ME/CFS
Moderate → no benefit
Mostly homebound with ME/CFS; coffee before daily shutdown, no improvement
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- Not stated
- Last post
- Jun 2026
In their words
- Condition: ME/CFS
Does anyone else feel like you always have CFS??
In context ↗ - At worst: Moderate
extreme crashing every time i tried to be more active resulting in me mostly being homebound
In context ↗ - Now: No benefit
Every since childhood I've always feel tired, never had the energy to play with other children.. ... theres always this chronic tiredness, extreme crashing every time i tried to be more active resulting in me mostly being homebound
In context ↗ - Began after: nothing they could name
Every since childhood I've always feel tired
Summary
Zephyr 50194 has felt chronically tired since childhood, never having the energy to play with other children, and describes extreme crashes whenever they try to be more active, leaving them mostly homebound. A daily shutdown around 10:20 am brings poor concentration, blurry vision and sometimes forgetting to breathe for about 20 minutes, which two cups of coffee taken in advance prevents. They wonder whether CPTSD plays a role.
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What they tried
Also tried
2 cups of coffee· Helped
Their words about each treatment
- 2 cups of coffee · Helped
The only way i found to stop this fatigue is from consuming 2 cups of coffee in advance lol.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| childhood | chronic tiredness from childhood, no energy to playEvery since childhood I've always feel tired, never had the energy to play with other childrenIn context ↗ | Mild |
| 2026-06-04 | mostly homebound, crashing whenever more activeextreme crashing every time i tried to be more active resulting in me mostly being homeboundIn context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
extreme crashing every time i tried to be more active
In context ↗ - Brain fog
I cant concentrate, the world is a blurry mess
In context ↗ - Vision problems
the world is a blurry mess
In context ↗ - Breathlessness
i sometimes forget to breath
In context ↗