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Long COVID Near normalNeeds ongoing treatment

Long COVID with months of palpitations and tachycardia, now nearly back to normal

Condition
Long COVID
At worst
Not stated
Ill before improving or writing
Not stated
Last post
Apr 2025
In their words
  • Condition: Long COVIDI was doing pretty well with my LC until the past 3-4 weeks In context ↗
  • Now: Near normalmost of the time, if I'm careful, I'm OK - 90-95% of normal In context ↗
  • Began after: COVIDI was doing pretty well with my LC until the past 3-4 weeks In context ↗
Read from 7 of their posts and comments; links to the 5 this page draws on

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Summary

Sparrow 28904 had long COVID with months of palpitations, chest flutters, tachycardia and chest pain, improving to 90-95% of normal by October 2023 while using water, pacing, sleep, diet, supplements, an antihistamine and nattokinase. Stress in late 2024 brought insomnia and electric brain zaps, and a December 2024 vaccine dose coincided with a couple of days of worse symptoms during an ongoing flare-up. By April 2025 the zaps had mostly settled though they still recur.

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What they tried

Also tried

Getting obsessive about sleeping well and enough· HelpedEating more fruit and veg and less or no sugary stuff· HelpedVitamin supplements· HelpedAvoiding getting too hot or too cold· Helpedtherapy· No changeCOVID vaccination as treatment· Worsewellbeing food supplements· Not saidprotein mix· Not saiddaily antihistamine· Not saidnattokinase· Not saidlow histamine foods· Not saidAmitriptyline (Elavil)· Not said
Their words about each treatment
  • Drinking a lot of water · HelpedDrinking a lot of water consistently through the day (very important - like 2-3 litres of liquids a day, mostly water In context ↗
  • Getting obsessive about sleeping well and enough · HelpedGetting obsessive about sleeping well and enough (ear plugs, darkness, regular hours etc. - and avoiding sleeping pills like the plague) In context ↗
  • Resting a lot and pacing yourself · HelpedResting a lot and pacing yourself (stopping what you're doing any time you get near 140 bpm In context ↗
  • Eating more fruit and veg and less or no sugary stuff · HelpedEating more fruit and veg, vitamin supplements etc. and less or no sugary stuff In context ↗
  • Vitamin supplements · HelpedEating more fruit and veg, vitamin supplements etc. In context ↗
  • Avoiding getting too hot or too cold · HelpedAvoiding getting too hot or too cold as far as possible In context ↗
  • wellbeing food supplements · Not saidI've been taking some wellbeing food supplements which may or may not have helped In context ↗
  • protein mix · Not saidand a protein mix In context ↗
  • daily antihistamine · Not saidI take a daily antihistamine anyway In context ↗
  • nattokinase · Not saidhave started taking nattokinase when symptoms act up In context ↗
  • low histamine foods · Not saidI'll try to keep to low histamine foods In context ↗
  • therapy · No changenot for want of effort/research/therapy In context ↗
  • time · HelpedI don't know what factor made the biggest difference or if it was a combination or just time In context ↗
  • Amitriptyline (Elavil) · Not saidbrain zaps I had a few years ago after stopping amitryptiline In context ↗
  • COVID vaccination as treatment · Worsethe past couple of days it's been a lot worse (cell-deep exhaustion, chest pain, breathlessness, getting shaky and needing to eat at weird times) In context ↗

Approaches: POTS medication · Pacing

Their path

Very severeSevereModerateMildNear normalRecovered

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 4 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
—long COVIDI was doing pretty well with my LC until the past 3-4 weeks In context ↗Not stated
—months of palpitations and tachycardia, doubted survivinga year ago I didn't think I'd still be here now In context ↗Not stated
2023-10much improved, close to normalmost of the time, if I'm careful, I'm OK - 90-95% of normal In context ↗Near normal
2024-11flare-up of insomnia and electric brain zaps after stresslife stuff and a fair amount of mental and physical stress happened, and now I can't get to sleep at all In context ↗Not stated
2024-12worse flare after vaccine dosethe past couple of days it's been a lot worse (cell-deep exhaustion, chest pain, breathlessness, getting shaky and needing to eat at weird times) In context ↗Not stated
2025-04brain zaps mostly resolvedit did mostly resolve after a while (maybe 3-4 weeks) In context ↗Near normal

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Heart symptoms & palpitationsI had heart palpitations and chest flutters for months with tachycardia and chest pain, and sometimes still do In context ↗
  • Sleep problemsnow I can't get to sleep at all until I pass out from exhaustion at some stupid time In context ↗
  • Neuropathy & tinglingevery time I get close it's like an electric shock to my brain In context ↗
  • Breathlessnesscell-deep exhaustion, chest pain, breathlessness In context ↗
  • Anxiety & low moodI never have much luck trying to manage anxiety and stress consciously In context ↗
  • Post-exertional malaiselife stuff and a fair amount of mental and physical stress happened ... I've been in a low-to-medium-grade flare-up for the past few weeks

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