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Long COVID Severe → somewhat betterIll 6 months before improving or writing

Mostly bedbound with long COVID, now somewhat better after a supplement plan

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill before improving or writing
6 months
Last post
Oct 2020
In their words
  • Condition: Long COVIDWhat led me on to it possibly being covid was just some article (Washington Post i think) about people having long term symptoms including fatigue. In context ↗
  • At worst: SevereI couldn't hardly leave my bed for almost all of April and May. In context ↗
  • Now: Somewhat betterfor the past month I have been feeling on the mend ... almost immediately I noticed a difference in energy. Like within a few days I felt better than I had. In context ↗
  • Began after: COVIDit's likely I had Covid in March In context ↗
Read from 3 of their posts and comments; links to the 2 this page draws on

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Summary

A 39-year-old man in California had a mild presumed COVID-19 illness in March 2020, followed by months of major fatigue, brain fog, dizziness and tinnitus. He was mostly bedbound in April and May and out of bed only 4-8 hours a day in June and July; workups found nothing. A nutritionist's supplement plan including B12, zinc and vitamin D improved his energy within days, and he had been feeling on the mend for the past month, though tinnitus persisted.

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Asking aboutBreeze 78500’s story

What they tried

Their words about each treatment
  • antibiotics · Not saidFamily Doctor - Assumed ears because of dizziness - went on antibiotics (all based on a virtual visit). In context ↗
  • B12 · HelpedThey put me on a supplement plan and almost immediately I noticed a difference in energy. Like within a few days I felt better than I had. In context ↗
  • Zinc · HelpedThey put me on a supplement plan and almost immediately I noticed a difference in energy. In context ↗

Approaches: Supplements

Their path

Very severeSevereModerateMildNear normalRecoveredonset3 mo6 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
March 2020presumed COVID-19 with three days of fever and a coughit's likely I had Covid in March In context ↗Near normal
April-May 2020major fatigue and brain fog, could hardly leave bedI couldn't hardly leave my bed for almost all of April and May. In context ↗Severe
June-July 2020out of bed 4-8 hours a day, no better, just used to itAnd even into June and July I would maybe be out of bed for 4-8 hours a day In context ↗Moderate
2020-10-07feeling on the mend after nutritionist's supplement planfor the past month I have been feeling on the mend In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseany exercise would completely wipe me out In context ↗
  • Brain fogas well as really bad brain fog In context ↗
  • POTS & dysautonomiaa sort of dizziness that has been difficult to describe as it wasn't vertigo In context ↗
  • Tinnitusthe tinnitus is still present, not nearly as bad In context ↗
  • Anxiety & low moodcompounded with vast amounts of anxiety of not knowing what it is In context ↗
  • Pain & fibromyalgiaI was crazy sore from lying around all day In context ↗
  • Temperature regulationI had a fever for about three days and a bit of a cough In context ↗

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