ME/CFS
Mild → no benefitIll for 1 year
ME/CFS with crashes and headaches, still exhausted after trying Wellbutrin and D-ribose
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- 1 year
- Last post
- Aug 2019
In their words
- Condition: ME/CFS
this is the closest description I’ve found to my symptoms
In context ↗ - At worst: Mild
I can get out and go places, but my energy is extremely limited and I end up crashing.
In context ↗ - Now: No benefit
I’m so exhausted and my body is just so heavy.
In context ↗ - Began after: stress or burnout
the schedule was grueling, particularly over the summer when I worked 60 hour weeks
Summary
A 21-year-old woman became chronically fatigued in August 2018 after months of 60-hour weeks at a Disney internship, with crashes, soreness, memory problems and chronic headaches requiring almost daily pain meds. She had not been diagnosed with CFS; blood and urine tests and an MRI were normal. Wellbutrin, added to Zoloft for fatigue, helped a little before the benefit faded. In August 2019 she was still exhausted, and D-ribose made her feel much worse.
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What they tried
Also tried
Their words about each treatment
- Zoloft · Helped
Before I started Zoloft, I had no desire to do anything. Now, I desperately want to do things, but I’m so tired.
In context ↗ - Wellbutrin · Helped
prescribed Wellbutrin ... It helped a little bit, but it has seemed to wane.
In context ↗ - pain meds · Not said
I have to take pain meds almost every day to function
In context ↗ - D-Ribose · Worse
I took 15g/daily for the past two days and it made me extremely tired within 30 minutes of taking it
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| August 2018 | became chronically fatigued after a grueling Disney internship scheduleI became chronically fatigued around last August.In context ↗ | Mild |
| 2019-02-07 | struggling with online school, sore, crashing, despairingmy body is sore for no reason, I literally just want to die because I can’t keep living like this.In context ↗ | Mild |
| 2019-08-12 | still working but exhausted and heavy after two days of D-riboseI’m so exhausted and my body is just so heavy.In context ↗ | Mild |
Adverse events
- D-ribose“I took 15g/daily for the past two days and it made me extremely tired within 30 minutes of taking it ... I’m so exhausted and my body is just so heavy.” In context ↗ Made symptoms worse
Symptoms mentioned
Anxiety & low moodBrain fogHeadaches & migraineMuscle weaknessPain & fibromyalgiaPost-exertional malaiseSleep problems
Their words about their symptoms
- Post-exertional malaise
I can get out and go places, but my energy is extremely limited and I end up crashing.
In context ↗ - Brain fog
I’m completely forgetting conversations I’ve had with people
In context ↗ - Sleep problems
I’m constantly sleeping late
In context ↗ - Pain & fibromyalgia
my body is sore for no reason
In context ↗ - Headaches & migraine
I’ve had chronic headaches for the past 2-3 years
In context ↗ - Muscle weakness
my body is just so heavy
In context ↗ - Anxiety & low mood
I’ve had depression since I was about 16
In context ↗