Miruvor
Sign up
Long COVID Mild → much betterIll 9 months before improving or writingNeeds ongoing treatment

Long COVID joint pain and mild asthma, now back to climbing at 70% on prednisone taper

Condition
Long COVID
At worst
Mild (working or studying, with limits)
Ill before improving or writing
9 months
Last post
Jan 2024
In their words
  • Condition: Long COVIDI got Covid again this last April (2023) and the joint paint, along with some mild asthma never went away. In context ↗
  • At worst: MildI'll think I'm mostly ok and can go rock climbing and ride my unicycle. Then it roars back in and I start thinking about renting a walker. Getting out of bed is really painful. In context ↗
  • Now: Much betterDown to 6mg prednisone daily and back to rock climbing at about 70% of who i used to be. It's more of an annoyance now. Not crippling anymore. In context ↗
  • Began after: COVIDI got Covid again this last April (2023) and the joint paint, along with some mild asthma never went away. In context ↗
Read from 3 of their posts and comments; links to the 3 this page draws on

Request to remove this story

Summary

Stone 24611, 69, caught COVID again in April 2023 and was left with chronic full-body joint pain and mild asthma. A 12-day prednisone course cleared it overnight, but the pain returned days after stopping. Diagnosed with polymyalgia rheumatica, they began a slow taper. By January 2024 they were down to 6 mg, back to rock climbing at about 70% of their old level, with the pain manageable.

Ask Miruvor AI

Asking aboutStone 24611’s story

What they tried

Their words about each treatment
  • Prednisone · HelpedThat cured all my problems overnight! I was so excited. But a few days after finishing the Prednisone, the joint paint came back as bad as before. In context ↗
  • Ibuprofen · Helped400 mg of Ibuprofen helps a lot, and 800 is even better...but I hate taking drugs. In context ↗
  • Boron · No changeI did try the Boron and it didn't help. In context ↗

Approaches: Other drugs and medicines

Their path

Very severeSevereModerateMildNear normalRecoveredonset3 mo6 mo9 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
April 2023second COVID infection; chronic joint pain and mild asthma beganI got Covid again this last April (2023) and the joint paint, along with some mild asthma never went away. In context ↗Mild
July 202312-day prednisone course cleared all symptoms overnightThey found nothing and gave me a 12 day course of Prednisone. That cured all my problems overnight! In context ↗RecoveredCorticosteroid pulses
July 2023joint pain returned days after finishing prednisone; painful to get out of bedBut a few days after finishing the Prednisone, the joint paint came back as bad as before. ... Getting out of bed is really painful. In context ↗Moderate
October 2023diagnosed with polymyalgia rheumatica, started tapering daily prednisone; back to sports and sleepingI'm mostly back to my old sports and the pain is manageable now. I can sleep again. In context ↗MildCorticosteroid pulses
January 2024down to 6 mg prednisone; back to rock climbing at about 70%Down to 6mg prednisone daily and back to rock climbing at about 70% of who i used to be. It's more of an annoyance now. Not crippling anymore. In context ↗MildCorticosteroid pulses

Adverse events

  • Corticosteroid pulses“But there are substantial side effects from Prednisone so I'm anxious for my body heal up from PMR so I can get off the drug.” In context ↗ Side effects

Symptoms mentioned

Their words about their symptoms
  • Pain & fibromyalgiaAll my joints feel like there are knives sticking through them. From my neck to my ankles, everything hurts. In context ↗
  • Breathlessnessthe joint paint, along with some mild asthma never went away In context ↗
  • Sleep problemsI can sleep again. In context ↗
  • Post-exertional malaiseI'll think I'm mostly ok and can go rock climbing and ride my unicycle. Then it roars back in and I start thinking about renting a walker. In context ↗

Ask Miruvor AI

Asking aboutStone 24611’s story

Similar stories

  • Long COVID, once bedbound, now about 70% of pre-COVID self after salt and compression

    Much better Bramble 60993 Long COVID Severe at worstIll 3.5 years before improving or writing reddit.com Oct 2026

    A woman in North Carolina developed long COVID after COVID in February 2023, with POTS, small fiber neuropathy, MCAS and hEDS. By August 2023 she could barely stand and was later bedbound; she reached about 70% of her pre-COVID self, crediting salt, fluids…

  • Debilitated by long COVID with PEM and brain fog, now much better; clonidine helped

    Much better Owl 49331 Long COVID Severe at worstIll 3.5 years before improving or writing reddit.com Oct 2026

    A man in his fifties with ME/CFS after COVID in July 2022 had four rough months before a booster brought full recovery, then cycles of relapse and partial recovery. A September 2023 sickness left him debilitated and forced early retirement. PEM, fatigue and…

  • Couch-bound with POTS and ME/CFS, somewhat better after beta blockers and ivabradine

    Somewhat better Bluebell 62647 ME/CFS Severe at worstIll 5.5 years before improving or writing reddit.com Oct 2026

    A US nurse developed POTS after her second Pfizer dose in 2021, and spent that summer couch-bound, hallucinating and losing muscle. Beta blockers and then Ivabradine with fluids brought her to about 90% within a year, but CFS with PEM set in. Fatigue, nerve…

  • Nearly bedbound with long COVID, now close to normal after ganglion blocks and nicotine

    Near normal Dusk 66875 Long COVID Severe at worstIll 3.5 years before improving or writing reddit.com Oct 2026

    A former daily 5K runner, he caught COVID and was nearly bedbound in the second month with dysautonomia and PEM. Over more than two years he tried many treatments, crediting stellate ganglion blocks and nicotine, and was trying rapamycin. He was not fully…

A little hope, every Sunday

New recovery stories and data-driven research on ME/CFS and long COVID. Ideas worth considering, and the evidence behind them.

Free · Unsubscribe anytime