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Long COVID Outcome unclear

Long COVID and presumed poor perfusion, no relief from fludrocortisone or midodrine

Condition
Long COVID
At worst
Not stated
Ill for
Not stated
Last post
Sep 2026
In their words
Read from 2 of their posts and comments; links to the 2 this page draws on

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Summary

The user reported no relief at all from fludrocortisone 0.2 mg, midodrine 10 mg twice a day and salt plus water, taken for what they believed was poor perfusion despite no low blood pressure. Guanfacine 1 mg extended release for 25 days also yielded no results, and their catecholamines did not raise above the threshold for hyperPOTS. They did not describe how long they had been ill or how they were functioning overall.

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What they tried

Their words about each treatment
  • flucortisone · No change0.2mg of flucortisone ... didn't help - not even at all In context ↗
  • midodrine · No change10mg midodrine 2x per day and salt plus water didn't help - not even at all In context ↗
  • salt plus water · No changesalt plus water didn't help - not even at all In context ↗
  • guanfacine 1mg ER · No changeguanfacine 1mg ER for 25 days didnt yield any results In context ↗

Symptoms mentioned

Their words about their symptoms
  • POTS & dysautonomiaMy cathecolamines didn't raise above treshold for hyperPOTS In context ↗

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Asking aboutKestrel 44516’s story

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