Long COVID
Outcome unclearIll for 6 yearsNeeds ongoing treatment
Long COVID with insomnia, numbness and word-finding trouble; tried prazosin and quetiapine
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill for
- 6 years
- Last post
- Dec 2025
In their words
- Condition: Long COVID
these are all the outcomes of post-Covid syndrome
In context ↗ - At worst: Moderate
I lost use purposeful use of my right arm and cognitive deficits
In context ↗ - Began after: COVID
I suspect I may have been an early infection.
Summary
A healthcare worker of 45 suspected an early COVID infection in late 2019/early 2020. She later had kidney failure, a suspected stroke in October 2020 that left her right arm unusable, numbness, word-finding trouble and depression, plus a spinal injury that already had her in a wheelchair. In 2025 she said near-total insomnia eased with Cardura or prazosin, quetiapine and gabapentin, letting her sleep about 12 hours.
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What they tried
Also tried
Cardura or prozosin· Helped a lotseroquel· Helped a lotgabapentin· Helpedfluid resuscitation· Helped
Their words about each treatment
- Cardura or prozosin · Helped a lot
I finally found help with 3-4mg of Cardura or prozosin
In context ↗ - seroquel · Helped a lot
then 50-100mg of seroquel. It was life-changing.
In context ↗ - gabapentin · Helped
If I add 1000mg of gabapentin I sleep for about 12 hours.
In context ↗ - fluid resuscitation · Helped
it went away with fluid resuscitation
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| late December/early January | suspected early COVID infection with high fever and uncontrolled asthmaI was extremely congested, high fever, asthma was uncontrollableIn context ↗ | Moderate |
| October | suspected stroke, lost purposeful use of right arm and had cognitive deficitsI lost use purposeful use of my right arm and cognitive deficitsIn context ↗ | Severe |
| 2025-12-23 | sleep improved on prazosin, quetiapine and gabapentinIt was life-changing. If I add 1000mg of gabapentin I sleep for about 12 hours.In context ↗ | Not stated |
Symptoms mentioned
Their words about their symptoms
- Brain fog
I compete lose my thought mid-sentence and often cannot say the word I’m thinking about
In context ↗ - Sleep problems
I slept two hours if I was lucky. I would go days without sleep.
In context ↗ - Neuropathy & tingling
numbness (continuously) in both my feet and my right upper leg
In context ↗ - Anxiety & low mood
I have been depressed
In context ↗