Long COVID
Outcome unclearIll for 5.5 years
Long COVID with fainting, now reconditioning hands; credits valacyclovir and methotrexate
- Condition
- Long COVID
- At worst
- Not stated
- Ill for
- 5.5 years
- Last post
- Sep 2025
In their words
- Began after: COVID
May 2020 infection
Summary
Comet 17954 developed long COVID after a May 2020 infection, with breathlessness, an oxygen drop, fainting and vision changes bad enough to call an ambulance; they had managed EBV and mixed connective tissue disease beforehand. In October 2024 they reported valacyclovir plus methotrexate and hydroxychloroquine as their greatest help for flares and long COVID, with markers falling. In September 2025 they reported slowly reconditioning their hands for guitar playing, with substantial neuropathy in their right hand.
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What they tried
Their words about each treatment
- Valacyclovir · Helped
Valacyclovir ... has seemingly been the greatest therapeutic combo for flares and the LC, too.
In context ↗ - MTX · Helped
getting inflammation down (MTX/HCQ - applicable for me due to my ANA and other serological markers
In context ↗ - reconditioning · Helped
What helped was treating myself like I’d never played a day in my life ... very patiently
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| May 2020 | COVID-19 infection; ambulance called for breathlessness and faintingMay 2020 infection, the only time I have, as a chronic illness-haver, ever called an ambulance on myselfIn context ↗ | |
| 2024-10-19 | flares and long COVID improved, problem markers decreasingValacyclovir, along with getting inflammation down (MTX/HCQ ... has seemingly been the greatest therapeutic combo for flares and the LC, tooIn context ↗ | Valtrex / valacyclovir |
| 2025-09-15 | patiently reconditioning hands to play guitar againWhat helped was treating myself like I’d never played a day in my life ... began reconditioning from thereIn context ↗ |
Symptoms mentioned
Their words about their symptoms
- Breathlessness
SOB/oxygenation drop
In context ↗ - POTS & dysautonomia
aperture vision w/ syncope
In context ↗ - Neuropathy & tingling
I developed substantial neuropathy in my right (plucking) hand
In context ↗