Long COVID
Mild → no benefitIll for 6 monthsNeeds ongoing treatment
Twitching and breathlessness with long COVID, still ill after a carnivore diet and vitamins
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill for
- 6 months
- Last post
- Jun 2024
In their words
- Condition: Long COVID
Had LC for a few months now
In context ↗ - At worst: Mild
I also noticed that when i climb stairs my heart beats heavy and i’m feel winded
In context ↗ - Now: No benefit
Never goes away unfortunately. I can only mask the anxiety with constant edible use.
In context ↗ - Began after: COVID
getting covid multiple times
Read from 7 of their posts and comments; links to the 7 this page draws on
Summary
A 23-year-old man developed neck jerks and body twitches about 2.5 months before February 2024; by March he also had a heavy heartbeat and breathlessness on stairs, and he linked his symptoms to repeated COVID infections. Six days into a strict carnivore diet and vitamins, his twitching improved moderately, but two weeks of TTFD brought worse waves and tingling. Lactoferrin, lysine and dandelion root raised his energy and let him tolerate cannabis; by June 2024 he was still ill and suicidal.
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What they tried
Also tried
strict carnivore diet· Helpedlactoferrin (Jarrow freeze dried)· Helpedl-lysine· Helpeddandelion root· Helpedallegra 24hr· Helpedpepcid· Helpedbenadryl· Helpedcaffeine· Helpededibles (weed)· HelpedTTFD· WorseB Complex· Not saidBenfothimine· Not saidNAC· Not saidmagnesium (malate and glycinate)· Not saidpotassium bicarbonate· Not said
Their words about each treatment
- strict carnivore diet · Helped
6 days into the carnivore diet and taking vitamins
In context ↗ - B Complex · Not said
B Complex 1x a day
In context ↗ - Benfothimine · Not said
Benfothimine 600mg 2x a day
In context ↗ - NAC · Not said
NAC 600mg 1x a day
In context ↗ - magnesium (malate and glycinate) · Not said
Mag Malate 200mg 1x a day ... Mag Glycinate 200mg 1x a day
In context ↗ - TTFD · Worse
after taking 400mg TTFD for 2 weeks i initially saw improvements then random waves of symptoms getting worse
In context ↗ - potassium bicarbonate · Not said
4500 potassium bicarbonate
In context ↗ - lactoferrin (Jarrow freeze dried) · Helped
daily 1000mg lactoferin, 1500mg l-lysine, 50mg nightly benadryl, and carnivore diet
In context ↗ - l-lysine · Helped
amazon lysine complex 3000mg
In context ↗ - dandelion root · Helped
and 2 drops of dandelion root a day
In context ↗ - benadryl · Helped
50mg benadryl at night
In context ↗ - edibles (weed) · Helped
a shit ton of edibles to keep morale up
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| late 2023 | neck jerks and body twitches beganRecently for the past 2.5 months i’ve been having neck jerks and body twitches.In context ↗ | Mild | |
| 2024-02-10 | carnivore diet and vitamins cut twitching by about half6 days into the carnivore diet and taking vitamins i feel like my twitching has improved moderately.In context ↗ | Mild | Carnivore diet |
| 2024-03-11 | TTFD gave initial improvement then waves of worse symptoms and tinglingi initially saw improvements then random waves of symptoms getting worse and even weird tingling/vibrations throughout my body and head.In context ↗ | Mild | Thiamine / benfotiamine |
| 2024-05-20 | more energy outside crashes and could tolerate cannabisit really helps with my energy levels too if i’m not in a crash.In context ↗ | Mild | Lactoferrin and colostrum |
| 2024-06-09 | still ill and suicidalI’m suicidal too but i’m trying to keep it together.In context ↗ | Mild |
Adverse events
- Thiamine / benfotiamine“after taking 400mg TTFD for 2 weeks i initially saw improvements then random waves of symptoms getting worse and even weird tingling/vibrations throughout my body and head.” In context ↗ Made symptoms worse
Symptoms mentioned
Anxiety & low moodBreathlessnessHeart symptoms & palpitationsNeuropathy & tinglingPost-exertional malaise
Their words about their symptoms
- Post-exertional malaise
if i’m not in a pem crash
In context ↗ - Neuropathy & tingling
weird tingling/vibrations throughout my body and head
In context ↗ - Heart symptoms & palpitations
when i climb stairs my heart beats heavy
In context ↗ - Breathlessness
i’m feel winded
In context ↗ - Anxiety & low mood
I can only mask the anxiety with constant edible use.
In context ↗