after onset: the story doesn’t say how ill they were before that. 3 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| about 2021 (3 years before Sept 2024) | COVID infection leading to long COVIDI wish they took seriously 3 years ago. The damage the first COVID’s have done to my body.In context ↗ | Not stated | |
| 2023-12-09 | gut biome 'good bugs' helped, still dizzyGood bugs for the gut biome helped me but still dizzy.In context ↗ | Not stated | Probiotics and fermented foods |
| 2024-05-20 | POTS went away after vitamin B1I started taking B1 an mine personally went away.In context ↗ | Not stated | Thiamine / benfotiamine |
| 2024-07-31 | unable to walkI can’t lwalk right now.In context ↗ | Severe | |
| 2024-09-25 | nutrition changes; feeling returning to feet, still cannot walkI still can’t walk but I feel the bottom of my feet first time in years.In context ↗ | Severe |
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
I had POTS and found out it was a B1 deficiency.
In context ↗ - Brain fog
I had where I forgot so much my mom thought I had Dementia.
In context ↗ - Heart symptoms & palpitations
I had tachycardia, pots, Lyme, Lc, Epilepsy
In context ↗ - Neuropathy & tingling
I still can’t walk but I feel the bottom of my feet first time in years.
In context ↗ - Hair loss
My hair I lost chunks last time hasn’t grown back.
In context ↗
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