Long COVID with brain fog and twitching, now much better and functional for work
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 2.5 years
- Last post
- Sep 2026
In their words
- Condition: Long COVID
I came down with LC 3 months after I recovered from Covid.
In context ↗ - At worst: Mild
Nothing life threatening, but I'm 5 months in and can't do anything fun at the moment.
In context ↗ - Now: Much better
First 2 years were a slow grind with a lot of bumps. Last 6 months have seen more notable improvements ... I can functional fairly well for work and daily life.
In context ↗ - Began after: COVID
Caught Covid last year and recovered in 6 weeks, then 3 months later this popped up.
- Says they never had: Post-exertional malaise
I don't know what PEM crashes feel like. I don't think I have that
Read from 37 of their posts and comments; links to the 15 this page draws on
Summary
He, a 33-year-old Canadian man, caught covid in September 2023 and fell ill with long COVID — dysautonomia, brain fog, twitching — in January 2024. He rested, paced, walked daily, changed his diet, took supplements and tried Chinese medicine and acupuncture. Progress was slow: about 70% by March 2025 while working full time, and by September 2026 functional for work and daily life, hoping to reach perhaps 85-90%, though not back to sport.
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What they tried
What they credit
Also tried
Their words about each treatment
- sunlight · Helped
the single most effective thing I've found so far is literal sunlight ... a solid hour of sunlight makes it better, every single time
In context ↗ - vitamin D · Helped
It's also not the same thing as taking vitamin D and calcium. I take those too
In context ↗ - calcium, magnesium, zinc · Helped
I take vitamin D/calcium/magnesium combo (they work together so take the right ratios), zinc
In context ↗ - vitamin B complex · Not said
zinc, and vitamin B complex (contains all vitamin Bs)
In context ↗ - balanced diet · Helped
A balanced diet (no spicy, no fried, no high fat, no high sugar, no caffeine) ... should help
In context ↗ - rest and pacing · Helped
lots of sleep, pacing, and generally giving your body a ton of rest at the beginning is required
In context ↗ - walks and gradually increasing daily activity · Helped
it was a gradual increase in walking, chores, errands, work, etc and some supplements to support
In context ↗ - acupuncture · Helped
I did acupuncture and Chinese medicine for 2 months and they helped a bit, but I stopped as it was getting expensive and the effects decreased a lot after I recovered a little.
In context ↗ - Chinese medicine · Helped
I've taken some Chinese medicine and acunpunture back in early stages and found those to help a decent amount. It's not really effective beyond getting you back to 50%.
In context ↗ - electrolytes (Hi-Lyte) · Helped
Electrolytes help.
In context ↗ - SPM active fish oil (Metagenics) · Helped
I've been using Metagenics SPM pills for about 6 months. Do I feel better than 6 months ago? Yes. Is it all due to the SPM pills? Probably not.
In context ↗
Approaches: Alternative therapies · Pacing · Physiotherapy and rehab · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| January 2024 | long COVID symptoms began three months after covid recoveryStarted feeling similar symptoms to you from January onwards with additional brain fog and nervous system dysfunctionIn context ↗ | Mild | |
| early 2024 | could barely do anything at first, worked remotelyI litrerally couldn't do much of anything at the start even when I triedIn context ↗ | Mild | |
| May 2024 | slow improvement, walking 4-5 km a dayI'm 4 months in and have been getting better slowlyIn context ↗ | Mild | Pacing and the energy envelope |
| March 2025 | about 70% recovered, working full timeI'm just over a year in and probably at 70% nowIn context ↗ | Mild | Pacing and the energy envelope |
| September 2026 | functional for work and daily life, not back to sportI can functional fairly well for work and daily lifeIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Brain fog
additional brain fog and nervous system dysfunction
In context ↗ - POTS & dysautonomia
I came down with what appears to be dysautonomia this year
In context ↗ - Neuropathy & tingling
Twitches, numbness and spasm-like contractions
In context ↗ - Anxiety & low mood
LC has caused anxiety for me as well, although it has gotten better (very slowly)
In context ↗ - Sleep problems
waking up every morning feeling like I've been hit by a truck
In context ↗ - Headaches & migraine
dizziness, itchy eyes with visible redness/bloodshot, head pressure, brain fog, jaw tightness, fatigue
In context ↗
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