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ME/CFS Moderate → somewhat betterIll 2 years before improving or writing

ME/CFS for two years and unable to work, now somewhat better after breathing retraining

Condition
ME/CFS
At worst
Moderate (mostly housebound)
Ill before improving or writing
2 years
Last post
Nov 2014
In their words
  • Condition: ME/CFSI've had CFS for 2 years now In context ↗
  • At worst: ModerateNot being able to work is very frustrating and difficult. In context ↗
  • Now: Somewhat betterI have recently seen improvement in my energy levels by watching the way I breathe. In context ↗
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

Nightjar 73890 was 19 when CFS began and had been ill for two years by November 2014, at 21; they could not work and found that very frustrating. Breathing retraining at Breathing Works, which taught them to breathe through their nose into their diaphragm, recently improved their energy and dulled joint pain, a racing heart, and constant yawning and sighing. They were looking for work at the time of writing.

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What they tried

Their words about each treatment
  • Breathing Works breath retraining · HelpedI have recently seen improvement in my energy levels by watching the way I breathe. ... This helped dull some of the icky CFS side effects, joint pain, racing heart, constant yawning & sighing. In context ↗

Approaches: Mind-body practices

Their path

Very severeSevereModerateMildNear normalRecoveredonset6 mo12 mo18 mo2 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
2012CFS began at age 19; unable to workI'm 21 I've had CFS for 2 years now. In context ↗Moderate
2014breathing retraining improved energy and dulled some symptomsI went to a place called Breathing Works & they helped me re-train the way I breathe so that I now breathe through my nose into my diaphram. In context ↗MildMeditation, yoga, breathwork
2014-11-20energy improved, looking for workI am looking for work now! In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • Pain & fibromyalgiaThis helped dull some of the icky CFS side effects, joint pain, racing heart, constant yawning & sighing. In context ↗
  • Breathlessnessconstant yawning & sighing In context ↗

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