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Long COVID Mild → relapsedIll 21 months before improving or writing

Long COVID fatigue and brain fog; reflux meds and diet helped gut, reinfection relapse

Condition
Long COVID
At worst
Mild (working or studying, with limits)
Ill before improving or writing
21 months
Last post
Nov 2022
In their words
  • Condition: Long COVIDI had covid in February 2021 & honestly haven't felt right since. My doctor diagnosed me with long covid. In context ↗
  • At worst: MildI work in the office for 2 days & work remotely for 3 days per week. My doctor isn't happy with me doing that, she would prefer if I went out on sick leave but I'm trying to keep working as long as I can. In context ↗
  • Now: RelapsedI thought most of my long covid symptoms had calmed down with the exception of the tiredness but I've felt terrible for the last couple of months. In context ↗
  • Began after: COVIDI had covid in February of this year.
Read from 20 of their posts and comments; links to the 12 this page draws on

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Summary

Crocus 55271 developed long COVID after COVID in February 2021, with extreme tiredness, brain fog, acid reflux, palpitations and breathlessness. They kept working, but short walks triggered relapses that left them exhausted and off sick. Reflux medication and a bland diet helped their gut, but a March 2022 reinfection reset their progress; by late 2022 they felt terrible, with vertigo, headaches and buzzing in their ears.

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What they tried

Also tried

medication for acid reflux· Helpedcutting out foods· Helpedantibiotics for a suspected UTI· No changeeardrops· No changemedication for the vertigo· No changemorning workouts and walks· Worseblood pressure medication· Not saidtreatment for thrush· Not saidpain killers· Not said
Their words about each treatment
  • blood pressure medication · Not saidI have high blood pressure which I'm on medication for In context ↗
  • morning workouts and walks · WorseI tried working out in the mornings but it made me feeling worse than ever In context ↗
  • antibiotics for a suspected UTI · No changeIn total she put me on antibiotics 3 times & they didn't seem to actually help much In context ↗
  • medication for acid reflux · HelpedIt seemed to help & stopped me being in so much pain from the acid In context ↗
  • cutting out foods · Helpedif it helps cut back on the pain, cramps & acid then I'm all for it In context ↗
  • treatment for thrush · Not saidI developed thrush which I treated In context ↗
  • pain killers · Not saidI started taking pain killers again & limited my food intake In context ↗
  • eardrops · No changeShe put me on eardrops & medication for the vertigo In context ↗

Their path

What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happened
February 2021COVID-19, followed by long COVIDI had covid in February 2021 & honestly haven't felt right since. In context ↗
September 2021better week on annual leave, resting at homeLast week I felt better than I have in a good while but I still had the extreme tiredness (just slightly less than previous months) In context ↗
September 2021relapse after a short walk with their niece; off sick from workI actually feel like I can't do anything. Even just going to the shop for bread seems to take it out of me. In context ↗
December 2021bowel problems: severe cramps, diarrhoea, blood and mucusLast Monday I started getting really bad pains & rushed to the toilet. In context ↗
March 2022COVID reinfection reset their progressI was reinfected with covid in March just gone so my long covid journey feels like it has just reset to the beginning all over again. In context ↗
November 2022vertigo, headaches, ear buzzing and neck pain; felt terrible for monthsI've felt terrible for the last couple of months. In context ↗

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseI've relapsed twice in the last couple of months & it usually is because I simply go for a short walk. In context ↗
  • Brain fogI was feeling better for a few weeks & then just suddenly completely exhausted & foggy. In context ↗
  • POTS & dysautonomiaI started having insane dizzy spells, headaches & buzzing in my ears. In context ↗
  • Sleep problemsI was getting nearly 10 hours of sleep each night but within about an hour of being awake each morning I was back to being extremely tired In context ↗
  • Pain & fibromyalgiaextreme tiredness, brain fog, aches & pain & a few other issues In context ↗
  • Headaches & migraineI woke up with a horrible headache & felt absolutely terrible. In context ↗
  • Gut problemsI've recently started having issues with what I'm thinking is IBS. In context ↗
  • Heart symptoms & palpitationsI could feel my heart pounding in my chest In context ↗
  • Anxiety & low moodthe results always freak me out & then I get into my own head In context ↗
  • TinnitusI'm still having the buzzing, headaches, dizziness & neck pain In context ↗

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