Long COVID
Outcome unclearIll for 4 yearsNeeds ongoing treatment
Long COVID fatigue, pain, brain fog and crashes; LDN and pacing, no longer working
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill for
- 4 years
- Last post
- Nov 2024
In their words
- Condition: Long COVID
3+yr long hauler.
In context ↗ - At worst: Moderate
Fatigue, pain, brain fog were the biggest issues ... I’m no longer working
In context ↗ - Began after: COVID
Fast forward to March 2021 and I got Covid just before vaccines were released.
In context ↗
Read from 7 of their posts and comments; links to the 5 this page draws on
Summary
Lagoon 77207 became ill with COVID-19 in March 2021, improved by June, then contracted walking pneumonia in July and never returned to baseline. Fatigue, pain and brain fog persisted, with crashes after activity. Low-dose naltrexone and pacing raised the baseline but plateaued; a COVID reinfection in Alaska and later vaccines worsened symptoms. They were no longer working.
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What they tried
Also tried
meditation· HelpedLDN· Helpedpacing techniques· Helpeda whole lotta rest, days and days· HelpedEpsom salt baths· HelpedCovid and flu vaccines· Worsespeech therapy· Not saidoccupational therapy· Not saidphysical therapy· Not saidtherapy therapy· Not saidacupuncture· Not saidmedical massage therapy· Not saidinfrared saunas· Not saidPaxil to Cymbalta· Not saidPaxil to Cymbalta· Not saidusing weights· Not said
Their words about each treatment
- speech therapy · Not said
Gone through all the therapies- speech, occupational, physical, therapy therapy
In context ↗ - acupuncture · Not said
Gone through all the therapies- speech, occupational, physical, therapy therapy, acupuncture
In context ↗ - medical massage therapy · Not said
medical massage therapy, infrared saunas, meditation
In context ↗ - infrared saunas · Not said
acupuncture, medical massage therapy, infrared saunas, meditation
In context ↗ - meditation · Helped
Meditation really helps too, again temporarily so I have to keep up the practice, but I can physically feel a difference after
In context ↗ - LDN · Helped
take LDN (which did mark some improvement as did pacing techniques I began last summer) during short term disability leave) so increased baseline but then just hit a plateau
In context ↗ - pacing techniques · Helped
as did pacing techniques I began last summer) during short term disability leave) so increased baseline but then just hit a plateau
In context ↗ - a whole lotta rest, days and days · Helped
The only thing that gives me relief is a whole lotta rest, days and days, and then the pain reduces and I feel like I can get up and do something
In context ↗ - Epsom salt baths · Helped
Epsom salt baths do reduce pain but only temporarily
In context ↗ - Paxil to Cymbalta · Not said
For SFN he’s only recommended transitioning from Paxil to Cymbalta which I’m in the process of doing
In context ↗ - using weights · Not said
had worked myself up from no movement to using weights and getting my heart rate slightly up over 3 yrs of the babiest baby steps
In context ↗ - Covid and flu vaccines · Worse
I got both yesterday and feel terrible, and like I made a big mistake
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were | After |
|---|---|---|---|
| March 2021 | COVID-19 onsetFast forward to March 2021 and I got Covid just before vaccines were released.In context ↗ | Not stated | |
| June 2021 | started to feel better and could hike againStarted to feel better in June, getting back to hiking less brain fog etc.In context ↗ | Mild | |
| July 2021 | walking pneumonia after work travelBecame ill after traveling for work in July and contracted walking pneumonia and have never been the same since.In context ↗ | Severe | |
| summer 2023 | LDN and pacing raised baseline, then plateauedtake LDN (which did mark some improvement as did pacing techniques I began last summer)In context ↗ | Moderate | Low-dose naltrexone |
| August 2024 | COVID reinfection in AlaskaJust got reinfected in Alaska on vacation 2 weeks ago and am struggling.In context ↗ | Moderate | |
| November 2024 | felt terrible after both vaccines, recently out of a two-week crashI got both yesterday and feel terrible, and like I made a big mistake.In context ↗ | Moderate |
Adverse events
- COVID vaccination as treatment“I got both yesterday and feel terrible, and like I made a big mistake. I was a week out from a 2 week crash and wanted to get before the holidays.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
Until I do and then flare or crash.
In context ↗ - Brain fog
Fatigue, pain, brain fog were the biggest issues
In context ↗ - Pain & fibromyalgia
Fatigue, fatigue, more fatigue, and pain are the 2 biggest remaining issues.
In context ↗ - Anxiety & low mood
I’m just in the dumps rn
In context ↗