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ME/CFS Severe → no benefit

Severe PEM and crashes with ME/CFS, no benefit from Chinese herbal tonics

Condition
ME/CFS
At worst
Severe (mostly bedbound)
Ill for
Not stated
Last post
Oct 2026
In their words
  • Condition: ME/CFSI think yang tonics and yin tonics are key for severe PEM (in my experience anyways) In context ↗
  • At worst: SevereI think yang tonics and yin tonics are key for severe PEM (in my experience anyways) In context ↗
  • Now: No benefitthe same company also makes a formula called AllTonic which I find to be less intense and def has helped my intense crashes In context ↗
Read from 6 of their posts and comments; links to the 5 this page draws on

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Summary

A person with ME/CFS reported severe PEM and intense crashes, ongoing pain, wonky sleep and cold sensitivity, relying on family caregivers at home. They credited Chinese herbal yang tonics, including Youngain and AllTonic from ActiveHerb, as very helpful for PEM and crashes, and used cinnamon and ginger for feeling cold. Later comments described decorating a bedroom over 4+ years with remote blinds and sheepskins.

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What they tried

Their words about each treatment
  • Youngain (ActiveHerb) · Helpedthe formula called Youngain from ActiveHerb has been very helpful for me In context ↗
  • AllTonic · Helpeddef has helped my intense crashes In context ↗
  • remote controlled blinds · Helpedit has been a game changer for autonomy and to support my wonky sleep cycles In context ↗
  • moving to a quieter/rural house · Not saidwe moved to a quieter/rural house for healing support In context ↗

Their path

Very severeSevereModerateMildNear normalRecovered

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
—ME/CFS with severe PEM, intense crashes, pain and poor sleepyang tonics and yin tonics are key for severe PEM (in my experience anyways) In context ↗Severe
2025-02-28Chinese herbal yang tonics helped PEM and crashesthe formula called Youngain from ActiveHerb has been very helpful for me In context ↗Severe
2026-10-24still troubled by the cold in autumn; manages with cinnamon, ginger and warm clothingive been noticing it more this fall In context ↗Severe

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseyang tonics and yin tonics are key for severe PEM (in my experience anyways) In context ↗
  • Pain & fibromyalgiaSheepskins to sleep on (expensive but helpful for my pain and keeping me warm in winter) In context ↗
  • Sleep problemsto support my wonky sleep cycles In context ↗
  • Temperature regulationkeeping me warm in winter In context ↗

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