Mostly in bed with long COVID, now working half the hours, credits acupuncture and diet
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 3 years
- Last post
- Mar 2025
In their words
- Condition: Long COVID
I was infected February 2022
In context ↗ - At worst: Severe
spent 95% of my time in bed, could not eat anything without a histamine reaction, could not look at a computer
In context ↗ - Now: Much better
I still have lots of gastrointestinal issues, fatigue, sleep issues, sensitivity to light and sound, some tinnitus, brain fog, headaches...but I can walk my dogs and play tug with them
In context ↗ - Began after: COVID
I was infected February 2022
In context ↗
Summary
They caught COVID in February 2022 and from August 2022 spent 95% of their time in bed for over a year, unable to work, eat without histamine reactions or tolerate light, sound or screens. They credit acupuncture with Chinese herbs, a low-histamine diet, supplements and a mind-body study with slow gains, and now work about half their old hours remotely. Fatigue, gut and sleep problems, light and sound sensitivity, tinnitus and brain fog persist.
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What they tried
What they credit
Also tried
Their words about each treatment
- Lexapro · Worse
It made me extra tired, fatigued, dizzy, etc, and felt like it was exacerbating my long COVID symptoms
In context ↗ - low histamine diet · Helped
I went on a low histamine diet and took antihistamines type 1 and 2 it helped manage the anxiety and panic attacks.
In context ↗ - acupuncture · Helped
this was the most effective "outside" treatment I experienced
In context ↗ - cupping · Not said
I had two sessions of cupping
In context ↗ - Chinese herbs · Helped
I don't know if that or time helped but I have returned after to more 'normal' feeling sleep
In context ↗ - melatonin · No change
Tried melatonin but it didn't work for me.
In context ↗ - Magnesium · Helped
most effective for me personally was ... Magnesium
In context ↗ - NAC · Helped
most effective for me personally was ... NAC
In context ↗ - Quercetin · Helped
most effective for me personally was ... Quercetin
In context ↗ - Tumeric and black pepper · Helped
most effective for me personally was ... Tumeric and black pepper
In context ↗ - Omega 3 fish oils · Helped
most effective for me personally was ... Omega 3 fish oils
In context ↗ - Vitamin C · Helped
most effective for me personally was ... Vitamin C
In context ↗ - Lactoferrin · Helped
most effective for me personally was ... Lactoferrin
In context ↗ - Long COVID study at Beth Israel · Helped
some of that dissipated over time through specific mental / physical efforts
In context ↗
Approaches: Alternative therapies · Diet · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 6 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| February 2022 | COVID infection, then long COVIDI was infected February 2022In context ↗ | Not stated |
| August 2022 - September 2023 | bedridden, unable to work or tolerate stimulationfrom August 2022 - September 2023 I was not able to work ... spent 95% of my time in bedIn context ↗ | Severe |
| September 2023 | returned slowly to remote workIn September 2023 for financial need I returned slowly to remote work and now can work about half of the hours I used toIn context ↗ | Moderate |
| 2025-03-08 | working part-time, walking dogs, but still symptomaticI still have lots of gastrointestinal issues, fatigue, sleep issues, sensitivity to light and sound, some tinnitus, brain fog, headaches...but I can walk my dogsIn context ↗ | Mild |
Adverse events
- Escitalopram (Lexapro)“It made me extra tired, fatigued, dizzy, etc, and felt like it was exacerbating my long COVID symptoms.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I have to build in recovery time in between any out of the house commitments
In context ↗ - Brain fog
some tinnitus, brain fog, headaches
In context ↗ - POTS & dysautonomia
intense vertigo and dizziness with any stimulation
In context ↗ - Mast cell (MCAS) & allergies
could not eat anything without a histamine reaction
In context ↗ - Sleep problems
I was sleeping 10-12 hours a day at least and never felt rested
In context ↗ - Gut problems
I still have lots of gastrointestinal issues
In context ↗ - Light & noise sensitivity
I could not listen to music, look at sunlight, or light in general
In context ↗ - Breathlessness
Going up and down stairs would take the breath out of me
In context ↗ - Vision problems
Tinnitus, floaters
In context ↗
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